Avatar universal

undiagnosed in Indiana

Any Ideas before I lose every penny I have left?
I have been referred by several doctors to the Cleveland and the mayo....I am frustrated I cannot get a good treatment here or diagnosis....would love to get a pet scan done as I have family with history of cancers. Derm is aggressivly treating as connective tissue with thought of dermatomyositis I am taking plaquenil and methotrexate...
Mthotrexate at 18 mg wk and plaquinel at 400 mg day. Still having tinnitus, occasional loss of hearing, loud whistle at times, severe fatigue, and electric shocks with muscle fatigue...here is med history...Medical history is on my profile which is lengthy including blood work  and brain mri.
3 Responses
Sort by: Helpful Oldest Newest
1433517 tn?1283441290
Hi Sandra -

I'm not a doctor, but I have a relative with dermatomyositis.  Even though she had had the disease before, the very doctor who diagnosed her years ago, refused to believe it had returned.  So she traveled to the Mayo in FL, and again, that doctor said she didn't have all the symptoms as before, however, he wanted to do a muscle biopsy to be on the safe side.  And viola - her dermatomyosistis was back.  GO TO MAYO!
Helpful - 1
Avatar universal
Thanks for using the forum. I am happy to address your questions, and my answer will be based on the information you provided here. Please make sure you recognize that this forum is for educational purposes only, and it does not substitute for a formal office visit with a doctor.

Without the ability to examine and obtain a history, I can not tell you what the exact cause of the symptoms is. However I will try to provide you with some useful information.

First of all, you probably should post your question on a dermatology forum. I cannot comment on your pictures. Also, many medications can cause some of the symptoms you describe.

Regarding the tinnitus and occasional hearing loss, there is a condiation called Meniere’s disease that includes these symptoms, but also includes dizziness. This would be best diagnosed by a specialist in the ear, nose, throat community.

Lastly, sometimes symptoms as you describe may reflect emotional/psychiatric problems related to stress (what is called somatization disorder).

Thank you for this opportunity to answer your questions, I hope you find the information I have provided useful, good luck.
Helpful - 0
180749 tn?1443595232
Help your body to build up the immune system naturally with pranayam.
The Yog Pranayam (breathing exercises) will  help with the health problems.First you will start to relax, and then the benefits will be felt gradually.Come back to report your progress in 4 weeks and 6 months, or whenever you can.
Build up your timing gradually. If you feel tired or dizzy, stop and resume after 1 minute.

Bhastrika - Take a long deep breath into the lungs(chest not tummy) via the nose and then completely breathe out through the nose. Duration upto 5 minutes.Place your fists, with the thumb pointing up, on the the legs, above the the knee, and do bhastrika for one minute.Repeat this for one minute, but with the fists upside down, so that the thumb is pointing down, and resting on the legs.

Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 20 to 30 minutes twice a day. Not for pregnant women. Seriously ill people do it gently.
Children under 15 years – do for 5 to 10 minutes.

Anulom Vilom –
Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 15 to 30  minutes twice a day.
Children under 15 years – do for 5 to 10 minutes.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 21  times

Once you are better, continue the pranayam once a day.
Helpful - 0

You are reading content posted in the Neurology Forum

Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease