Aa
Still confused
I went to my PCP on friday and he told me that the urine drug test that he did the other day on me also came up NEGATIVE. I dont understand this. Im taking the pain pills that he (my PCP) gave me. Vicodin10/325 4 times a day. 6 hours apart, the flexeril 3 times a day and the vistaril, 3 times a day. My PCP is stumpped and so am I . I also went to a chiropractor on friday and he did a exam on me and told me that my RSD now spread into my left sholder and arm. So not only is it in my right leg and foot I now have it in my left sholder and arm. I have NO PM dr cause he refuses to see me. I dont know what to do. The paper work that my ExPMdr gave me when I picked up my records on friday stated that I could be seen there until I was able to find anouther dr. But when I told them I wanted to be seen they refused to give me an appointment. I also told my ExPMdr that I wanted something for withdrawls on friday and AGAIN he said to me ,"your not going threw withdrawls cause your tests came back NEGATIVE". I really think its f*cked up because my PCP even said that what Im going threw is withdrawls. Like I said my PCP is stumpped on why my test came back negative he knows that I take my pills. He even talked to my ExPM dr and that didnt even work. Im going to have to goto my PCP on monday and show him all the paperwork that my expmdr gave me cause so much of its untrue. Im in sooo much pain and I cant get anyone to help me. I called anouther PMdr and he refuses to see me cause I was on Methadone for the pain and Im going threw withdrawls from it. Im going to end this now Im in too much pain to be sitting here.
Thank you all for listening to me.
Again is anyone here from or near SULLIVAN COUNTY. IN NY STATE???????
Thank you all for listening to me.
Again is anyone here from or near SULLIVAN COUNTY. IN NY STATE???????
They do do another test,they check your Doctor's and your pharmacies in all surrounding States,and do a check in all counties around you .It is called a Kasper report:What is KASPER? The Kentucky All Schedule Prescription Electronic Reporting System (KASPER) tracks controlled substance prescriptions dispensed within the state. A KASPER report shows all scheduled prescriptions for an individual over a specified time period, the prescriber and the dispenser. Enhanced KASPER (eKASPER) provides Web-based access to KASPER data.
KASPER is a reporting system designed to be:
■A source of information for practitioners and pharmacists.
■An investigative tool for law enforcement.
KASPER is a reporting system designed to be:
■A source of information for practitioners and pharmacists.
■An investigative tool for law enforcement.
They do do another test,they check your Doctor's and your pharmacies in all surrounding States,and do a check in all counties around you .It is called a Kasper report:What is KASPER? The Kentucky All Schedule Prescription Electronic Reporting System (KASPER) tracks controlled substance prescriptions dispensed within the state. A KASPER report shows all scheduled prescriptions for an individual over a specified time period, the prescriber and the dispenser. Enhanced KASPER (eKASPER) provides Web-based access to KASPER data.
KASPER is a reporting system designed to be:
■A source of information for practitioners and pharmacists.
■An investigative tool for law enforcement.
KASPER is a reporting system designed to be:
■A source of information for practitioners and pharmacists.
■An investigative tool for law enforcement.
I'm soo happy they moved your app up!!
Try not to stress too much about what will happen. Just know the DR may ask you about what happened at your old PM and be prepared to answer and explain.
But the fact that he will see your records doesnt mean he wont treat you. Just take it as it comes and know that we are all here for you and will be crossing our fingers that this will work out.
I'm glad no one in your fam could be switching our your pills. I've heard of that happening and it must be awful to find out someone was doing that to you. Your mother must have been really upset coolio. I hope once she realized it never happened again!
TMA
Try not to stress too much about what will happen. Just know the DR may ask you about what happened at your old PM and be prepared to answer and explain.
But the fact that he will see your records doesnt mean he wont treat you. Just take it as it comes and know that we are all here for you and will be crossing our fingers that this will work out.
I'm glad no one in your fam could be switching our your pills. I've heard of that happening and it must be awful to find out someone was doing that to you. Your mother must have been really upset coolio. I hope once she realized it never happened again!
