Nerve condition needs diagnosing

[Dina723]

Hi! I'm just joining this group in hopes I can get some more insight into my undiagnosed medical condition. I have had some type of nerve condition for almost a year now.  I have many other symptoms and was tested for many things,and I'm receiving some treatment for them.  However, my nerve pain has not let up. No doctor has been able to connect this nerve condition to my other illnesses. I have tingling, numbness, pain, and weakness symptom on the left side of my body including both legs, but it's worse in my right foot and calf than my left. I can't stay on my feet very long without the nerve pain making my legs very painful. Standing still and walking are both nearly impossible for very long. So my mobility has become very limited.

My first nerve conductor study was done early last fall. This doctor only tested my left side and found no nerve damage. He dismissed me, telling me nothing was wrong with me. I could barely walk and needed a wheelchair to go anywhere. But he found nothing wrong.

Several months later, same persisting condition, I had another nerve conductor study done. Once again only on the left side, even though I clearly stated it affected my right foot more. That test was to rule out a MS diagnosis. (my brain scans were good).

So, can you tell me what I'm doing wrong in not getting the testing I need? I'm  not even sure a nerve conductor study is the right test for me, since nothing came back positive for nerve damage on my left side. Can you tell me why they would not test both sides of my body to get a baseline at least?

My GP now thinks it "could be" peripheral neuropathy but doesn't want to send me for more tests. He also doesn't want to give me any medication for the pain and over the counter meds don't work. I'm out of ideas and feeling really defeated. I'm afraid I've had this so long it won't go away. He sent me to a physical therapist for Rebuilder therapy. I've had 8 sessions and I don't feel any differently. Has anyone had success with this therapy?

I appreciate all the advice I can get. Thank you so much!

[Dina723]

The nerve conductor studies were performed by neurologists. That's much of my frustration. The first one was assigned to me while I was in the hospital. The second was a referral by my GP. :((

[LeagueCityREALTOR]

Can you get a referral to a neurologist?