to anyone experiencing hemibody symptoms.....we may not get an answer

[chick1]

Hi, I myself have been experiencing left hemibody tingling/ numbness.(left foot, leg, arm, face (including left side of lips and tongue, which screws my sense of taste), nasty headaches, dizziness. It has been steadily progressing since July, started in foot, by Aug. was affecting arm, Mid-Oct. hit face... Nov. started having dizzy spells, headache getting progressively worse with severe pressure in back of head, and behind eyes. I have seen Neuro, had MRI, had lots of blood sucked, as well as LP. MRI showed lesion in left frontal white matter, but that "can't be causing symptoms". It also showed area of increased signal on brainstem, but Neuro blew it off as "artifact". I am scheduled for repeat MRI next week(3 months apart)  Neuro said "could be lots of things, but sometimes you never get an answer."
I did some research and discovered "Hemibody Sensory Syndrome"...a condition that often has "poor diagnostic yeild".....(look it up)
I've come to the conclusion that there are so many variables to neurologic sensory symptoms that it may be easier to say "I dont know" than to continue with tests.
If symptoms had come on suddenly I would swear it was a stroke, but it has just been gradual.
If anyone else can relate please respond with your thoughts, your Dr.s, or whomever!

[tamizh123]

I have been going through this for years now. It progressed and now i have chronic sensory deficit on my left side. All tests normal. But i have heaviness and pain. doctors said it is anxiety. i have had two mri/mra done. all normal(i am grateful) but it is frustrating.

[tamizh123]

I have been going through this for years now. It progressed and now i have chronic sensory deficit on my left side. All tests normal. But i have heaviness and pain. doctors said it is anxiety. i have had two mri/mra done. all normal(i am grateful) but it is frustrating.

[Emmanuel Petitjean]

It's still progressing as far as I'm concerned... now my face is beginning to feel funny at times on the left hand side. All the doctors I have seen say it is psychological.
I'm not so sure myself, but because of this I'm doing a psychotherapy now.

[patsy10]

I hear you.  I've been there for over 2 years with normal tests and no answers.

[Emmanuel Petitjean]

I mean my email is petitjean_e  (at)  yahoo  (dot) fr

:-)

[Emmanuel Petitjean]

Hi,

I am having exactly the same problems, can we get in touch?

My email is petitjean_e***@****

Emmanuel

[cjhays]

I wasnt you to know that I am not experiencing the same, but I can understand your frustration on NOT knowing.  It is really scary NOT knowing. I hope and pray that you will get the answers you deserve to alleviate any uneccesary stress.  Please keep us posted.