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sons lips frequently turn blue?
Hi,
I was wonder if someone could advise me on my son, He's 16months old now and apart from being a handful is usually well except his lips (nowhere else) turn blue from time to time and I'm getting concerned as it is happening more frequently now! it does happen when he is cold but I've also noticed it at other times.I also have a 5 year old but his lips never turn blue ?
When he was 8 weeks he was admitted to hospital with bronchiolitis and at the doctor who examined him found a murmur? but said it was nothing to be concerned about and needed no further tests.
Should i now be worried?
Please reply as i'm unsure what to do.
I was wonder if someone could advise me on my son, He's 16months old now and apart from being a handful is usually well except his lips (nowhere else) turn blue from time to time and I'm getting concerned as it is happening more frequently now! it does happen when he is cold but I've also noticed it at other times.I also have a 5 year old but his lips never turn blue ?
When he was 8 weeks he was admitted to hospital with bronchiolitis and at the doctor who examined him found a murmur? but said it was nothing to be concerned about and needed no further tests.
Should i now be worried?
Please reply as i'm unsure what to do.
Kayka said: "I noticed it when they went from warm formula to cold milk. We did like all of you and had test and everything turned out fine. The dr said I might be a Hyper Vagal Nerve. My question to you is Has anyone elses dr said anything about a hyper vagal nerve?"
My toddler does this as well. The first time it happened (around 13 months) we ended up running to the hospital, they were so blue!! (he was acting perfectly normal, though). On the way I called the ped and he said that if he could breathe normally it was very probably a vasovagal syndrome of some sort and that it should go away after 5-10 mins.
It did.
But it keeps happening, maybe 3-4 times a week and always after breakfast.
Something important, though: My mom has a vasovagal syndrome (sweating, tachycardia, feeling faint or even fainting) after eating a strong dinner or after a bowel movement. Vasovagal syndromes are common especially after that: bowel movements and eating something hard to digest (or a lot). This *does* happen to my kiddo when/after eating and it made sense to me....
In any case, reading all your experiences helps me be more at peace a bit. He doesn't have any more symptoms after all.
BTW, for those interested, he was breastfed up til 9 mos, then combined breast with soy mil and is now on stage-3 formula.
My toddler does this as well. The first time it happened (around 13 months) we ended up running to the hospital, they were so blue!! (he was acting perfectly normal, though). On the way I called the ped and he said that if he could breathe normally it was very probably a vasovagal syndrome of some sort and that it should go away after 5-10 mins.
It did.
But it keeps happening, maybe 3-4 times a week and always after breakfast.
Something important, though: My mom has a vasovagal syndrome (sweating, tachycardia, feeling faint or even fainting) after eating a strong dinner or after a bowel movement. Vasovagal syndromes are common especially after that: bowel movements and eating something hard to digest (or a lot). This *does* happen to my kiddo when/after eating and it made sense to me....
In any case, reading all your experiences helps me be more at peace a bit. He doesn't have any more symptoms after all.
BTW, for those interested, he was breastfed up til 9 mos, then combined breast with soy mil and is now on stage-3 formula.
Hi, I'm first off going to say that I have no answers yet myself....still looking.
My daughter Ruthie is 17 months old. and has been having blue spells for about 6 mo now.
The spells seem to occur at ramdom only upon waking from a daytime nap(as far as iv'e observed. I'm going to start doing more night time observations. Flipping the light on if she stirs or wakes to check if shes blue)
During a spell her 'whole body is blue in different variations of color) The hands, feet, lips, legs, arms are the most blue/purple. The back, face, and chest are blue, but not so much. All over her body it looks as though the skin is purple, and the veins are blue; being you can see all the veins in her body. They all clearly show.
Her hands, feet,legs, and arms will be very cold to the touch, but the torso and face stay warm.
She also is slightly "jittery" or "twitchy", mainly noticeable in the arms, and torso.
She is drowsy, seems slightly confused, and kind of in a daze. But at the same time aware.
If I try to sit her up, she will imediately lay down(kinda fall down accually) If I stand her up she falls down. I'll help her up, and if she "does" try to walk she will stager, cant walk in a straigt line, and cant keep her balance.
Then she will cry. She just wants to lay down.
