Infant eyelid fluttering & large pupils

[msmercury]

3 week old infant has enlarged pupils & fluttering upper eyelids when trying to look upward.  Eye dr says aniridia is a stretch, but is testing.  baby is also very light sensitive.  Also has hypospadias.  When would it be appropriate to look for brain tumors and aneurysms? I originally posted this in neurology & head trauma in error.  I'm new and trying to figure this site out.

[margypops]

Oh I can imagine how worrying it is , just so upsetting, stay positive ,hope for the best ,its good they are being so through with the testing. Keep us updated and good luck

[msmercury]

It is under "Infant fluttery upper eyelids/large pupils".  Thanks so much for all your help.  We have neurology appt tomorrow.  Very worried what they will discover next.  He seems normal every other way.  This is so distressing, all this waiting for tests to come in & they want to do more genetic testing.

[margypops]

I have just looked at the Neurology forum and I cannot see where you posted it, what title was it under ?

[margypops]

it was the one 'EyesRolling' but from what you have now told me it sounds if it wont be much help ...put the question up again on the neurology forum sometime it takes a couple of times for answers.

[msmercury]

Sorry, not seeing any other post.  I guess I'm not figuring out how to navigate this site.

[msmercury]

Thanks for the reply.  Have not heard from the neurology forum yet.  Infant is currently being tested for WAGR syndrome.  Has had many tests and so far all have come back normal.  The WAGR test comes back in 2 more weeks.  Doc wants infant to see neurologist.  Infant also has hypospadias with bifid scrotum and a minor heart issue.  I'll look at post you have recommended.

[margypops]

Its always appropiate to seek and research information that may help you understand , did Neurology forum help you ?WE had another similar question look below this post 4 down ..I will see what I can find online may be of help to you ..