is this bad?

[Roxy180]

I have a cavernous angioma that is on my cerebellum and they tell me now that blood vessels are breaking apart around it.
Please do you know what this means for me?

[jodfeli]

I am a 40 year old woman.  I had my surgery in 2006 to remove a Cavernous Hematoma, and cortorize my Venous Angioma.  My Hematoma was found encapsulated in Gliotic brain which had to be dissected away, then suctioned out.  This was 1/16 th of an inch away from my brain stem so microsurgery was used.  My craniotomy is since deformed.  I suffer from sever migranes, pain on the left side of my head, swelling, shocks, weakness in the left side of my body, dizzyness, memory loss, at times blackened vision, black dots through my vision, pain in the eyes, nausea, headaches every day.  Sensitivity on the left side of my head, where I had this surgery.  It's difficult to wear glasses, I can't wear headbands.  I get regular Mri's, After the surgery, it showed 2mm's where the cavernous was, which was 9mm.  Now it is 6mm's.  I also show a gliotic leision in the frontal lobe of 2mm, and one in the left hemisphere of 4mm.  Are these Cavernous as well bleeding out?  If I had gliotic brain tissue removed previously when my cavernous errupted before?  Is my cavernous growing by my brain stem again?  Why is there another leision growing to 6mm again?  why am I in so much excrutiating pain 4 years after my surgery?  I've been getting occipital lobe injections but they don't help, and this is on medication I still feel pain.  Any explanation would be greatly appreciated.  Thank you so much.

[badoor]

I am 36 yrs old, had brain hemorrhage in Jan-09..in June, i was diagnosed (MRI) with multi cavernous angioma in the brainstem. Dr said, its not accessable for and surgery removal..for time being, he suggested Gamma Knife treatment..through out my search, there isn't such an evidence of recovery after radiosurgery.. pls advice if at least to go for BV shunt surgery as a precaution from rebleeding.

[paul48318]

both legs the muscle tissue is dying( getting thinner). Could that be the angioma or something else?

[ampky]

It really depends on the location in the brain as far as what is affected.

What part of your legs?  Is it both sides or just on leg?

[paul48]

Can it affect your legs, such as muscle degrading.

[DrRakeshMD]

Hi Dear

Cavernous angiomas are clusters of blood vessels present in the brain or spinal cord. They are made of multiple little bubbles (caverns) of various sizes, filled with blood and lined by a special layer of cells (endothelium). These cells of a cavernous angioma are leaky and and blood may leak through them quite easily.

Are you having any symptoms? Cavernous angiomas may have no symptoms. However, depending on the location, they can cause seizures, weakness, balance problems, memory problems, or vision problems. They may also bleed and put pressure on the surrounding tissues. Please note that a hemorrhage in the cavernous angioma may be life-threatening also.

Most cavernous angiomas are observed for change in appearance, recent hemorrhage or clinical symptoms. Medications are available to treat seizures and headaches caused by cavernous angiomas.

Surgery is generally done for cavernous angiomas with recent hemorrhage, those which are expanding in size, and in some cases, those which are causing seizures...

Hence, please consult your neurologist and have the best possible treatment started.

God bless..

[ampky]

I also had a cavernous hemangioma near the cerebellum/brainstem.  It can cause defects in your balance and coordination.  Only around 25% of them bleed (causing a stroke).  Since it's in the deep portion of the brain, it is hard, but not impossible, to have it surgically removed.  A yearly MRI should be done to make sure there is no change in size, mass, etc.  Has your Neurologist/Neurosurgeon made any suggestions?