Very scared...need help

[shirl690]

Two weeks ago I went to the ER with severe pain in  my side. They ultrasounded me and the doctor said I had an ovarian cyst that must be 15 millimeters because they had written centimeters and that would be too big. I went home expecting my cyst to be about 2 inches as she told me.  I made a gyn appt. after many years as I am 55, and had a hysterechtomy 19 years ago.  He read the report and said it was 15 centimeters. Then he did his own ultrasound and it is now 19 cm.  He referred me to another doctor STAT because he said it grew 4 cm. in 2 weeks. I am an extremely large woman and have been feeling sick and nauseated and recently found out my hemoglobin was down to 10.  I am assuming they have to do surgery and not laparoscopically.  What should I expect?  What are the chances it could be cancerous? How long is the recovery?  Could this explain a 15 pound weight gain in one month? Please help if you can.

[walkerwl]

Hi there,

I was diagnosed with a 10cm complex mass at the end of July and I had it removed on August 4th.  My mass was found malignant on the or table and my doc called my husband to ask him what we wanted to do.  Prior to surgery, we agreed if there was any issues to go ahead and do the total hysterectomy.  When I woke up after surgery, my husband told me what had happened and I was ok with it.  My pathology report came back benign for all my other parts and the mass was low-potential malignancy.

I am now 4 weeks post-op and feel so much better now that the other pain is gone (back and sharp shooting down my thigh).  I am still recovering with pain in my incision, but I just take it one day at a time.  

I never worried during the entire time from diagnosis to surgery.  Take a FROG (Fully Rely on God) with you and you will be just fine.  Ask God to bring peace to your situation.  Be your own advocate and do as much research as possible.  

Good luck to you and let us know what happens.

God Bless!

[ellem8888]

Hello shirl I can feel your anxiety Please please Try to "go with the flow" for a while Pain is a terrible burden But better than the alternative. Keep your spirits up as high as you can and Yesterday is history,Tomorrow a mystery and today is a present. Warm thoughts to youn Shirl Ellem8888

[wolftrak]

Hi Shirl, have they scheduled surgery yet?  I had similar symptoms and illness for 5 months now.  I had to wait 4 months to see the gynocologist who discovered a large mass near my left ovary that was missed in the ultrasound months ago.  Now I have to wait another month for an MRI and who knows how long after that to get surgery.  I hope things happen much more quickly for you as I can empathize that the waiting is really, REALLY hard.  We can all empathize on that.  Please keep us posted on your results.  I find so many people post when they are frightened but then do not update, probably because they received good news and are relieved and no longer feel the need for support.  But it is the good news we really need to hear.  Take care Shirl and keep your spirits up, think positive.  Words I tell myself everyday.  

[MandiNKel]

Hi Shirl
I'm 33 and was diagnosed on th 3/8 with a 22 x 19 x 12cm cyst, at my first appointment with the gyn was told my only option was full open surgery I've never had any form of surgery. I have now developed hydronephrosis due to the size of the cyst. When I was first diagnosed I measured my tummy just so I could keep an eye on it and in a month I have expanded 4in.
Just playing the waiting game now got my next appointment on 9th.

[shirl690]

Thanks so much for answering...I was 36 when I had my hysterechtomy so they decided to leave my ovaries in, a decision I wish I had made differently now,  I keep reading and there are very few with cysts my size.  I am in so much pain, the darvocet really isn't helping much.  I am so scared.  I remember the pain from the hysto and have had several surgeries including a knee replacement and am just tired of all the pain.  I weigh 345 pounds so mobility is already a huge issue.  A few months ago I had gained 15 pounds in a month and my regular physician just assumed I ate it that high.  I didn't think so. Anyway, I just want to get rid of this beast, but the big CA is constantly on my mind.  I just called my doctor to see if they did a CA125 although I'm not sure they will give me the results over the phone anyway.  I've never been this scared...

[ellem8888]

Hello Shirl, Hope this eases your anxiety. I have a 7cm dermoid cyst and have been waiting for MRI scan before hysterectomy. The doc told me it is rare for dermoid cysts to be cancerous, but they cannot be 100% sure until they see inside. I was told 7cm is too big for laparoscopy So I think you are right to expect "full" surgery. Did you not have ovaries removed with hysterectomy?    Join the club of trying not to worry and the waiting game Take care Ellem