TMA
With having RSD you can NEVER give up. Im trying not to Im fighting with every last breath that I have. I just worte in anouther post on here. My Appointment isent in October anymore they moved me up seeing that im high priority to this thursday. Im soo scared though. He wants all my records from all my drs. I just hope that this dr isent like the other few that I have gone to in the past month. I will ask him to take a blood test to check for my meds they should still show in there I was on them for so long. Im still going threw withdrawls but im hanging in there. My PCP put me on a higher dose of vicodin the other day and he still has me on the withdrawl meds. All I know is that I really want this pain to go away.. I have had the sever pain in my rt leg and foot but as I have said is now in my sholder, but also im noticing that I have this strange head twitch that has been going on for about alittle over a week. Im hanging in there though and im trying to look on the bright side. I have to or Im going to go crazy. Im just really glad that you all have been here for me. Oh and I did send that letter to my old PM dr the one that is causing me all this greef but as I thought he didnt answer me back yet. you all told me not to really think that he would. Im not giving up the fight with him though. Im still seaching for reasons, and I know that Im right in this matter and Im going to continue to fight. But Im not letting what he did to me bring me down anymore. Its not fair to me, my husband or my children. Im keeping my head up and Im trying whatever I can to think positive and stay calm. I just really dont want to get my hopes up about this new dr and be pushed to the ground again. If you all know what I meen. My PCP didnt even know that this Dr that Im going to on Thursday was even around he must be new to the area. That might be a good thing. I HOPE.
OMG and as far as switching meds on me DAMN I would kill my family.. LOL.. It is a good point that you made about that though, but NO my kids are locked out of my meds and my hubby as he is doing now. Flips when I dont have my meds cause Im in too much pain for him. He really hates seeing me in pain. So he would never do that to me.
But really that was a good sugestion. But no they wouldnt do that to me. I would know even if they did cause I wont take anything(med wise) unless I look at it and know what it is. Like the other day my PCP put me on a new med, Ive been on it before but not in a while. I looked at it, it looked funny so I looked it up on drugs.com to make sure that I wasent givin something else from the pharmacy.. LMAOOOOO...
But AGAIN.. Thank you all for caring Im hanging in there. And THANK YOU ALL cause if it wasent for all of you I would NEVER have found a new dr. Nore would I have had the strenth to fight this for so long.
OMG and as far as switching meds on me DAMN I would kill my family.. LOL.. It is a good point that you made about that though, but NO my kids are locked out of my meds and my hubby as he is doing now. Flips when I dont have my meds cause Im in too much pain for him. He really hates seeing me in pain. So he would never do that to me.
But really that was a good sugestion. But no they wouldnt do that to me. I would know even if they did cause I wont take anything(med wise) unless I look at it and know what it is. Like the other day my PCP put me on a new med, Ive been on it before but not in a while. I looked at it, it looked funny so I looked it up on drugs.com to make sure that I wasent givin something else from the pharmacy.. LMAOOOOO...
But AGAIN.. Thank you all for caring Im hanging in there. And THANK YOU ALL cause if it wasent for all of you I would NEVER have found a new dr. Nore would I have had the strenth to fight this for so long.
Don't give up , You do have your PCP so be thankful for that. Are you still looking and your PCP can't refer you to anyone?
Hang in there tomorrows always better than today!
Wow! Why in the world would your Dad do such a thing??
I would notice because medications have a distinct taste and smell and so does aspirin. I have never heard of anyone doing this and I thought I had heard it all:)
Hang in there tomorrows always better than today!
Wow! Why in the world would your Dad do such a thing??
I would notice because medications have a distinct taste and smell and so does aspirin. I have never heard of anyone doing this and I thought I had heard it all:)
I wonder if someone at your house was taking the meds and replacing them with fakes. Then you thought you were taking your meds and you were not.....My step father did this to my mother.......She never knew until she went to give me a pill i asked for one....and they were asprin.....She never knew.....She also said i dont know why you want one of these perc 10/325 they dont do anything.....
nothing yet. Im still fighting. I went to my PCP yesturday cause the pain was threw the roof. He gave me a stronger vicodin and told me that I really need to find a pain dr. I was in so much pain yestureday I forgot to ask him if he would do a blood test to see if there is something wrong. I think that Im going to make a new appointment with my pcp for monday and tell him I want a blood test. Im hanging in there though. Im keeping my mind off the pain the best that I can. Im still on the meds for withdrawl cause my PCP dr says that Im still suffering from withdrawls.
I have read several articles on the subject and I too am interested in finding out why these happen. It seems to be becoming more and more common and there is no research I can find thats being done. I will keep looking and keep you posted.
Has anyone been able to find information on why Baby's drug screen would have come back negative? I have searched all my medical books as well as the internet and I can not find one article or comment that explains it. As a former medical professional I am very curious about this. Baby has your PCP been able to come up with an explanation? And how are you doing? I know that this sounds like a little thing but heat and rest (with a pain med) eases some of my pain. I'm assuming your PCP will support you until you can get into see the new PM Doc in October. I wish you well. And I hope October will be here sooner than you think. Hang in there. Tuck
I'm so happy you were able to find an app. Bummer its not till October. Bit at least there is now something to put down in the app book that may help you get back to the way things were.
You can always call them and tell them that you understand how book up they are and that there is nothing available but will they please just keep you in mind incase they are able to get you in early incase of a cancellation or what not.
You never know.
Defenitly keep looking, but this is good. And you sound much better about things. Sometimes its a little easier to cope knowing that there may be relief on the future.
Also make sure you start looking for someone to see like ACHILDOFGOD suggested. It can only do good things for how your feeling with the pain.
I'm so glad you at least have something. I will cross my fingers that your PM DR does read the letter and at the very least validates that he got it.
Maybe something good will come out of it. Just dont put too much expectation into it. I would hate to see you dissapointed if his reaction isnt a good one, which may happen.
Just know that you at least kept fighting this and that you have tried all you could to help convince him you didnt do anything wrong.
Please keep us up to date on how your search is going for a closer app and for a pain therapist. The more people you have on your side in this the better.
I hope your pain is letting you get some rest tonight and you wake up feeling good.
Do you have any plans for your week?
TMA
You can always call them and tell them that you understand how book up they are and that there is nothing available but will they please just keep you in mind incase they are able to get you in early incase of a cancellation or what not.
You never know.
Defenitly keep looking, but this is good. And you sound much better about things. Sometimes its a little easier to cope knowing that there may be relief on the future.
Also make sure you start looking for someone to see like ACHILDOFGOD suggested. It can only do good things for how your feeling with the pain.
I'm so glad you at least have something. I will cross my fingers that your PM DR does read the letter and at the very least validates that he got it.
Maybe something good will come out of it. Just dont put too much expectation into it. I would hate to see you dissapointed if his reaction isnt a good one, which may happen.
Just know that you at least kept fighting this and that you have tried all you could to help convince him you didnt do anything wrong.
Please keep us up to date on how your search is going for a closer app and for a pain therapist. The more people you have on your side in this the better.
I hope your pain is letting you get some rest tonight and you wake up feeling good.
Do you have any plans for your week?
TMA
Well I tryed to make a drs apointment..lol.. I called a PM dr that I really didnt even know existed cause he isent listed.. I just kept calling around until on said YES we are pm. I got an appointment, the only bad part about it is that they are booked right up until October. And even in my situation that was the earliest appointment that they could give me. Im still looking for one that can take me sooner. I sent out that letter that I wrote to my old PMdr today. I hope that he actually reads it and gets back to me on it. I dont know if any other pt of his ever wrote letters and faught to stay his PT. But im not giving up in this fight. I know that I didnt do anything wrong and Im going to continue to fight, for what is right. Like I told you all in past posts. Im not a pillpopper, as one dr called me.. LOL.. I dont even know that if he did take me back if I would even concider going back on the Methadone. The withdrawls are Horrid and I NEVER want to go threw this again. I know that it works really well for the pain and really never had a side affect from it. I just hate feeling like this. I want something to take the pain away.. I feel sometimes like a junkie looking for drugs. I dont like this feeling. I never want to have this feeling again. Well my daughter wants to get on the computer so Im gonna go for now, and try to relax. Hope you all had or are having a great day. Talk to you all soon...
And Again Thankyou all from the bottom of my heart...
And Again Thankyou all from the bottom of my heart...
how true our friends seem to be here on our computer but being isolated like i am it has been a blessing that I've found this forum and people just like me. I too have gone through alot of the same feelings of losing my life to chronic pain but like Tuckamore said we will find others things in life that will make us happy within our limitations and I agree but unfortunately we have to grieve the loss of the things that we loved before and can't do anymore before we can regroup and find other things that make us happy now within our life limitations. I just lost my mother on June 13th. I had the funeral for her last week. even though she was 84 and had alzheimers she was still my only mom and it's hard to think she won't be there anymore. I bring this up here because like you said this seems to be where I am finding alot of my support and today seemed to be the day I just needed to let you people know that I'm not only having physical pain today but also some pretty intense psychological pain of losing her. You know in a way, her dying has helped me to maybe focus a little more on the people around me and be grateful to those I love that are still here. I know with my pain sometimes I can be pretty selfish and take others for granted so today I'm devoting myself to others that need me for support. I'm glad you are considering counseling because it has helped me tremendously, I have been in counseling for awhile, dealing with my pain, my moms alzheiemers and now her death. Being isolated due to this chonic pain I think I would have gone completely nuts if not for my computer and my counseling every two weeks. I want to thank you all for being the support behind this computer screen and I will be ok just being able to talk it out, little by little
Babydm, you have no idea how much I understand feeling robbed of your dreams and what you have at a young age. The thought that my only way out of some of this pain is a hystorectomy, kills me. There are a few things in this life that are truely unfair and being robbed of your dreams is one of them, and losing them at a young age is worse.
