This is a rare syndrome characterized by a range of abnormalities caused by immune-mediated nerve demyelination. There is usually no loss of limb function associated with the disorder. The face, throat, mouth and eye symptoms (weakness of the muscles) usually come and go.
The list of treatments mentioned in various sources for CANOMAD syndrome includes the following list. Always seek professional medical advice about any treatment or change in treatment plans.
The following may provide temporary relief in some cases: plasma exchange
Thank you for your posting. I guess this will explain the dry eyes and mouth, the way my voice has changed too. Maybe the itchy face as well. What sort of prognosis is there for syndrome?
Is Intravenous immunoglobulin the same as Intergran or is it Intergram? I am taking Amitryptaline at present [sorry for the incorrect spelling] It's for the neuropathy I think. Also Razene for the itch.
I'm wondering what your test results ended up showing? I just got test results that show me as positive on the GD1a and GD1b. My CQ1b and GM1 were normal.
My hematologist was the one who ran the tests, because I also have MGUS that he's monitoring me for. I already had an appt next week scheduled with the neurologist to be checked for MS, but now I'm wondering what the heck these test results could mean.