Aa
what's happening to me
Sorry this is long but I will give u the shorter verson
I too have this problem I black out I have had aura and have unusual spells of talking rubbish it makes sence to me but everyone else doesn't understand what I am saying.
Also had just one attack where I felt odd went dizzy lightheaded lost vision movement and speach.... I could shout for help but I could hear I had small rigety movements like jerking but that was the only time it happened.
Every blackout I have had I feel odd walk drunk get lightheaded loose vision speach and movement then after I come back around quickly and I'm fine.
Other symptoms drinking over 3 liters of fluids unless I get a bug then it reaches 6 - 8 litres of fluid a day the toilets is my best friend.
Also quezy stomach feel sick and vomit half of the time, shaky inside and shaky hand in spells, if I'm cold I'm bone chilled and shake with shivers, if I'm hot my skin is clamy and I swelter , migraine have been reduced .... Only because of mess but I still have a permanant headache that feels like pressure pushing on my head with sharp pains and throbbing on top of that palpatations irregular heart beat too fast and asthma I have confusion, disorientation blured vision on and off pins and needles in hands and feet and I wake up with no arms.... Can't feel them completely dead.
At the same time I keep getting trapped never in my back on the right hand side of spine. I already have a damaged coxic.
Oh and pains in ribs 3 or 4 years ago they said I have chostochondritis my ribs still stick out.
And I only have one kidney
I can't have beteablockers as it triggers an asthma attack which it did on wi 3 of taking them.
I seen a cardiologist had two visits other than a Hilton monitor did nothing he released me to a neurologist which I see tomorrow
my doctor thinks the blackouts are Syncopy and he also thinks I'm having seizures as one one of my attacks I couldn't write property couldn't hold the pen my head bowed forwards and left I had aura and few hours after it happened I looked at my notes ... It looked like a baby had written it.
My partner doesn't understand I've no one to talk to and I've been off work now for five weeks doctors orders ... Oh and they have told me no driving
I'm falling apart....... Help
I too have this problem I black out I have had aura and have unusual spells of talking rubbish it makes sence to me but everyone else doesn't understand what I am saying.
Also had just one attack where I felt odd went dizzy lightheaded lost vision movement and speach.... I could shout for help but I could hear I had small rigety movements like jerking but that was the only time it happened.
Every blackout I have had I feel odd walk drunk get lightheaded loose vision speach and movement then after I come back around quickly and I'm fine.
Other symptoms drinking over 3 liters of fluids unless I get a bug then it reaches 6 - 8 litres of fluid a day the toilets is my best friend.
Also quezy stomach feel sick and vomit half of the time, shaky inside and shaky hand in spells, if I'm cold I'm bone chilled and shake with shivers, if I'm hot my skin is clamy and I swelter , migraine have been reduced .... Only because of mess but I still have a permanant headache that feels like pressure pushing on my head with sharp pains and throbbing on top of that palpatations irregular heart beat too fast and asthma I have confusion, disorientation blured vision on and off pins and needles in hands and feet and I wake up with no arms.... Can't feel them completely dead.
At the same time I keep getting trapped never in my back on the right hand side of spine. I already have a damaged coxic.
Oh and pains in ribs 3 or 4 years ago they said I have chostochondritis my ribs still stick out.
And I only have one kidney
I can't have beteablockers as it triggers an asthma attack which it did on wi 3 of taking them.
I seen a cardiologist had two visits other than a Hilton monitor did nothing he released me to a neurologist which I see tomorrow
my doctor thinks the blackouts are Syncopy and he also thinks I'm having seizures as one one of my attacks I couldn't write property couldn't hold the pen my head bowed forwards and left I had aura and few hours after it happened I looked at my notes ... It looked like a baby had written it.
My partner doesn't understand I've no one to talk to and I've been off work now for five weeks doctors orders ... Oh and they have told me no driving
I'm falling apart....... Help
Best Answer
I sure wouldn't feel comfortable waiting if I were in your shoes. I'd probably going to get emergent care. If they sent me home with the really bad symptoms instead of admitting me and trying to figure out how the could help me get stabilized, I'd be calling regularly to see if I could get my appointments moved out (ie- did they get any cancellations where I could get a sooner appointment and tell them how bad off I was).
So you do have an EEG (electroencephalograph) ordered I take it, as that measures the brain waves while you sleep (guess you call it an egg head cap there)? I'm glad they ordered that and the abdominal scan! Did they not check your cortisol or electrolytes (ie- sodium, potassium, etc.)?
So you do have an EEG (electroencephalograph) ordered I take it, as that measures the brain waves while you sleep (guess you call it an egg head cap there)? I'm glad they ordered that and the abdominal scan! Did they not check your cortisol or electrolytes (ie- sodium, potassium, etc.)?
Ummmm ok the Endocrinologist the doctor did say he might refer me to after the abdominal scan an adrenaline gland has been checked this is due to water consumption, urine colour an sweetness and the one kidney issue
you have all been pointing in the right direction its just the long wait for doctors to move.... I have looked at Di and its the closest so far that I've come across.