There is a reason these things dont happen to everyone, and its because were the ones who can handle it. Being in pain everyday for what may be the rest of our lives takes so much strength and fighting to turn things back around. Not everyone is capable of that and you should be proud of yourself for being able to keep going.
Thats how I have to think of losing my ability to have children, not everyone can handle losing that ability before they get the chance. If I couldnt somehow handle that and make it through to the other end it wouldnt be happening.
Just know that you can get through this. The harder it is the brighter you become. And I swear I'm not just saying that. Its something I truely believe. I dont know how old your kids are but watching you fight through daily pain will let them know that they can fight through lifes ups and downs too and be okay. If I didnt see my parents fall and get back up I'm not sure I would know how to do that for myself.
I'm glad you feel like you have friends here, because you do. Were always here for you and you can always cry on our shoulders without being afraid to or of what well think.
TMA
There is a reason these things dont happen to everyone, and its because were the ones who can handle it. Being in pain everyday for what may be the rest of our lives takes so much strength and fighting to turn things back around. Not everyone is capable of that and you should be proud of yourself for being able to keep going.
Thats how I have to think of losing my ability to have children, not everyone can handle losing that ability before they get the chance. If I couldnt somehow handle that and make it through to the other end it wouldnt be happening.
Just know that you can get through this. The harder it is the brighter you become. And I swear I'm not just saying that. Its something I truely believe. I dont know how old your kids are but watching you fight through daily pain will let them know that they can fight through lifes ups and downs too and be okay. If I didnt see my parents fall and get back up I'm not sure I would know how to do that for myself.
I'm glad you feel like you have friends here, because you do. Were always here for you and you can always cry on our shoulders without being afraid to or of what well think.
TMA
It amazes me that I read these posts that could have been written by me. I was your age when my medical problems began. I know what you are going through. You will learn to live with your limitations and you will find things that make you happy again. They will just be different. And with time and teaching your family willl come to understand what you are experiencing.
You are entitled to cry and feel cheated but that will pass. As TMA said there are stages of this CP cycle that we go through and often we can bounce back and forth between stages. Just about the time I think I'm in the exceptance stage I "bounce" into the anger or denial. And part of what you are feeling maybe withdrawal. Are you having any physical symptoms?
I think you are going in the right direction. Make those calls and look for a new doc. Someone is out there that will listen and help you.
Tuck
You are entitled to cry and feel cheated but that will pass. As TMA said there are stages of this CP cycle that we go through and often we can bounce back and forth between stages. Just about the time I think I'm in the exceptance stage I "bounce" into the anger or denial. And part of what you are feeling maybe withdrawal. Are you having any physical symptoms?
I think you are going in the right direction. Make those calls and look for a new doc. Someone is out there that will listen and help you.
Tuck
right now Im willing to try anything. I am going to have to look into a counseler cause even though I have had RSD for 5 years it really seems to be hitting me the hardest now. I dont know if that is bacause I dont have the support of my PMdr, my medication, or just because its starting to spread and I see my life flashing before my eyes. It kills me not to be able to do the things that I used to do, and not being able to do things with my kids. Having the meds for 5 years and then being dropped off of them just like that I think also plays a big part of it, because with the meds I was atleast somewhat able to do more and more able to cope with the pain. I also know that being called a lyer about taking my meds, really hurt me too, I never lyed to my dr, or anyone else for the matter. So I guess that all of this is just hitting me all at once and I cant handle it. My children understand what im going threw and they are supportive of me as well as my husband is, but when I say im in too much pain to do something they get upset cause there is nothing that they can do for me. So I try to keep the fact that Im in all this pain bottled up inside just so they dont have to hear or see me crying. And its gotten worse now without having my pain management dr. I dont even hangout with friends anymore cause they all walked out of my life, cause Im not the same person that I used to be. I never thought that I would be 34 years old and disabled, not being able to support my family, living on ssi-ssd. I was never able to meet my dreams, and that really hurts. The little things in life that used to come easy are now big tasks, that take me awhile to do.
Are these feeling that Im feeling now comming out cause of going threw withdrawl? Or is it just that reality finally set in?? I wish that I could just wake up from this nightmare that Im living and be happy once again. Again thankyou all. you have been such a great help. I am going to go now and look up a few drs. and see about getting help one way or anouther. Im really glad that I can cry on all of your sholders, it meens alot to me. Like I told my husband. All my friends and people that understand me live in my computer..
Thanks again. talk to you all soon.