The spells so far usually only last around 5 to 10 minutes. But the one she had today lasted at least 30 minutes.
By the time the paramedics arive to evaluate the spell is over and she is up running, playing, climbing, talking.....looking and behaving like a perfect healthy child! They must think i'm crazy?!?!
Also I must mention that the spells vary in severity, she has had two very bad ones, (like "hun, i think we need to call 911"), these are the first one she had, and the one today. The spells inbetween havn't been as bad, we usually just watch her until it goes away.
The first spell she had was with a fever of 105 upon waking from a daytime nap, and the er doc said it may have been a febrile siezure, which occures when there is a sudden rise in temperature. Though from the video they had me watched of a child expiencing this type of siezure, was nothing like what I saw with Ruthie. So they couldnt give me a diagnosis. her doc said thats what it may have been and if it was to expect it with other fevers, even if its not a high fever. Well she has had many many fevers since then, some very high ones too, and has not had a spell since then with a fever.
I honestly don't think she had that type of siezure associated with a fever.
We have had blood work done, and a few other tests. Nothing to invasive. Everything always comes back a ok.
I will say that after today.....I have my camera ready....when she has another spell i'm getting it on video. Then maybe they will beable to figure out whats going on. I also plan to buy an oximeter to check her oxygen levels, along with montoring her breathing and night time/nap time activity. Other wise they won't know whats going on exactly.
Its scary when it happens, but i'm relieved when it stops and she returns to her normal playful self. Weird. I will post again when I have updates.
My daughter Ruthie is 17 months old. and has been having blue spells for about 6 mo now.
The spells seem to occur at ramdom only upon waking from a daytime nap(as far as iv'e observed. I'm going to start doing more night time observations. Flipping the light on if she stirs or wakes to check if shes blue)
During a spell her 'whole body is blue in different variations of color) The hands, feet, lips, legs, arms are the most blue/purple. The back, face, and chest are blue, but not so much. All over her body it looks as though the skin is purple, and the veins are blue; being you can see all the veins in her body. They all clearly show.
Her hands, feet,legs, and arms will be very cold to the touch, but the torso and face stay warm.
She also is slightly "jittery" or "twitchy", mainly noticeable in the arms, and torso.
She is drowsy, seems slightly confused, and kind of in a daze. But at the same time aware.
If I try to sit her up, she will imediately lay down(kinda fall down accually) If I stand her up she falls down. I'll help her up, and if she "does" try to walk she will stager, cant walk in a straigt line, and cant keep her balance.
Then she will cry. She just wants to lay down.
The spells so far usually only last around 5 to 10 minutes. But the one she had today lasted at least 30 minutes.
By the time the paramedics arive to evaluate the spell is over and she is up running, playing, climbing, talking.....looking and behaving like a perfect healthy child! They must think i'm crazy?!?!
Also I must mention that the spells vary in severity, she has had two very bad ones, (like "hun, i think we need to call 911"), these are the first one she had, and the one today. The spells inbetween havn't been as bad, we usually just watch her until it goes away.
The first spell she had was with a fever of 105 upon waking from a daytime nap, and the er doc said it may have been a febrile siezure, which occures when there is a sudden rise in temperature. Though from the video they had me watched of a child expiencing this type of siezure, was nothing like what I saw with Ruthie. So they couldnt give me a diagnosis. her doc said thats what it may have been and if it was to expect it with other fevers, even if its not a high fever. Well she has had many many fevers since then, some very high ones too, and has not had a spell since then with a fever.
I honestly don't think she had that type of siezure associated with a fever.
We have had blood work done, and a few other tests. Nothing to invasive. Everything always comes back a ok.
I will say that after today.....I have my camera ready....when she has another spell i'm getting it on video. Then maybe they will beable to figure out whats going on. I also plan to buy an oximeter to check her oxygen levels, along with montoring her breathing and night time/nap time activity. Other wise they won't know whats going on exactly.
Its scary when it happens, but i'm relieved when it stops and she returns to her normal playful self. Weird. I will post again when I have updates.
