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Want to take norco not oxycodone.but denied

I dont understand why I'm  not taken seriously a out asking for norco. Ive only been at this place since February, they should want a patient who does not want oxycodone. I've had years of physical therapy. 6 nerve blocks. 1 did give my calves relief for a month. 16 grand each. I had them done by a neurosurgeon who out me to sleep. This place wont. Im going to write a letter today explaining that I've  never had relief from oxycodone.  Not unless i take 3 plus 3 valium at a tim for my lifelong headaches. I asked for occipital shots, which end up being 2 huge lumps of steroid at the base of my scull at the ebd of my neck. My hips throb a d feel like they are in labor but both hip surgeons I've seen say its from my spine. I know my calf pain is from my spine due to that one time nerve block relief. Im finding information that its being found that reducing everyone to 3 oxycodonea day just should not appky to everyone. I dont k ow if its an Alaska thing only or how to find out. They even started cutting my valium by half a pill  saying if i want 3 per day i need to see soneone else. Fine. Theywant me to inject myself with a migrane med, Amjoy, a d from the patient reviews, i just wont. I have severe acid reflux that gave me barretts esophagus, meaning pre cancer in my throat i think. The last visit with the internist, on my way out he mentioned,  ih you know you have a hiatal hernia, right? No. I have no idea what it means but sometimes i go without any food because my stomach is full of acid even with meds for that. So, my home was paid for with cash from my dads inheritance.  That money us gone. I must pay property tax myself, on a credit card. Knowing my payments will go up, im trying door dash for income. I have eorked 2 times for 2 hours each. Sitting upright kilks my back and neck so im in bed for 2.5 days after each 2 hours. The pain clinic does not even know this. Will it help to print iut that the government now gets that reducing my meds, which i take 1 or 2  when i wake in the middle of the nightwith my headache. My last nurse told me to chew them for faster relief. That would leave me with 1 for the whole day. What could be their problem changing me to norco instead? The last place, when i finalky opened up i was getting no relief, added fentanyl patches. Iput it in at night, got up to pitty a d was bumping into walls.  Didnt use again. I want to function. When i told the last nurse i didnt like feeling wasted from the pstches, she upped my pills by 2 a day. No one would fill it. This was December 1. I went back 3 days in a row telling her first if all, only one pharmacy in town wiukd even take her scripts but not with the increase. She said its nit up to the pharmacy  to decide. Well thats a lie because i ended up all of December in withdraw. Pure hell. So do youthink if i explain this, they will allow me to change to norco and why did they look at me stupid and not question me wanting the change? Sirry so long. Now my keft shoulder has a huge bump on the top a d im lucky to sleep 3 hours straight even using zanafkex and 20 mg melatonin.  So getting 10 pounds off ny tummy is impossible.  I use 2 canes. Im so tired and so frustrated.
3 Responses
20803600 tn?1546262537
COMMUNITY LEADER
Your post is very difficult to read, and the topics are mixed together.
Does your current doctor know you are taking 3 oxycodone and 3 valium at the same time?
You are VERY LUCKY you have not overdosed.
You should NEVER take more of any prescribed medication than your doctor directs you to take. You should also not be taking more per dose or per day than prescribed.
As far as why the doctor won't prescribe norco over the oxycodone, perhaps it is because of the tylenol in the norco.
1 Comments
Yes, i began my question in the question section not knowing i had just a few characters t work with, so i had to backspace much of what i wrote. As for my meds, i was not long ago being prescribed 10 ocycodone per day, up to 3 each time. Its nothing to me. Not knowing my history, you are rather judgy. Ive had a massive headache for 7 months. Im allowed a break.
20803600 tn?1546262537
COMMUNITY LEADER
Bonnie,
I am sorry you feel that way. I have been in pain management for more than 25 years,  living with multiple chronic pain conditions, and have been through just about every aspect of pain management treatment out there.