Are these feeling that Im feeling now comming out cause of going threw withdrawl? Or is it just that reality finally set in?? I wish that I could just wake up from this nightmare that Im living and be happy once again. Again thankyou all. you have been such a great help. I am going to go now and look up a few drs. and see about getting help one way or anouther. Im really glad that I can cry on all of your sholders, it meens alot to me. Like I told my husband. All my friends and people that understand me live in my computer..
Thanks again. talk to you all soon.
babydm, I dont think you upset anyone and your not bothering anyone either.. Thats what this community is here for.
I try to really stay away from words like "pitt party" because they tend to make yourself feel like your doing something wrong or are being selfish or ungrateful. And thats not true.
I think what many of us forget is that when we ger diagnosed with a chronic illness we go through a grieving process. The same one that happens when a loved one passes.
We go through denial and anger, begging and praying for it or the pain to go away, depression and finally acceptance.
But it can take years to reach acceptance. When you lose your way of functuning you get thrown back or stagnante in a cycle, and rightfully so. Its so hard to function in CP that the anger and depression praying and begging starts again.
Its normal and actually healthy. If you try to dent the feeling its going to take longer to come to terms with things.
Yes, alot of times a therapist to help us through this will help. But please dont feel that your pittying yourself in a way that is selfish or ungrateful. Losing functoning is a big deal. Sometimes we lose the life we once knew and naturally we are sad or mourn that. Its a normal reaction. And quite healthy as long as you dont sink so far in you cant get out and thats what a therapist is good for. I went through a time where I felt really angry and sad for what I was going through. I still have those days.
You dont have to be strong or feel like you have to act a certain way. Your allowed to feel whatever your feeling.
You can always get someone to talk to if you feel that it will benefit you. I am a huge supporter of therapy and they can help you through what your going through. Sometimes people go into therapy thinking it will just be a little while and end up staying for years because they love it so much..I know, loving therapy??? I swear it does happen!
But also know you can come here and talk to us, about anything.
TMA
I try to really stay away from words like "pitt party" because they tend to make yourself feel like your doing something wrong or are being selfish or ungrateful. And thats not true.
I think what many of us forget is that when we ger diagnosed with a chronic illness we go through a grieving process. The same one that happens when a loved one passes.
We go through denial and anger, begging and praying for it or the pain to go away, depression and finally acceptance.
But it can take years to reach acceptance. When you lose your way of functuning you get thrown back or stagnante in a cycle, and rightfully so. Its so hard to function in CP that the anger and depression praying and begging starts again.
Its normal and actually healthy. If you try to dent the feeling its going to take longer to come to terms with things.
Yes, alot of times a therapist to help us through this will help. But please dont feel that your pittying yourself in a way that is selfish or ungrateful. Losing functoning is a big deal. Sometimes we lose the life we once knew and naturally we are sad or mourn that. Its a normal reaction. And quite healthy as long as you dont sink so far in you cant get out and thats what a therapist is good for. I went through a time where I felt really angry and sad for what I was going through. I still have those days.
You dont have to be strong or feel like you have to act a certain way. Your allowed to feel whatever your feeling.
You can always get someone to talk to if you feel that it will benefit you. I am a huge supporter of therapy and they can help you through what your going through. Sometimes people go into therapy thinking it will just be a little while and end up staying for years because they love it so much..I know, loving therapy??? I swear it does happen!
But also know you can come here and talk to us, about anything.