And I now think that on the one occasion that I had a suspected seizure it was due to re occuring black out and low enoughblood pressure and Di all at the same time I also think I had picked up a bug I don't think my body could take anymore and i had the seizure.
Appointments waiting for scan on Stomache and egg head cap to monitor brain waves I am back at docs in two wk
you have all been pointing in the right direction its just the long wait for doctors to move.... I have looked at Di and its the closest so far that I've come across.
And I now think that on the one occasion that I had a suspected seizure it was due to re occuring black out and low enoughblood pressure and Di all at the same time I also think I had picked up a bug I don't think my body could take anymore and i had the seizure.
Appointments waiting for scan on Stomache and egg head cap to monitor brain waves I am back at docs in two wk
In diabetes insipidus, my understanding is a person can urinate copious amounts of fluid even during a test when they are withholding water from themselves. The abdominal scan will picture her one kidney along with all her abdominal organs.
Kjo22 is drinking far too much fluid, and I imagine her electrolytes have been thrown off balance- very serious. I hope she has a nephrologist given she has one kidney and that he/she is aware of the situation right now, including dark urine despite drinking way too much. Is it a liver problem, is it old blood in the urine, infection, stone in the bile duct, etc.? Way too many unknowns here. The abdominal scan hopefully would pick up if there's a stone in the bile duct.
The doctors need to know how much she's drinking if they haven't been made aware. I wonder if they've checked her electrolytes?
They may be suspecting Addison's disease with the low blood pressure/adrenal angle, but did they order lab tests of cortisol & aldosterone as a part of their adrenal gland check? If the cortisol is too low, definitely an endocrinologist should be in the picture. I still can't tell if the doctor is insisting no diabetes mellitus?
When you mention brain MRI, Londres- if you are thinking in relation to a possible pituitary tumor/abnormality and testing from an endocrinologist proves hormonal abnormalities, there is a special dynamically done MRI of the pituitary gland, with and without contrast... done differently than a general brain MRI scan.
Kjo22 is drinking far too much fluid, and I imagine her electrolytes have been thrown off balance- very serious. I hope she has a nephrologist given she has one kidney and that he/she is aware of the situation right now, including dark urine despite drinking way too much. Is it a liver problem, is it old blood in the urine, infection, stone in the bile duct, etc.? Way too many unknowns here. The abdominal scan hopefully would pick up if there's a stone in the bile duct.
The doctors need to know how much she's drinking if they haven't been made aware. I wonder if they've checked her electrolytes?
They may be suspecting Addison's disease with the low blood pressure/adrenal angle, but did they order lab tests of cortisol & aldosterone as a part of their adrenal gland check? If the cortisol is too low, definitely an endocrinologist should be in the picture. I still can't tell if the doctor is insisting no diabetes mellitus?
When you mention brain MRI, Londres- if you are thinking in relation to a possible pituitary tumor/abnormality and testing from an endocrinologist proves hormonal abnormalities, there is a special dynamically done MRI of the pituitary gland, with and without contrast... done differently than a general brain MRI scan.
On the blood sugar, how does that number translate when it comes to milligrams per deciliter, which has a normal fasting range of 70-100 according to one website?
Did you talk to the doctor about the amount of fluid you are drinking? It's EXTREMELY important.
Did you talk to the doctor about the amount of fluid you are drinking? It's EXTREMELY important.
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Getting a copy of your medical records is a great idea! If you can organize them in a folder, they can be pretty easy to lay your hands on when you are planning to visit a doctor... you can have them at your fingertips anywhere you go. You'll want to make sure if they look at them you get your copies back so you don't have to start over in getting more copies, which I imagine might cost some money?
If you don't have one already, please buy a blood pressure monitor from the store. The instructions on them are quite simple and you can learn if you are having high blood pressure readings frequently or not at home that way. Hypertension is definitely something to watch for if you have a lowered glomerular filtration rate (GFR) with your one kidney. Also, if you do, avoiding NSAIDs such as ibuprofen I believe is generally advised too (have a sibling with two kidneys, but one is congenitally defective)- you probably already know that about NSAIDs.
There is a way you can do the "poor man's tilt table" test at home. Use a blood pressure cuff that also takes your pulse. Omron is generally a good brand if you can get one of those.
Take your pulse or have someone do it that knows how- that's in case the monitor gets the pulse wrong (sometimes they seem better for the blood pressure than the pulse reading). Lay down for about ten minutes. Take your blood pressure and pulse with the monitor & then take your pulse in your wrist. Then stand up. Wait a full minute and take your pulse, etc. again. If your pulse is more than 30 beats a minute faster standing than it is when you are lying down, you might even remain standing and take it again after you've been standing five minutes. Record the numbers and show them to your doctor you and ask if you could be referred to an electrophysiologist for a REAL tilt table test. Another test that might be done to confirm P.O.T.S. is a standing plasma norepinephrine test.
If you learn you have any form of dysautonomia, including if you have P.O.T.S., as I do, feel free to join the dysautonomia forum here on medhelp and ask questions! Here's a link:
http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266 ;