sorry, not 8 yrs old...18yrs old. My son is 18yrs old.
Hi I am not a Dr, and know very little of this condition, but did read that Physiotherapy intervention can be of some benefit....do look into this possibility and I pray all goes well for ur son.
Thank you for your response to my letter. Yes, he exercises daily to relieve the tightness in his legs. I am also giving him colostrum and egg yolk extract in an attmept to slow down the progression of the condition.
This is to let readers know about me, the mom. When I was about 7 - 8, I started to have walking difficulties, My feet would bent inwards and I would be walking on the outer part of my feet. I was given corrective shoes to wear by the Singapore General Hosp. I became progressively worse over the years and by the time I was a teenager, I was unable to walk, control my hands or sit up without support. I could not balance myself. My dad would bring me to my class every school day. By the time I was twenty, I was having spasmodic fits, couldnt swallow properly - I was actually waiting to die. My brother, who was an intern in the Singapore hosp, saw a new drug being used on parkinsons patients and he thought their symthoms were quite similar to mine. He suggested I try the drug. It was like grasping at straws - but I had no hope left - so, I took the drug. The first few hours, I was able to hold up a book to read. A week later, I was learning to walk. I went on to recover fully from my disorder (which, to this day, drs here have not given a name or identified) I got married in my late twenties and gave birth to three sons. This son that I am writing about is my youngest. The two elder brothers are alright physically. Jon, my 18 yr old son, was diagnosed with mild cerebellar atrophy on 11/9/2012. I was told by the neorologist that he inherited the disorder from me. Needless to say, I am filled with despair and guilt. If only I had found out more about this disorder before I planned my family. Since 11/9, I have been unable to think of anything else but Jon becoming worse and ending up like me when I was a teenager. If there's anyone out there who can advise me how to help Jon, please write to me. He wants to be a chef - he is so inspired by Gordon Ramsey that he would not study anything else. Now...I can only pray and hope that God will show mercy to my poor boy.