Weird Black-outs, and overly tired

[Jonthib]

Hi, I'm 16 and I've had black out problems for most of my life. Before this past year I would only get black outs if I stand up really fast, and if I'm standing for a long period of time. Most of my friends and family say they get the black-outs that I describe to them, but only for a split second, and usually only when they stand up really fast from sitting a long period of time. A few months ago I fell and hit my head really hard during a band rehearsal, and started having a lot of head pain. I went see my doctor and they did a MRI of my head and said there wasn't any internal bleeding, and that the brain probably just bot bruised a little during the impact. Ever since then my black-outs have gotten severely worse, and now I'm starting to experience new symptoms.
I've been sleeping around 12 hours a night (I'm on summer break), and still feel extremely tired throughout the day. I've become very temperature sensitive in the past month, along with the extreme bout of tiredness and fatigue throughout the day. I get extremely hot very quickly, and I get extremely cold very quickly during moments where it really isn't that hot or cold. My black outs are lasting a few seconds longer, and are also becoming heavily more frequent.
I've gone see my general care doctor, a neurologist, and a cardiologist. They've all had different theories that they tested and came back negative. My general care doctor believed it was Anemia, but the tests came back negative. My cardiologist believed I have been dehydrated for a long duration of 8 months, and believes my symptoms should go away with drinking more liquids. I've been following her advice for the past 8 months, substituting Gatorade for sodas, and being conscientious about drinking a lot more water throughout the day; symptoms continued to worsen. The last neurologist did not find any explanation for what is going on; therefore I have made an appointment to find someone that can. I am unsure where to go, and where I should be getting the proper care and attention from. My family has a very large presence of heart problems, so I believed the cardiologist may have a clear explanation of what is going on. Everywhere I have gone, I have not found proper care to my symptoms. Where should I go, and what should I do?

[Jonthib]

What symptoms do you, or did you experience with your condition? And are there ways to treat those type things?

Thank you guys for the great information!

[Jonthib]

How long did you continue to have these symptoms? It's been a little under a year that I had the injury, and my symptoms seem to slowly be worsening.

[Nanasue4]

Have you seen an electrophysiologist (ET) - a cardiologist that specializes in heart rhythm problems?  You might ask him/her to check for Long QT syndrome as it's associated with passing out, and can be hereditary.  (It's a heart rhythm problem seen in young people that an ET is trained to look for).   I have a heart arrhythmia and know how frustrating it can be trying to get a diagnosis or even for doctors to take you seriously!   Good luck to you - please keep us posted...

[SamPCS]

I had a mild Traumatic Brain Injury 2 + years go and has some of your symptoms - fatigue, sensitive to hot temperature etc.,  Most likely what you have is Post Concussion Syndrome.  It is a very difficult condition with lots of chronic symptoms and there is no single pill, therapy etc.,   In the beginning days the advice is to rest and eat healthy.  Hope your cardiologist ruled out POTS.   You have to find a good doctor with experience in head trauma.  Not many out there.  Since you are only 16 and your brain is still growing you have a very good chance of recovery.  But consult an expert who knows about PCS.