Aa
Aa
A
A
A
Close
723488 tn?1278339300

Help my 11yr old son!!!!!

I've been doing this for the past 10 years!!  I need some answers. Im just going to give a list of diagnoses for the past 10-11 years and if someone can shed some light to our problem it would be appreciated greatly.
Diagnoses:
ADHA, ODD, Anxiety Disorder, Enuresis, bowel problems (muscles), 1 leg too short(has orthodics), toe-walker since 1 year old, have done physical therapy 10 years, now resorted to metal leg braces and aqua therapy. Also Gastroc Soleous Contracture(equinus Contracture) both legs, tight post capsules (hamstrings) both legs, Plantar Fibromatosis and Fasciitis both feet, Lumbar Scoliosis, Degenerated disks in neck causing his bad headaches for years. He has eating and swallowing problems because of tongue muscles and throat muscles. Has dif. with precise motions -butoning clothes (i do it), tying shoes, handwritting (so bad he types alot of homework), he's also in danger and showing signs of Chondromalasia Patella. He has Subclavian Steel Syndrome due to outcome of heart sx in 2007 (rare heart birth defect), and now has a heart murmur.
Im a single parent with obviously alot on my plate - can you PLEASE guide us in the right direction??
3 Responses
Sort by: Helpful Oldest Newest
Avatar universal
That's a good point, lynxgal.  Sarah, tooth disease or even decays can cause certain illnesses. Remember, that's also poison that enters the blood stream, which in turn also needs to be corrected and the blood should be cleansed by eating fiber, fruits and vegetables (preferably organic). Check your list(s) with these suggestions. The more that can be ruled out, the better!

P.S.
Co Enzyme Q10 is known to assist with gum disease! Let us know how things go!
Helpful - 0
215164 tn?1269466240
Has your son been tested for CMT Charcot Marie Tooth Disease?  
Helpful - 0
Avatar universal
Fox,
Sorry to hear about your son. I can see that you are strong. That's good. Does your son take vitamins? I know a lot of people who don't like them. A lot of people don't even eat vegetables. Our bodies needs these things. There will be a lot of things that  go wrong with our bodies and, guess what? There may Never be a Proper diagnose for the ailment(s). The truth is...doctors have technology that can only detect diseases (maybe) or whatever's wrong, but rarely will a EKG, or MRI, X-rays, or any of those other machines, actually tell us that we need Vitamins A, B, C, D, K, etc...

They can only see through a blood test that your blood count is low, which would mean anemia, and will try to guess at more info, as you can see from what you've already been through. They will never say, "Well, uhhh, I can see, uhhh, that through the blood tests, uhhh, that you're lacking...Vitamin K (which is dark green, leafy vegetables), or that you should eat more fiber to clean out all the fast foods, and poisons that we all eat. In other words, they can never be exact as to what you should or should not do. It's actually overwhelming to know of all the things our bodies need.

The truth is, if you start doing these things (if you haven't already began this regimen) you will begin to build your son's health and most of the disease-like symptoms that your son is experiencing will soon began to fade if not diminish. We are not hopeless individuals, as it may seem.

It's the "disease-like" symptoms that cause doctors to prescribe meds, needless operations and all sorts of treatments. Try beginning with the  above mentioned. Do research on the Internet or buy books that can tell you the foods that contain these nutrients that you need.

In 1990-91, I was having pain around my navel. I was told I had a hernia. I was diagnosed (by another Dr.) with Colitis in 1992, then Crohn's Disease. I did the above research, along with pure bottled water. I last saw "A" doctor in 1993. I had rather to be my own doctor or die. During my healing period, I've had episodes with those "Symptoms" but since I kept at the regimen, I can honestly say..."Since about 1999, I've had no more problems with the "Symptoms." My current problem is with the pulsating sensations in my torso. I'm currently doing the research needed to minimize the possible problems. But I have to remember, I was going through a death of a loved one about three months ago, when it all began. It could be something as simple as stress. So far, I can see that as I (we) get older (and we're all getting older), our bodies are always changing, it could probably be my nerves that are reacting in this way. When I eliminate caffeine and take an herb called Nettle (which has a calming effect on anything going on in the body), things are much better. And when I have pain now (if I ever do, which is rare), I think about my vitamins. I have to do all the figuring because I will not go through with all the misdiagnoses and meds and more meds, after hours of waiting in an ER. I want to be healthy not doped up! I was so determined to help myself, that my regimen went on as much as 3 times per day! (with herbs, vitamins, and raw vegetables). And that was all I needed, yet they say, "there's no cure" (for the hernia -slash, colitis -slash, Crohn's). HELL!  I GUESS NOT! THEY COULDN'T EVEN STICK TO ONE STORY! And they would probably use the word "Remission." But to me, if you have no problems with something, couldn't that probably mean you no longer have it? Not in their book. How long is it now, for me? This is 2009???

I'm a sixteen-year veteran in the study of herbs, vitamins, and nutrition.

The smartest thing the first doctor said (the one who diagnosed a "hernia") was, "Just because you have symptoms of a disease, doesn't mean you have the disease." Those words still stuck in my head to this day. And now with positive efforts... I DO THE DRIVING.

If you'd try these things, at least the doctors can rule out these deficiencies (which is a lack of vitamins). There are so many nutrients our bodies need, you'd be surprised!

I know he's young, but just start by:

giving fiber cereals (they have ones that tastes good),

multivitamins

less fast foods and junk foods. These have chemicals that could be giving him  reactions. Allergies can cause us to sneeze, eye tearing, cough, heart palpitations, hyperactive, nervous, constipation, and a host of other problems that will only be pacified but not cured. Who's to say he has any disease, just because he has these "Reactions?" Possible allergy reactions. That's why Organic Foods are the best! And it could be as simple as that. So start giving him more fiber so he can eliminate as much as he can.

offer more vegetables (dark green)

give him lots of bottled water. It's better for his digestion. I learned that on my own. All those doctors, and none of them told me!

I hope this bit of info can help. It surely helps me, even now! There is hope. So, take a deep breath, girlfriend. You're doing just fine!

Give a holla!

minimouse a.k.a. sassy_writer***@****
Helpful - 0
Have an Answer?

You are reading content posted in the Rare Diseases Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
New study links cell phones to slightly increased cancer risk. Should you be concerned?
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.