Aa
Wht do I have besides alot of symtoms?
Ok, here goes, I have to be a medical mystery because one person cannot possible have all this **** wrong with them and "NOT" have anything major.I posted this in the Neurology section due to most problems seem Neurological.I need a doctor that will put the puzzle together instead treating only the symptoms. I am 47, white, female who was in the US Marine Corps for 17 years until medically discharged for FIBROMYALGIA (if it really exists or thats what I REALLY have???) 12 years ago. I currently only have the VA for medical and they only seem to treat the symptoms at the time instead really looking at the big picture on whats going on here. I will PAY anyone who can figure this out or has a clue!! I am allergic to tons of medicines and if not, then the longer I take one I then become allergic to it. I don't drink (but did years ago occasionally). I quit when it seemed like my body could not process the alcohol, kinda like not processing the meds and become allergic to them. I do not take pain meds as I don't like the way I feel on them and I have a 11 year old to take care of. Mothers side of family consists of over 100 people living and NOTHING like I have effects any of them. DO NOT know my BIO father.
Diagnosis so far: FIBRO, Graves disease raidioactivated gland on Active duty (now hypothryroid on meds .112 levo), IBS, Migraines. 6 1/2 yrs ago got sudden gallbladder pain and have the pain chronically, wakes me up at night and not triggered by fatty foods, radiates to right upper back and down to hip, all tests show nothing. Diagnosed with H-pyloria, and positive for the 1st test for Addisons Disease, but border line for the second test. 5 years ago developed tingling in both my arms, left was worse and after a year of pain the VA finally did surgery for rotator cuff being torn. Right arm still has the tingling all the way to my fingers. And after the surgery I still have it in my left arm. I have severe neck pain, when I lay down it fells like my head is filling up with fluid and the pressure is sooooo bad I have to sit up to alleviate it, then it feels like its drain then I can lay down again. I am going broke going to Chiropractors 4 adjustments. They help for alittle while, sometimes for only hours though. Bulg dics C3,4,5, 5 years ago and now they are not bulged any more. Last MRI (May 08) showed compression on spinal cord mid backand something with bones in my neck. 3 1/2 years old had shingles and then 2 months later a terrible migraine and received two shots Immetrex, a few days later I had blurred vision and was told I had a stroke behind left eye, that has left me with spotty vision in the left eye. two months after that I had a terrible toohache, botched root canal and ended up having two teeth pulled to be later diagnosied with Trygeminal Neuralgia. Then a year ago I hand pain in the right thumb and had surgery on it for trigger finger in July of 08. No for the last two months I have it in my left thumb. 3 months ago I had a headache for two weeks straight that didn't seem llike a normal headache and when the tylonol, gabapentin and sinus meds didn't knock it out I went to the the VA. They said white blood cells in urine, fever of 101, gave me antibiotics and sent me home. Was worse next day, went back, they sent me out in town where they did a spinal tap and said the pressure was elevated at entry and after a 3 day stay I went home with little to no headache. (only thing I was on was OXYGEN, (My oxygen levels are great even without it). 1 week later the headache returned with vision issues and it felt like my brain was on fire, no fever but I was melting ice packs on my head for two days it felt like it was on fire. After waiting for 2 hours to be seen, the VA PA I saw ,wanted to send me to Psych. for an eval so I left. I WAS NOT MAKING THIS UP!!! Who would want to live like THIS???? I Two days ago I started to feel the same pain and clicking in my right forefinger, pain ONLY in the right middle and ring finger. Pain in the LEFT forefinger also.I was started taking some supplements (Specific for Adrenal gland, Gall bladder, Liver and Kindeys) 2 months ago and after 3 weeks the gall bladder etc. pain went away. Now I'm out of those and the returned in full force. My massage therapist suggested them to HEAL the organs to function better as the tests I have had showed nothing abnormal, excepting that the pain has gotten worse over the last 6 1/2 years! Now its back full force. I have extreme fatigue, no appetite but am nautious alot of the time, stay hydrated even though the more fluids I drink the worse the gall bladder, kidney area pain becomes WORSE, loose stools and can feel my abdominal muscles spasming alot of the time. I am extremely cold, if the outside temp is below 70 my hands hurt severly, so I just moved from MN to FL. Been here one month and feel WORSE!! Neg. test for lymes, I have broken two mercury thermometers accidently, worked in NBC in the Corps and around HF and VHF radio equipment. I wasn't "in country" during the 1st gulf war, but was in contact with equipment that was and sexually active with one