I've had seizures since I was ten, I am currently 18 and never took any medicine for them. They had seemed to have stopped after the 5th grade but after about 4-5 years I started having them again. The doctors have done tests and redone some of them and found nothing wrong that they can tell. So far the triggers have been sever pain, stress, or illness like the flu. The last couple of times I've had a seizure I have actually stopped breathing. I do not think the doctors even believed I had them until I got sick and had one in the doctors office while the were checking my blood pressure. I can usually tell a couple of second (long enough to notify someone nearby) before I have one. Before I have one I usually get a funny feeling similar to the kind of feeling you get by standing up to fast. Then I black out and according to my parents and sister who have been present during most of these 'episodes' I start twitching and lose bladder control, and stop breathing. When I come to Its as if I am waking up from a dream I slowly become aware of the world getting hearing back first then vision and controlled movement of my arms, legs, and head. Afterwards I am exhausted for hours and sometimes its even days before I feel like myself again. I would like to know if anyone with a similar condition has found a way to completely prevent them so that I can have a normal life. I would also like to know if it would be safe to have children or if it would be to great of a risk for both myself and the child. Also to those who say it is impossible for pain to be the trigger that is because you have not experienced it. People also used to say it was impossible to land on the moon yet we have. Think about all the deseases that have gone undiagnosed for years until resent advances in medicine.
I have had the same thing since I was 3 or so. Mine were all pain induced. The only time they could ever trigger a seizure was by doing a 24 hour sleep deprived study and they caught it as I was falling asleep. I was on epileptic medicine and went into remission at the age of 10. I had full tonic clonic seizures. I have had two small petit mall seizures since then and only those two which were both not pain induced and have not been on meds since I was 13. My son is now having the same issues and he is only 5. The first neuro we saw told me he was not having seizures and it was vasovagal syncope which resemble a seizure...but I know my son and I know what a seizure is and he does not just pass out from pain. I got a second opinion. I finally a neuro that would listen to me and she has started testing him every which way. His seizures have gotten worse to where he now is doing a full tonic clonic episode...While they don't last very long he is definitely in one. It really upsets me to see doctors telling people they don't know what they are talking about when I have lived through it my whole life and I know the difference. He does not pass out like a vasovagal would do..he goes directly into a seizure. It is not by all pain but very selective...more deep tissue type of pain. Stick to your guns and don't let them tell you something if you don't believe it...get a second or even third opinion until someone will listen to you.
Hello I am now 27 I had my first seizure when I was 21 and tore my tendon. My episodes are triggerd by high stress,Anxyity and mostly pain. My Dr is having a hard time coming up with answers I'm so glad that I seen you're post they want me to see a cardiologist to implant a chip so they can monitor my heart. Yesterday was my first time having two episodes in one day thanks to Roy (my thrombosed hemroid) what medication did they put you on is it a heart Med or is it a seizure med? I am soooooooooo glad I am not alone. Yesterday the nurses where laughing saying I have never heard of such a thing making jokes and what not about me even after they witnessed it happen.