Cystic Fibrosis... Scared.

[Mamacub23]

I found out today that I tested positive for  genetic cystic fibrosis. My husband got blood work done today to see if we are both carries. I'm so scared that is something wrong with my baby and it's all my fault. Any one else going through this or has with previous pregnancies?

[AuziNikol]

22 years ago they didn't have any of this testing and didn't know hardly anything about it. They finally did a sweat test on my bf when he was 3 months because they couldn't figure out why he was sick. The test was literally licking his forehead to see if it was salty. Now they can look for signs before the baby is born. I hope your baby doesn't have it but in case it does I want you to know that it will be OK and you will be able to get through it.feel free to message me

[AuziNikol]

My bf has cystic fibrosis. He also has two older brothers who do not have it. They have the same mother and father. So even if he is a carrier there is a chance the baby won't have it. But they can be prepared for it and there are so many advances in medicine that are making it easier to deal with. My bf was told he wouldn't make it to a year old then it was 5 then 14 then at 16 they stopped saying he was gonna die because he kept proving themwrong and medication kept ggetting better. There is also several different mutations of it. My bf has the most advanced mutation and he's beat the odds. Most people with CF now are able to live somewhat normal lives and live normal life spans. Do some research just in case so you are prepared. There are sites with forums online that I've found really helpful. Good luck hope everything turns out OK!