Leg pain

[Internal39501]

Vit D 25 Hydrody D2 = <4.0/ D3 = 34 - vit d 25 hydroxy = 34 - The reference ranges seem to be all over the chart.....what would be a NORMAL range for these test!!! I have CONSTANT lower leg pain....restless at night is NOW happending during the day - when sitting or lying down - not when standing - its like I have many many little charlie horses going on all at one.in BOTH LEGS....I have lower back pelvic injuries for '94 being hit by car....but things are gettng WORSE....I dont  understand the Vit D levels on my test....I have HORRIBLE chocolate cravings ......I do take .5 mgs of klonopene at night for leggs - but this is OUT OF HAND and I dont know what kind of Dr to see....My Internal Md dr just seems to thing I should "learn tl live with it"  I have had some nerve blks no help - I have nad all kinds of nerve test on my legs - ok...what I dont understand is what kind of test measures the "spasms" in  the legs while they are happening.....?????? I know the nerves are getting their impulses to my feet from the knee - NO KNEE PAIN - but this CONSTANT pain is getting beyond my ability to cope!!!!!!!!!!!!!!!!!!!!!!!!!!!   A CPK test was done - but no break down  of BB#1 - MB#2 and MM#3 - I just got a reading of 141.....how does that result tell if that inflamination if any is in the leg - Is this just and AVEREAGE of all three - brain heart muscles.....seems I should have had a MM#3 reading for MUSCLES?????  lots of /'s I hope someone can give me some answers or at least questions to ask my DR!!!

[bastet56]

I am willing to bet you have spinal problems.Go see a spinal specialist and start there. If they cannot help you go to a pain management specialist.

[BOK2Bjan]

Welcome,
I want you to know that I empathize with your frustration.  I think it is one of the hardest things to "feel".  There are many things that can cause the "restless leg" feeling, (including narcotic withdrawal), RLS, MS etc.  But the symptoms you describe don't sound like that.  You said "little charlie horses", so I assume the muscles are actually becoming hard due to flexing - in other words - they are actually spasm-ing?  RLS I'm sure can feel different in different people, but the feeling I've had with it is the need to flex the muscles - as though they have a toxin in them and you need to use the muscles to relieve it.  (I had RLS years ago before I had MS)  If yours are contracting on their own - that's different.  Did your doctor measure potassium and calcium?  An imbalance in them can cause muscle cramps.  The D is normal - it needs to be above 30, although higher is better.  And the CPK is normal so I agree totally with the previous posts on that.  

If your doctor did D and CPK, I imagine he did potassium and calcium, since they are in normal chem panels.  SO - a neurologist would be the way to go if you continue having problems.  They can measure your muscle contractions in an office setting.  If it's occurring that often, it would no doubt happen while in the office.  Neurological problems are outside the realm of most PCPs experience.  At least complex problems.  I had ms at least 5 years before dx and I'd been to neurologists!  It is just that my symptoms were thought to be explained by my other dx of Systemic Sclerosis and spinal stenosis.

I hope you get relief as well as answers.  I wish you well.

Blessings, Jan

[Tuckamore]

Hello Internal,

Welcome to the Pain Management Forum. I am glad that you found us but sorry to hear about your leg pain.

I agree with Sande that you should consider a DX of Restless Leg Syndrome. I can be painful and annoying. You also need a physician that will listen to you and respond to your questions.

A bit about your test results. Each lab will often have a different range of "normal." You can and should ask for a copy of your results along with a written interpretation. A CPK is not usually broken down unless there is an elevation. In your case their is not an elevation. I'm sure you understand that elevated CPK levels can indicate death of a muscle or muscle injury or muscle stress  When I had life threatening injuries following a MVA my CPK was extremely elevated for some time, my heart and brain were fine but I suffered extensive muscle and internal organ injuries.    

Again too suggest that you consider seeking out another PCP. It sounds like your is not listening or teaching, he/she should do both. There are many physicians out there. I have found that D.O.'s (Doctor of Osteopathy) are extremely good with structural issues. You may want to see if one practices at your local clinics.

Good luck to you. Please let us know how you are doing.
Take Care, Tuck

[sandee1818]

Have you asked your doctor about restless leg syndrome? ( RLS)
it sure sounds like this could be the problem also you could have what is called
obturator neuropathy.
Sounds like you need a new doctor that will listen to you. We all know our body better than anyone else and the doctor should be listening and ordering the test needed to find the problem.