I know Oklahoma is way far away from where you are but there is a wonderful Childrens hospital at ou med center in okc!!
look up st jude childrens hospital and give them a call.. they are not just for cancer children and are very helpful and willing to give you boat loads of info as to the best drs close to u alot of them who are affiliated with st. jude. if it was my daughter thats exactly what I would do.. call the best hospital in the country and ask them for advice
There is a great childrens hospital in louisville ky. The name of it is kosair childrens hospital. Good luck i hope the figure something out soon and your
Lil girl is ok.
The children's hospital in Birmingham, al is great, my uncle had cystic fibrosis since he was born and was treated there until he was older, also he had a double lung transplant in 2006 at Duke University Hospital in North Carolina, they gave him the best help and did the most for him. I highly recommend both of these hospitals. Good luck.