I only have one new piece of information, although it was alluded to earlier in the thread...our pediatrician indicated that whenever their bodies are experiencing a quick change in temperature - either way, up or down - the blue lips and extremities (fingers and toes) can occur. This has something to do with capillaries in the extremities constricting to allow more blood flow to the body core. It is characteristic that it only lasts a short time, because then the body temperature stabilizes. Temperature drops during sleep and probably raises during eating (I'm guessing, because the body is rapidly converting the food to energy). This would explain why so many are seeing it during meals and after naps. The theory of it occuring during peeing would fit as well, then, for the reasons that poster explained.
I saw it yesterday in my 16 mos old after her nap, and it was accompanied by shaking, like shivering, and she did have a fever and a cold, for which we took her to the doctor for all of the above symptoms. It has happened a few other times in the past, but it passed so quickly, I didn't worry to much about it, nor do I remember what the circumstances around it were, but I'm going to pay more attention to it from now on. I'm comfortable with our doctor's answer for now, but am going to call back to ask her to explain it further and she if she can validate it occuring during meals, after naps, and during/after peeing.
I saw it yesterday in my 16 mos old after her nap, and it was accompanied by shaking, like shivering, and she did have a fever and a cold, for which we took her to the doctor for all of the above symptoms. It has happened a few other times in the past, but it passed so quickly, I didn't worry to much about it, nor do I remember what the circumstances around it were, but I'm going to pay more attention to it from now on. I'm comfortable with our doctor's answer for now, but am going to call back to ask her to explain it further and she if she can validate it occuring during meals, after naps, and during/after peeing.
Well, I guess I can add to this post. My 14 month old son was just as the pediatricians for an hour trying to figure out why he turns blue. He does have ASD, but it should not be the cause of him turning blue. He's had several EKG's and Echo's and other from the ASD, they are normal. My doctor is extremely perplexed as are we. I am astounded by how many kids are suffering from this without there being a definitive diagnosis. The one thing I see in common a lot is heart murmurs and getting over a nasty virus, both of which my son had/has. Their has got to be some connection there. I go back in a few weeks after I document how many times my son has this, how long it lasts (currently 2-3 minutes) and if it effects just his lips and hands. I will keep everyone posted if I get any kind of answer.
I have 4 kids. 2 of them turn blue. My first one had a seizure with hers. I noticed it when they went from warm formula to cold milk. We did like all of you and had test and everything turned out fine. The dr said I might be a Hyper Vagal Nerve. My question to you is Has anyone elses dr said anything about a hyper vagal nerve?
I have a 4 yr old daughter who has similar problems. It started 2 years ago with her spontaniously passing out. We saw a peditrition and she blew it off saying we needed to see a psychaitrist for behavior problems because according to our doc she was making herself pass out and it is common in kids. We fired her and got a new dr. The new doc sent us to a cardiologist and all the tests were normal but he put a holter monitor on her for a month. It only took a few days to catch an episode. It turns out her heart was stopping when she passed out. She now has a pacemaker so she doesnt pass out. But she still has blue lips quite a bit. We were referred to the pulmonary doc. At the appointment she caught many episodes and it turns out her 02 sats were 82% when she has these episodes. But they did a CT angiogram of her head and chest to rule out AVM's. Then they did a broncoscopy. All negative. Now we are getting referred to the neurologist for evaluation of an autonomic disorder. Our problem is we have caught the episodes and all the docs know there is a "very serious and very rare" problem just no one can tell us what it is. For now we are on oxygen when she has an episode and at night. No exercise and a careful eye. did I mention we live almost 2 hours from the hospital. I just get so frustrated that no one seems to take things seriously. I mean if it was their kid this would all be figured out. I have no problem firing docs as my insurance allows this but i am running out of docs and I am tired of being treated like I am making a big deal out of this. It has been almost 4 weeks since the pulmonologist was going to get us in to see the neurologist. No one has called and the neuro guys dont even have our consult yet. I have learned though that when you see a specialist (cardiologist, pulmonologist, ect) that when they say everything is normal they mean their scope of practice. My daughter has a normal heart and the Sinus Node Dysfunction is something that is regulated by the brain thus him saying she is fine. Kinda Not my problem attitude. So keep looking for the right doctor who will listen and take things seriously. I have no problem saying What if this was your daughter. What if you were scared every night when you put her to bed that she wouldn't wake up in the morning. This really pulls on the heart strings of some docs. especially female ones. It is a sad tactic but I fear for my daughters life every second of every day.
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