that was in country front lines. I Okay I am not nuts just desparate! Something I have said here has to mean something to someone that has been overlooked or denied. I have heard in the past I could have "something or another" but they always say "ITS RARE". Just cuz its rare doesn't mean I don't have it! I just want it to go away or be treated for the right thing not just blown off. I can't work, short term memory is horrible, driving is difficult and out at night. Went thru menopause already, no cycle in over 4 years and am 47. Bruise easliy, itch all the time, digestive issues, dry eyes that are always blood shot. My blood pressure is always low 100 or less over 60-80. Am always cold also. I get this feeling all of a sudden like I am running a fever for a while ,face burning up, then all of a sudden I'm freezing, then its gone. I have chills often. I sleep for 2-3 hours even on ambien then I'm wide awake. I sleep another 2-3 hours and then wide awake. I obviously am dog tired every day. I ry to stay busy in the day as it takes a long time to do anything. But I HAVE the time. I try to move alot so I don't get stiff but when your in pain its hard and drugged your down. the lesser of two evils is what I prefer. So NO pain meds for me when I did try them they never worked any ways. I took the TN meds till I had no pain then stopped. If the pain returned I took them again. I am worried this is liver or kidney related and wonder if those organs are now toxic as while in the Marine Corps and for a few years after wards I was taking 1200 to 1500 mg a day of either Motrin or Ibuprofen on top of other antidepressants and whatever other "Symtoms" the VA wanted to treat. My mouth now feels like I am licking a 9volt battery with tingling accross my teeth and in my face. If i stroke my head in certain places I can trigger severe pain there. At times I felt like I had a severe bruise painful to touch on certain spots on my head. Those issues come and go. I have sudden pain behind my right eyes alot and sometimes behind the left. I now wear glasses. NERVE RELATED?!?!!? But which ones ???? I probably glow in the dark by now with all the radiation tests, xrays, CT scans and MRI's I have had. SOmeone has to have a clue or suggestion for what to look for or try. I hope I didn't forget anything as the lists seems to grow!! By the way in case your wondering it took me 4 hours just to type this! I need sugestion to take to someone or someone willing to see me.
Diagnosis so far: FIBRO, Graves disease raidioactivated gland on Active duty (now hypothryroid on meds .112 levo), IBS, Migraines. 6 1/2 yrs ago got sudden gallbladder pain and have the pain chronically, wakes me up at night and not triggered by fatty foods, radiates to right upper back and down to hip, all tests show nothing. Diagnosed with H-pyloria, and positive for the 1st test for Addisons Disease, but border line for the second test. 5 years ago developed tingling in both my arms, left was worse and after a year of pain the VA finally did surgery for rotator cuff being torn. Right arm still has the tingling all the way to my fingers. And after the surgery I still have it in my left arm. I have severe neck pain, when I lay down it fells like my head is filling up with fluid and the pressure is sooooo bad I have to sit up to alleviate it, then it feels like its drain then I can lay down again. I am going broke going to Chiropractors 4 adjustments. They help for alittle while, sometimes for only hours though. Bulg dics C3,4,5, 5 years ago and now they are not bulged any more. Last MRI (May 08) showed compression on spinal cord mid backand something with bones in my neck. 3 1/2 years old had shingles and then 2 months later a terrible migraine and received two shots Immetrex, a few days later I had blurred vision and was told I had a stroke behind left eye, that has left me with spotty vision in the left eye. two months after that I had a terrible toohache, botched root canal and ended up having two teeth pulled to be later diagnosied with Trygeminal Neuralgia. Then a year ago I hand pain in the right thumb and had surgery on it for trigger finger in July of 08. No for the last two months I have it in my left thumb. 3 months ago I had a headache for two weeks straight that didn't seem llike a normal headache and when the tylonol, gabapentin and sinus meds didn't knock it out I went to the the VA. They said white blood cells in urine, fever of 101, gave me antibiotics and sent me home. Was worse next day, went back, they sent me out in town where they did a spinal tap and said the pressure was elevated at entry and after a 3 day stay I went home with little to no headache. (only thing I was on was OXYGEN, (My oxygen levels are great even without it). 