So sorry to hear that your daughter is in so much pain. Her pain sounds like it could be a neuropathy-type of pain. There are specific medications for this type of pain that are non-narcotic. Low dose narcotics for a 13 year-old, for a short period of time should not be out of the question either.
Finding out the cause of the burning and pain might take some time. Until then, take her to the doctor again so she can get some pain relief.
Let me know how she is doing.
I realize the original post was created in 2012 but maybe this will help anyway:
Last summer I started having the sunburned sensation like your daughter and I also had other abnormal pain, like pins and needles, among other things. It was excruciating. When I went to the doctor and then to the ER the only thing I was told is that it is Neuropathy, which doesn't really mean anything; it's too vague.
I wasn't getting the help I needed from the "regular" medical community so I looked for a naturopath. The naturopath suggested that my hormone levels be tested because he said my symptoms were similar to the symptoms of having a hormone imbalance. When he got the blood test back, the results indicated that my level of progesterone was almost non-existent.
He prescribed natural progesterone that is made at a compounding pharmacy. It comes in a cream and is put on my inner thighs before bed. (Note: don't use synthetic progesterone like the kind found in birth control pills, synthetic will make things much worse.)
After about 2-3 weeks my symptoms had a dramatic change; they were almost non-existent. I still have days where the pain comes back for a few minutes, but that is rare. If your daughters periods are irregular then this could suggest that she doesn't have enough progesterone in her body.
Also note that progesterone levels effect thyroid levels, which effects things like our metabolism (Does your daughter have an hypo or hyper thyroidism?). Checking hormone levels is a simple blood test, but it you have to ask to have these levels checked because they're not typically checked by doctors.
I hope this helps:)
Actually, no, I don't have an answer. But I want to chime in here and say BIG thank you for your shares. I thought I might be losing my mind. I have had a severe burning skin sensation on my head, neck, shoulders and upper back...sometimes it will go around to chest. My back often feels wet or like prespiration is dripping down the side of my head. I automatically feel to check to see if it is wet...never, ever...just that weird sensation. The worst is the head...I mean some times it get so hot that I have to find something cold to put on my head. Went to a Rheumatologist a few months ago and he tried me on Prednisone which did not help at all so I am off of it. A pharmacist dr gave me hormone cream as mentioned by someone...applied on skin of thighs but I did not have any change after two months...I'll try that again as maybe I didn't give it long enough. From all that I have read...the neuro doctors don't know what this is either! Where am I to go to get help ... it is a mystery as all of my blood work is normal. I do have Hashimoto's and the Levothyroxine levels this out. 3 years ago I had my hair fall out, then it grew back in to only fall out again last year. This time it is total loss... Alopecia Universilis and have no hair on my body...this is when the head pressure, head aches and wet/sunburn sensitive skin started I'm ok w/hair loss...I am NOT ok with this constant burning....driving me nuts! Gosh, wish there was help somewhere?????? ***@****