TMA
You mentioned "you just need someone to talk to" and that's exactly what I've been saying in my previous postings to you about seeking counseling to help with your pain mangement, even just a support group, where you can talk. You have not commented that I've read about seeking out this addtional option so I don't know whether my comments to you have not been read or overlooked or maybe just not acknowleged as something that might work for you, but you just said you need someone to talk to so I'm resending my thoughts to you about counseling. Medication treats many things, but the body is made up of mental, physical, spiritual and pain meds just treats the physical. I found with my pain management that treating my mind is vital to keep my spirits up and it helped me put it into a different perspective that I do not overwhelm others around me anymore by constantly talking about it, (my family is very supportive but they get upset that they can't help me and after over 2 years of constantly hearing about it, they tend to turn me off for their own sanity, and then I don't feel that they care and then I get upset and cry, etc....and it's a never ending cycle) Also through counseling I have given myself permission that it's ok to take medication for my pain, without the stigma of others trying to make me feel guity about taking pills because the average person not with chronic pain does not understand that we must have our medication to survive and it has nothing to do with getting high. My psychiatrist has also shared with me that chronic pain after awhile becomes a part of your psyche or basic instincts, like food, and sleep etc... and you will do whatever you have to to get your meds to have some kind of normal life. anyway rather than repeat everything again please just go back and reread my comments if you're interested in my complete messages to you. I do find great solace in this forum and I also believe very strongly that everyone here posting comments is there to support you in your time of need. Thank you also for sharing with us from your heart. I unfortunately am sitting in a position of not knowing where my pain is coming from and so I have excessive worry about what's causing my pain along with the pain. My next option is the pain pump, but I haven't yet decided about that.I recently went through a trial of the nuerotransmittor device that didn't work and had spinal fluid leaking as a side effect and that was scary but I did come through it ok.If you have any faith at all you must believe things will be ok and you will come through this ok so try to be as postitive as you can through this whole thing and continue to share here as a support group, even though one on one is more extensive. I just hope I have helped you in some way, because it helps to take my mind off myself and my pain,
Im sry for bothering all of you. I was just looking into other groups here and found the one for nerology and I read a post there about RSD drs. Someone had posted a sight to find an RSD dr in your area sight. I went on it and the ONLY dr within 50 miles of me is the dr that refuses to see me ever again. www.raceagainstpain.com, thats the web sight that was posted there. Now I dont know what Im gonna do I cant drive 50 miles one way to go to a dr every other day. My rsd wont let me becideds the out ragious gas prices. I really dont know what im gonna do now.. Lets just say im ****ed.....
Im sry for my language I thought that I bleeped it out.. RSD is reflex sympatetic dystophy. If you look at this web sight it will tell you more about it.. http://www.rsdhope.org/ I am really sry for making you all upset with me. I know that you are all in pain too. Im just soo baffled by this drug test thing and then loosing my dr on top of it all is killing me. Yeah these other srs that I went to told me that Im getting worse but they really dont know anything about RSD and the only dr that really does refuses to see me. I infact wrote him a nice long letter explaining myself and all that has been going on. I wouldnt be fighting it if I was in the wrong. Do you guys know what I meen? Im not on here either for a pity party, I just really need someone to talk to about all of this. I also thought that someone here might know what could have happened with the drug test. I know that you all gave good ideas as to what could have happened, and some of you even said that its imposible to happen. Thats why Im fighting my dr cause it must be posible cause it happened to me.. I gave you all a list of all the meds that I was taking at the time of the drug test, hoping that maybe one of them could have been the cause of it being messed up. I just dont know where to find info on false negative drug tests. Just what to do to make them come up that way.. Im sry if I always sound like Im in a really bad mood, Im not Im just in alot of pain that will not quit. PLEASE FORGIVE ME..
Thank you very much:)
I am so flattered! I am so sorry your going thru such a terrible time. it is terrible that you have lost you voice and I am sure you husband feels lonely without it too.
Sorry it took me so long to get back to you. I know the feeling of your throat closing is very scary, there are a lot of muscles in that area and after a traumatic event like surgery it may take a little while to get better. It could also be scar tissue building up there but I don't think this is this case since you recently had your surgery. Don't be afraid I know that is easy to say but this is normal after surgery. I would advise if your breathing becomes too labored you can panic and make it worse so try to be as calm as you can and if it is worse you should definitely call 911!
The recovery rate of gaining your voice back is high, don't give up let the surgeon know your really anxious to get your voice back and ask him to give you a time table so you will have a goal to look to. I know it may seem that people don't want to talk to you but it could be that they fear it is hurting you to try and communicate back so they try and keep their conversation short. Let them know you want to talk and feel lonely because they probably don't even realize this they think they are helping you by keeping the conversation down, I speak from experience. I had a friend who went through losing her voice and I felt it would just upset her if I talked and she could not respond so I keep it very short. She told me the same thing you say , so let your friends and loved ones know.
I want you to know we are always here for you and here you do not need a voice, I think your a amazing women to go thru so much and still be so positive. We all have our pity parties so please do not feel bad it is just human nature to feel bad because we lose something that is precious to us even though it will return it still is a huge loss to us. I have my pity parties at least once a month, we should make a section just for that:)
Do you have any help with your husband? That concerns me that your recovering from surgery and going thru and difficult time and also taking care of him too. You must remember you have to take care of yourself too. There are places that will help you with this , if you will let me know I will help you find some assistance.
When our bodies go thru major changes our brains will adapt and try and make up for it in a sense, your throat feeling tight and pressured will in time get less and less noticeable and you will need to continue to see your Dr and he will help with this too.
Don't get discouraged I know being in pain all the time is no piece of cake but we have to help ourselves get past it the best way we can. If your pain meds are not working properly let your Dr know so he can adjust it. While you may never be pain free you can strive to be as pain free as possible.
