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Worsening blurred vision, unilateral tinnitus, derealisation, fatigue

For the past few months I have been suffering from blurred vision, at first it just seemed a little off but has steadily got worse. Without glasses it is now almost double vision at distance. It goes in and out of focus, some days it never comes into focus and I cannot read my phone. I have had repeated eye exams, prescription changes but cannot get this sorted. The same week this started I developed tinnitus in my left ear only which is constant every day. I have been signed off work.
I also have what I believe is derealisation. Feel like I'm walking around in a dream or nightmare.
Two months ago I had what I hoped was a migraine aura, sparkling zig zag arc that eventually goes out of peripheral vision. I had no headache but had an extremely stiff neck in the hours preceding this. I had this aura again two weeks back, this time it lasted 30 mins and another one started straight after. Then an hour later while looking it up on Google I had another. A very slight tension type headache followed.
Obviously my fear is a brain tumour or secondary brain metastases (I recently had a cancer scare and had to have to colonic polyps removed, which came back benign)
I have seen gp's, ENT, neurology and opthamology. No cause can be found for my symptoms. I've had head ct, 3 brain MRI's one with contrast and still none the wiser. The eyesight is the worse. Blurred constantly, blurs in and our, patterned surfaces seem to have a shimmering heat effect, ghost images, after images, flashes in peripheral vision when moving eyes (Not auras) and constant foggy feeling of derealisation, almost like a drunk, stoned feeling.
Before all this started I was really fit. Running 10k every week and boxing at amateur level. Now I can barely walk around the house without getting exhausted and can barely see.
Anyone got any ideas?  
2 Responses
207091 tn?1337709493
You can have migraines without pain. It's called silent migraines - https://www.webmd.com/migraines-headaches/what-are-silent-migraines#1

A good friend of mine has these and has tinnitus. It's awful. They treated her for migraines with topiramate, and she's a lot better.

If you've had MRIs and CT scans, I think you can feel secure in not worrying about anything malignant. I don't know if this is what you have, but it may be a starting place.
1 Comments
My GP said Migraines are a good shout but the eyesight and tinnitus are constant. He really had no idea! He referred me to neurology but I've already seen a private neurologist who did a basic neurological examination and said I'm fine. I had to beg him for the MRI with contrast. It came back clear apart from a nasal polyp and fluid in sinuses. I don't think that could cause my symptoms.  All my symptoms point to something to do with my brainstem. But surely the MRI would have seen something. I can't stress how bad my eyesight has become, I can barely see to type this on my phone. Blurry, ghost images, focus going in and out.Constant, screaming tinnitus in one ear too. Terrifying.
Avatar universal
Have you gotten any answers or gotten better?

It sounds to me like it could be upper cervical instability.
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