Internal Vibration with continual pins and needles for months.

[josie55]

I posted earlier this year regarding numbness, pins needles and memory/cog. problems and stiff hips.  Pins and needles increase with heat like blow dryer, heavey robe, etc.

Brain MRI showed bilateral punctate areas of increased signal in frontal region in deep white matter on FLAIR.  Not diagnostic of demylinating disease.

Cervical showed no convincing evidence of deyelination seen.

All lab work came back fine including B-12, ANA, Glucose, perfect.

My symtpoms have remained -5 mos.-with some days stronger than others. Now I have sensations of rubber bands snapping above my right eye and eye area -- slight numbness around my eye. Sharp jabbing pain was original symptom back in June. My vision is worse in right eye.

My fourth and fifth finger on my right hands feels weak and sometimes I awake and my 1/2 hand ONLY is numb.My right arm and legs do get tired/exhausted feeling that I never had before.

Since August I feel a continual internal vibration -- slight buzzing throughout my body. Sometimes it feels like the lower half of my face & chin is vibrating - almost to a tickle feeling but really annoying.

I had total hyst. in 2/04 with no HRT unti August. I am late 40's

What would cause my pins and needles to happen simulatneously
into my hands or feet at same time so many times per day? Memory,
snapping? Vibration?

My Phys.thinks hormone related. I take no meds except estrogen.

Can you please provide insight? MS? I know you can't diagnose me :-)

Thank you in advance!

[radrhatr]

I have also considered mercury toxicity as my problem. I have a MOUTHFUL of amalgam fillings from when I was a kid. The only molars that don't have fillings in them are the two I had root canals on--and they had fillings in them before that!!! I had a mercury blood test that came back 0 level, but I don't think that is the best test for that. What kind of a test did you have and who did it?

[kwag]

Just thought I'd let you all know that I did get some tests back.  Everything checked out okay like thyroid, CBC, Chem 20, glucose, etc..... BUT.... i have toxic levels of mercury!!!!  I looked up mercury Toxicity and that spells me.  I hope to get this stuff taken out with DMPS.  I go Monday for that to start.  I also had elevated lead.  Just wanted to let you all know.  I had about 8 amalgam fillings in my teeth.  I also used to give vaccines for years and I ate tuna regularly.  Hope this helps you all.

[espm4]

I also feel the vibration/tremor in my back. If my husband sleeps to close to me at night, he can feel it, and he said that I have a lot of jolts.  I also believe that this is directly related to my anxiety level.  For instance, just the normal excitement of election day seems to have taken a toll on me today, and I can tell that tonight will be difficult.  I have had so many days when I am just dead tired, and now I realize it's because I'm just not getting decent sleep at night, even though I'm not waking up. I am Hopeful42 at braintalk, and will start checking in there when this original post disappears.

[radrhatr]

Are you not getting enough sleep because the tremors are constantly moving your body without your being aware? Or is there something else that is causing your sleep disturbances? My sleeping patterns have also been dramatically altered by this stuff. I don't move around at night-my tremors subside as my body stills-so it's not them that keep me from getting a good night's sleep. My head/brain feels different. It's like I have a head cold, only I don't have the cold. It feels "tinny" if that makes sense. I had terrible insomnia (1-2 hours/night, if I slept at all) this summer. My body was felt like it was in overdrive. Meds have helped me sleep, but I sleep much differently now than before this happened. Something radically  altered the sleeping part of my brain, I feel.

[josie55]

Hi All....

Well all I can say is that Cleveland Clinic is first class and professional.  My appointment today was lightyears different than any appointment I have ever had.

The doctor was very kind, easy to talk to, interested and thoroughly examined me.  SHE is going to investigate further through additional testing.  I feel taken seriously.  

Whether or not she can put a name to my symptoms/condition
I don't know.  I do know that she is trying.  That is all I ask.
I was definitely not blown off.  

More tests in 2 weeks.  

I am going to locate you on another website Caroline....thanks for helping me track you down...

Please keep this post going if anyone has any ideas...I will be reading!

Josie

[radrhatr]

Glad you had a good appointment. I'll be anxious to hear how things progress as I feel like I am running out of traditional medical approaches here. I tend to frequent the General Neurology and Rare Disorders Thread at the braintalk site if you are looking for me.

Does anyone else find it interesting that this thread has generated so much interest from people? We can't find a whole lot of info out there about what ails us, but when we find someone in our same boat, it's like a lifeline!