In my opinion and experiences, any doctor who was giving you 10 doses of oxycodone per day was prescribing FAR TOO MUCH for you or any patient. Any patient requiring 10 doses of oxycodone per day is not receiving proper  or even effective treatment, and the doctor is putting the patient at risk of addiction, respiratory suppression, and overdose.
I would have some idea of when doctors prescribe too much, since it happened to me long ago.
Pain management properly done, is about reducing pain to manageable levels, not eliminating all pain, which can not be done when dealing with chronic conditions.
If the oxycodone was not working for you at 4 doses per day, then another treatment option, different medication should have been tried, until a successful treatment protocol was found. One option should have been an extended release opiate, if an opiate was used, medications that specifically target headaches, botox injections, and many other options.
Opiates and benzodiazepines are notorious for causing rebound headaches, which is why they are seldom used to treat chronic headaches anymore and haven't been commonly used for years now.
There are other medications far more effective at treating, reducing and even largely eliminating chronic headaches than opiates/benzodiazepenes.
My comments are not intended to offend you, and my hope is that you will consider what I said.
Perhaps it is time to explore other treatment options to treat your headaches that may be far more successful in helping you manage them, and less likely to take you down a path to addiction and risk.


6 Comments
The valium keeps my jaw from locking or my grinding. I never took 10 a day. I knew that was crazy.  All  appts with her were about her bipolar meds and inability to keep a boyfriend
Have you consulted with an ear, nose throat specialist or a specialist dentist who treats TMJ? THAT would be a great place to start.
Yes. Began seeing iver 30 years ago. Ive had 20 different nightguards made. One cost $1750, and i had money  so i bought 2. I broke one in half the first night. I was not on valum at the time. Almost all of my teeth have been brken and capped  from this condition. Its oute hell
Now with torn hips, issues from c1 to s1, all the ohysical therapy and shots, i only have pain. No quality of life. Wake, ice for 3 hours. Ive had botox. Insurance didnt pay. $7600 fir 2 sessions. Ive had 6 times, occipital shots, all pid for but this new clinic i was sent to first 1.7 years ao. They used the wrong code so were not paid. They are in nework so had to write it off. Ive given them the codes insurance pays for. Now they say it would be fraud to bill with that code.  Im a mess. I wrote and asked if i could go to er for a morphine shot to try to stop the headache. No answer. Oh god it hurts. They say they are working on notox as insurance says i.must try 3 other treatments for 6 mo ths each. Ive done them all. Weird infusions, pills i could not tolerate. I know what works. I want to write them about who i am, how 80% if my life is in bed.
Yes. Began seeing iver 30 years ago. Ive had 20 different nightguards made. One cost $1750, and i had money  so i bought 2. I broke one in half the first night. I was not on valum at the time. Almost all of my teeth have been brken and capped  from this condition. Its oute hell
Now with torn hips, issues from c1 to s1, all the ohysical therapy and shots, i only have pain. No quality of life. Wake, ice for 3 hours. Ive had botox. Insurance didnt pay. $7600 fir 2 sessions. Ive had 6 times, occipital shots, all pid for but this new clinic i was sent to first 1.7 years ao. They used the wrong code so were not paid. They are in nework so had to write it off. Ive given them the codes insurance pays for. Now they say it would be fraud to bill with that code.  Im a mess. I wrote and asked if i could go to er for a morphine shot to try to stop the headache. No answer. Oh god it hurts. They say they are working on notox as insurance says i.must try 3 other treatments for 6 mo ths each. Ive done them all. Weird infusions, pills i could not tolerate. I know what works. I want to write them about who i am, how 80% if my life is in bed. Ive never liked oxycodone. No relief at all but when i git 9 percocet a day. Took 4, waited an hour, then could do things. Not now. I take only to prevent withdraw. Ive tried calling attirney offices about iver orescribing. No one will talk to me. No one would fill for me fir 8 a day in decenber. I was so sick. I begged her 3 days in a row i went in begging for a lower dose. She upped from 6 a day after i told her i never used 10. Then all but one place refused to fill for her. But not with the increase. She put my body thru hell. Lost all end of year dental and vision benifits, in bed or on the toilet. No christmas.
