My daughter's symptoms of transient vision loss 10-20 x's a day started 4 yrs ago at age 12. Then last October 4th, (age 16) she had temporary peripheral vision loss along with a headache pressure at the back base of her skull. Since then, the headache pressure has never gone away (6 mos now) and her symptoms continue to increase each week: constant nausea, transient vision loss, dizziness, low back pain, tingling/numbness in right side face and sometimes arm, flushing (redness) on right side of face, burning shooting pains sporatically in her head, and now possible absence seizures 2-3 per month. She also shown that she has Orthostatic Hypotension on the Tilt Table Test and she had a positive Babinski response on her right foot.
No meds have done anything except Levsin for the nausea. All MRI's & MRA's of brain & cervical fine (except pituitutary which endo says is fine because of her age) (she will be 17 in June). All blood work (hormone test, ANA test, CBC, Iron), Lyme test (western blot), heavy metal testing, EEG, Echocariogram, spinal tap FINE. The only tests not done has been a MRI of spine and a cortisol test.
I have written to a doctor in Austin who specialized in Pituitary Glands and he has agreed to review her MRI. I just sent it to him yesterday Priority Mail. I hope to hear something back from him next week. If he sees something that the others did not see on the MRI, we sill go to Houston, TX (We're just outside of New Orleans) to see him.
I also spoke with a doctor who specializes in Chiari in Austin and he has been reviewing all of her records and MRI's. I have the CD's from all of her test. Be sure to get those from when you have a MRI or EEG or whatever done and request all written reports from the tests also.
Also, keep notes of all that has been tested, symptoms, and meds that have been tried.
I have searched everywhere to find a normal pituitary gland on MRI for a teen and cannot find any images to compare to. The adult normal is nothing like hers, it looks like a bean. Hers is a big round ball.
I will put you in friend category to follow up if you find anything and if we ever get a diagnosis, I will be happy to let you know.
Hi Kkrylee,
Thanks for the reply. I just wish someone would tell me whats a normal size pituitary, it's driving me crazy. I'm sure you know how I feel. I was in my late 20's when that MRI was done. Your daughter's look similar to mine though. How long has she been having symptoms and are they cyclical? Has she had hormone testing done?
I am not a doctor, only a mother of a 16 yr old with a pituitary that is 9 mm and globular in shape (a big perfect ball on her MRI). It is butting her optic chiasm. Her endocrinologist stated that it was normal for a teen to have a pituitary that large, but she has numerous symptoms that have not been explained through other tests so I am now trying to have the pituitary looked at again.
What age were you when this MRI was done? I have my daughter's MRI of pituitary in my photos on my personal page.