I am doing some research on your voice loss and will get back to you soon as I can. My Father is down visiting so I have not been on as much as I usually am. I hope you will stay , the members here in the community are great and will offer you everything they can to help you. We are a big family here and always welcome new members with open arms so your not alone and if you need anything at all or if I can do anything to help you please let me know. I am so glad you found us and that we can now get to know you. I know it takes a toll on you caring for someone else and when your hurting too it can be very hard to deal with but just know we are here for you and support is very important.
I am so flattered! I am so sorry your going thru such a terrible time. it is terrible that you have lost you voice and I am sure you husband feels lonely without it too.
Sorry it took me so long to get back to you. I know the feeling of your throat closing is very scary, there are a lot of muscles in that area and after a traumatic event like surgery it may take a little while to get better. It could also be scar tissue building up there but I don't think this is this case since you recently had your surgery. Don't be afraid I know that is easy to say but this is normal after surgery. I would advise if your breathing becomes too labored you can panic and make it worse so try to be as calm as you can and if it is worse you should definitely call 911!
The recovery rate of gaining your voice back is high, don't give up let the surgeon know your really anxious to get your voice back and ask him to give you a time table so you will have a goal to look to. I know it may seem that people don't want to talk to you but it could be that they fear it is hurting you to try and communicate back so they try and keep their conversation short. Let them know you want to talk and feel lonely because they probably don't even realize this they think they are helping you by keeping the conversation down, I speak from experience. I had a friend who went through losing her voice and I felt it would just upset her if I talked and she could not respond so I keep it very short. She told me the same thing you say , so let your friends and loved ones know.
I want you to know we are always here for you and here you do not need a voice, I think your a amazing women to go thru so much and still be so positive. We all have our pity parties so please do not feel bad it is just human nature to feel bad because we lose something that is precious to us even though it will return it still is a huge loss to us. I have my pity parties at least once a month, we should make a section just for that:)
Do you have any help with your husband? That concerns me that your recovering from surgery and going thru and difficult time and also taking care of him too. You must remember you have to take care of yourself too. There are places that will help you with this , if you will let me know I will help you find some assistance.
When our bodies go thru major changes our brains will adapt and try and make up for it in a sense, your throat feeling tight and pressured will in time get less and less noticeable and you will need to continue to see your Dr and he will help with this too.
Don't get discouraged I know being in pain all the time is no piece of cake but we have to help ourselves get past it the best way we can. If your pain meds are not working properly let your Dr know so he can adjust it. While you may never be pain free you can strive to be as pain free as possible.
I am doing some research on your voice loss and will get back to you soon as I can. My Father is down visiting so I have not been on as much as I usually am. I hope you will stay , the members here in the community are great and will offer you everything they can to help you. We are a big family here and always welcome new members with open arms so your not alone and if you need anything at all or if I can do anything to help you please let me know. I am so glad you found us and that we can now get to know you. I know it takes a toll on you caring for someone else and when your hurting too it can be very hard to deal with but just know we are here for you and support is very important.
I just wanted to comment that I find your words very informative and supportive. The fact that you research for others while going through your own pain is very commendable. I only joined a couple of days ago. I had an anterior cervical fusion c5-6,c6-7 on march 19th. Also have herniated discs lumbar area with nerve damage and neuropathy. I am in constant pain and now added to that I have no voice since my surgery. I am getting that checked out now. Have appt. with ENT and had a pulmonary function test Thurs as it feels as though my throat is closing up and cannot breathe. Much of what you have said to others has been very comforting and I just wanted to tell you that. I have a very supportive husband who is totally disabled (heart condition) and I never thought anything would happen to me. I try not to stress my husband out so I thought joining a support group would be a good thing for me to do. Not being able to speak has proven to be very lonely. Cannot pick up a phone and call my son or father. Seems like no one wants to talk to me because I can't talk. (i do have the ability to whisper but that is about it). I guess today I am having somewhat of a pity party. Does everyone go through that sometimes? I try to be strong but sometimes it is very hard. Anyway I apologize for getting off track and rambling. I just wanted to say having someone like you to be supportive as you have with so many others would be great. Thank you for taking your time to be of such help to all. At least that is what I have seen from your posts.
Your comment that there is always tomorrow and with it new hope gives me hope.
Also Babydm29, I do hope some how you can find a dr. who is understanding and can help. Being in pain is an awful thing. You may have mentioned it but have you gone to the ER to be treated? Also what is RSD? My heart goes out to you and hope and pray you will find comfort.
Your comment that there is always tomorrow and with it new hope gives me hope.
