Yes i have tried birth control and i have a family history of uterine cancer. Most of my periods are spoting and brown . They used to be very heavy
The women I have spoken with were not forthcoming about the effects of their hysterectomies until I shared my experiences. And I really should have realized that my observations were telling in and of themselves (such as the changes to their figures and other issues).
Maybe I misunderstood your comment about uterine cancer. Are you saying your history of ovarian cysts puts you at risk for uterine cancer? Do you have Polycystic Ovary Syndrome (PCOS) and miss a lot of periods? Other than that, I have not heard of ovarian cysts increasing risk of uterine cancer (or ovarian cancer). Have you tried birth control pills to try to prevent the cysts and regulate your cycles?
I have had 4 surgeries for endometriosis. I have never herd of all those problems. None of my family ir family friends have had problems. I'm considering getting rid of my uterus mainly because I have a very high chance of uterine cancer my right ovary because I have had so many cysts on my right ovary that its not working properly anymore and even a two cm cyst cause me a lot of pain.
I don't know if you realize that hysterectomy is not a cure for endometriosis. Since endo implants can be found throughout the pelvis, you may very well be left with pain or get only temporary relief after your organs are removed. And then you are left with the pain as well as the adverse effects of hysterectomy.
Removal of any part of the "reproductive" system (which is actually for much more than reproduction) can disrupt hormones and cause an early menopause which may be as severe as surgical menopause. There is a study that says there is about a 40% risk of ovarian failure after hysterectomy. Another study says that the risk of ovarian failure is greater if one ovary is removed at the time of hysterectomy.
Intact women's ovaries produce hormones into her 80's for optimal health and well-being. Ovary removal or failure is associated with many increased health risks and symptoms that reduce quality of life. You can find a number of studies by searching the web for "bilateral oophorectomy long-term health."
The uterus also has LIFE LONG functions - anatomical, skeletal, hormonal, and sexual even though women are led to believe that it is disposable after childbearing is complete.
I had a hysterectomy 9 years ago at age 49. It has shattered my world in every way. I was horrified how quickly I aged in just 4 months after surgery. I lost over half my hair (and it continues to shed), it grayed at the temples, and I lost lots of skin collagen, subcutaneous fat, and muscle mass.
The figure changes have also been devastating. They have to cut four sets of ligaments to remove the uterus. That destroys pelvic integrity causing the spine to collapse / compress and the rib cage to fall onto the hip bones. That is why hysterectomy causes a "Buddha" belly and the loss of the curve in the lower back. These anatomical / skeletal changes cause chronic back, hip, and rib cage problems and pain. Bladder and bowel function can also be affected since they are separated and held in place by the uterus. My bowels have been "messed up" since surgery.
Has your endometriosis diagnosis been confirmed with exploratory surgery and biopsy? Have you had (or considered having) the endo excised by an endometriosis specialist? I know tubals can also cause problems especially if they used coils or clips since those can migrate out of the tubes and cause pain.
I wish you luck in getting treatment that resolves your pain but doesn't cause other problems!