1 week later the headache returned with vision issues and it felt like my brain was on fire, no fever but I was melting ice packs on my head for two days it felt like it was on fire. After waiting for 2 hours to be seen, the VA PA I saw ,wanted to send me to Psych. for an eval so I left. I WAS NOT MAKING THIS UP!!! Who would want to live like THIS???? I Two days ago I started to feel the same pain and clicking in my right forefinger, pain ONLY in the right middle and ring finger. Pain in the LEFT forefinger also.I was started taking some supplements (Specific for Adrenal gland, Gall bladder, Liver and Kindeys) 2 months ago and after 3 weeks the gall bladder etc. pain went away. Now I'm out of those and the returned in full force. My massage therapist suggested them to HEAL the organs to function better as the tests I have had showed nothing abnormal, excepting that the pain has gotten worse over the last 6 1/2 years! Now its back full force. I have extreme fatigue, no appetite but am nautious alot of the time, stay hydrated even though the more fluids I drink the worse the gall bladder, kidney area pain becomes WORSE, loose stools and can feel my abdominal muscles spasming alot of the time. I am extremely cold, if the outside temp is below 70 my hands hurt severly, so I just moved from MN to FL. Been here one month and feel WORSE!! Neg. test for lymes, I have broken two mercury thermometers accidently, worked in NBC in the Corps and around HF and VHF radio equipment. I wasn't "in country" during the 1st gulf war, but was in contact with equipment that was and sexually active with one that was in country front lines. I Okay I am not nuts just desparate! Something I have said here has to mean something to someone that has been overlooked or denied. I have heard in the past I could have "something or another" but they always say "ITS RARE". Just cuz its rare doesn't mean I don't have it! I just want it to go away or be treated for the right thing not just blown off. I can't work, short term memory is horrible, driving is difficult and out at night. Went thru menopause already, no cycle in over 4 years and am 47. Bruise easliy, itch all the time, digestive issues, dry eyes that are always blood shot. My blood pressure is always low 100 or less over 60-80. Am always cold also. I get this feeling all of a sudden like I am running a fever for a while ,face burning up, then all of a sudden I'm freezing, then its gone. I have chills often. I sleep for 2-3 hours even on ambien then I'm wide awake. I sleep another 2-3 hours and then wide awake. I obviously am dog tired every day. I ry to stay busy in the day as it takes a long time to do anything. But I HAVE the time. I try to move alot so I don't get stiff but when your in pain its hard and drugged your down. the lesser of two evils is what I prefer. So NO pain meds for me when I did try them they never worked any ways. I took the TN meds till I had no pain then stopped. If the pain returned I took them again. I am worried this is liver or kidney related and wonder if those organs are now toxic as while in the Marine Corps and for a few years after wards I was taking 1200 to 1500 mg a day of either Motrin or Ibuprofen on top of other antidepressants and whatever other "Symtoms" the VA wanted to treat. My mouth now feels like I am licking a 9volt battery with tingling accross my teeth and in my face. If i stroke my head in certain places I can trigger severe pain there. At times I felt like I had a severe bruise painful to touch on certain spots on my head. Those issues come and go. I have sudden pain behind my right eyes alot and sometimes behind the left. I now wear glasses. NERVE RELATED?!?!!? But which ones ???? I probably glow in the dark by now with all the radiation tests, xrays, CT scans and MRI's I have had. SOmeone has to have a clue or suggestion for what to look for or try. I hope I didn't forget anything as the lists seems to grow!! By the way in case your wondering it took me 4 hours just to type this! I need sugestion to take to someone or someone willing to see me.
Hi there: I can really understand what you are going through. I am going through similar situation. I have been sick since 1973. I was diagnosed with probable MS. Lupus, RSD. Severe fibromyalgia, Neuralgia, Optic Neutitis, Post Polio Syndrome, Thoracic Outlet Syndrome, and 2002 finally with Lymes disease. Let me tell you the blood test of Lymes is not very accurate. Until now my has been negative. My diagnosis is because of my symptoms and also because I have 2 co-infections that you get with Lymes Bartonella and Babesiosis. I suggest you have yourself check for the co-infections. the blood tests are not accurate As I said. I believe only 50% of people are positive with it. Alot of your symptoms that you have describe I have. Specially the pressure in your head I feel like my is going numb now like if I had a stroke also I am having a hard time focusing my eyes to see. I hope I was able to be of some help to you. You are certainly not alone. Good Luck LOVE AND LIGHT, ELENA
Hello there: I cannot help you in any way except to say that sometimes I have really strange symptoms for a day or two, and then they travel somewhere else to annoy me. I have been diagnosed with a form of fibromyalgia too. It is a crazy disease that most people don't realize how miserable it makes you feel. I do hope that you get some relief soon. As I said I can't help you out, but I hope you can feel my support.
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