Also Babydm29, I do hope some how you can find a dr. who is understanding and can help. Being in pain is an awful thing. You may have mentioned it but have you gone to the ER to be treated? Also what is RSD? My heart goes out to you and hope and pray you will find comfort.
Babydm29,
First of all I must ask you to please watch your language, I know your in pain but it just really isn't appropriate. It does bleep it out even if you don't but the insinuation is still there and it does offend some members.
I am really sorry this is happening to you and that your in so much pain. There have been several members who have researched things to help and we all have done everything we can think of to help you. I just hope you get the help you need soon and the 21st is not that far off when you think of all the time you have spent in pain and it is a goal or at least hope you can hang on to along with the support the members have given you here and we will continue to. I always make a point to thank everyone here for the help and support they give me.
Just keep in mind that there is always tomorrow and with it new hope.
First of all I must ask you to please watch your language, I know your in pain but it just really isn't appropriate. It does bleep it out even if you don't but the insinuation is still there and it does offend some members.
I am really sorry this is happening to you and that your in so much pain. There have been several members who have researched things to help and we all have done everything we can think of to help you. I just hope you get the help you need soon and the 21st is not that far off when you think of all the time you have spent in pain and it is a goal or at least hope you can hang on to along with the support the members have given you here and we will continue to. I always make a point to thank everyone here for the help and support they give me.
Just keep in mind that there is always tomorrow and with it new hope.
Hi babydm
I hope you havent gotten the feeling that anyone is saying your a pill popper. I think everyone is just amazed that you have had three UA's that have come out negative because it could happen to any one of us, and were all sorry it's happening to you.
I think everyome one of us fears losing our way of functioning or has feared it at some point.
I always thought Sullivan County was pretty big. I'm surprised more DR dont know much about RSD. Thats a terrible feeling to have something that no one around you understands. Belive me, I know. My bladder condition is one that most DR's have no idea how to treat or even understand. It kinda makes me feel like some freak that no one knows what to do with when I have to tell someone I have Interstitial Cystitis.
I'm happy you have your PCP on your side. Everyone should have at least one DR who is willing to go to bat for them.
I wish the way he felt about finding a reason for the failed UA'a was how he felt about finding a DR to treat you or treat you himself.
I cant belive these DR's are telling you that your RSD is getting worse but wont treat your pain. That is absolutly awful to say that and then send you out the door.
But I do agree that they must be seeing something in your chart or from somewhere that is conserning them.
I think these days even the mention or small insinuation of something in a chart can send a DR running.
I hope your feeling better tonight and were always here for you no matter what.
TMA
I hope you havent gotten the feeling that anyone is saying your a pill popper. I think everyone is just amazed that you have had three UA's that have come out negative because it could happen to any one of us, and were all sorry it's happening to you.
I think everyome one of us fears losing our way of functioning or has feared it at some point.
I always thought Sullivan County was pretty big. I'm surprised more DR dont know much about RSD. Thats a terrible feeling to have something that no one around you understands. Belive me, I know. My bladder condition is one that most DR's have no idea how to treat or even understand. It kinda makes me feel like some freak that no one knows what to do with when I have to tell someone I have Interstitial Cystitis.
I'm happy you have your PCP on your side. Everyone should have at least one DR who is willing to go to bat for them.
I wish the way he felt about finding a reason for the failed UA'a was how he felt about finding a DR to treat you or treat you himself.
I cant belive these DR's are telling you that your RSD is getting worse but wont treat your pain. That is absolutly awful to say that and then send you out the door.
But I do agree that they must be seeing something in your chart or from somewhere that is conserning them.
I think these days even the mention or small insinuation of something in a chart can send a DR running.
I hope your feeling better tonight and were always here for you no matter what.
TMA
Listen I think all of you have great ideas.. Just that none of them are working. My PCP is on my side, He is trying to figure out why my tests came up negative. He told me to check into this one dr but I cant get an appointment until the 21st... I dont know if he is going to help me or not but I dont know what else to do... Im trying to hang in there and its really hard. Seeing this pain is threw the roof... I cant take it anymore. Im not a pill popper I hate taking pills But when they work for the pain s**t I take them.. I feel like everything is falling apart. I lost a dr that I had for 5 years due to a F**ked up drug test, And now Im with out one. Here where I am you cant get pain meds from just any dr. And the ones that will give it to you are very few and far between..I dont know if any of you in this group have RSD, but here where I am from most of the drs dont know anything about it. The only one that really knew anything about it was my PM dr (the one that threw me out). I goto the hospital and tell them that I have RSD they look at me like I have 10 heads... Thats anouther reason Im having sooo much trouble finding a new PM dr.
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