Since age 16, I've been moved from dentist to dentist as their knowledge of tmj increased. Yes, i have an ent. He gave me the most painful nerve block in the joint. Its better to go get novocaine  shots, until i cant open my mouth.  At this time, it will take maybe 2 morphine shots to possibly knock it out. Ive been wirking with this for ober 30 years
Bonnie,
There is a HUGE difference in knowledge, treatment breakthroughs, clinical trials , other options available locally and at large medical universities/teaching hospotals.
Not dishonoring your treatments you have received locally the last 30 years, but what's available, what any doctor chooses as treatment options is partly dependent upon their motivation and need to keep abreast of new options.
You seem to be singly focused on medication, rather than treating the conditions. While medication may be necessary, focusing only on one aspect of management hurts you in the long run.
I had to go 3 hours from home to find specialists who were knowledgeable about RSD and when I developed Cauda Equina syndrome. Both are relatively rare, highly complex and difficult to treat. Staying locally could have cost me my ability to stand...I would have traveled a thousand miles if necessary rather than risk paralysis for convienence's sake.
When the pain is severe enough, you become willing to go where you need to to find the right specialists and the right treatments.
I hope you find the help you need, and that you find a way to manage the pain and get relief.
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20803600 tn?1546262537
COMMUNITY LEADER
Unfortunately, in todays environment, and the recommendation guidelines issued regarding opiates, the restrictions in maximum daily dosing, and concerns about overprescribing, doctors and pharmacies are even more wary of prescribing higher doses of opiates, and especially when patients are saying that high doses aren't effective, they are only using them to avoid withdrawal. There are major concerns about prescribing poly pharmaceuticals- opiates/benzos, opiates/stimulants, etc to patients,  even at low doses. Too many deaths have resulted from opiate/benzo combinations, and adding high doses of either or both, make an accidental overdose more likely.
Many patients have been cut back on their daily opiates, and/or been taken off either the benzo or opiate.
No doctor has to continue any patient on a medication regimen that another dr. had the patient on. Every doctor is supposed to examine, diagnose, and establish a treatment regimen they feel is best for that patient.
Likewise, going to the ER for non emergency pain flares usually results in referral back to your doctor, and perhaps a shot of toradol or similar anti inflammatory.
My suggestion is again, to find either an E,N,T specialist, oralmaxiofacial specialist, or dentist who treats TMJ, a consult with an orthopedic spine surgeon to see if surgery or other treatment option might be helpful.
Those appear to be your best options at this point.
2 Comments
Ive seen every surgeon in town. As for my jaw, the pain clinic gave me permission to get it from my ent. Still, as for opiates, its not one size fits all. The oxycodone is not for me. You know there are tests for that right? What helps ine doesn't  the other. Befire i ever think of being cut, i should be allowed to try every other avenue
Bonnie,
I don't know where you live, but given the extent and complexity of your medical issues, it might be worthwhile going to a large city/teaching hospital, or largest medical center near you for their expertise.
I am in no way suggesting that oxycodone or any opiate or treatment is the best option for you,  but am suggesting that since you aren't satisfied with your current treatments or doctors recommendations, that the best recommendation is to try consults with other specialists who may be able to recommend  something different.
You seem unwilling to try the suggestions/recommendations of your current doctors, reject things tried previously that didn't work before, but may now if used in conjunction with some medication regimen.
I am fully familiar with the genetic testing for what medications may work best for you, but not all doctors offer the testing or even are familiar with it, let alone understand how to  utilize it properly.
I am trying to help you, but you have to be open to suggestions and willing to try things even if you think they may not help.
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