Do I have sarcoid or not?

[weenie120]

A recent chest xray revealed that I might have sarcoidosis.  A cat scan with dye suggested the same.  After a grueling lung biopsy to confirm, I have just learned that the biopsy was negative for everything.  Any ideas.


This discussion is related to Puzzled about husbands lung problem.

[weenie120]

Thanks for responding.  I was having shortness of breath which could have been from smoking.  The ACE level was normal.  

[Corvin]

Hi weenie120,

If they can biopsy something else like skin lesions, lymph nodes, it is another alternative. Not knowing what the CT showed or what your symptoms are I can't be of much help beyond that.

In diagnosing Sarcoidosis they test the serum ACE level, but this is still just an indicator that they put together with the whole clinical package not a slam dunk in itself.

Sarcoidosis is a diagnosis of exclusion and can only really be diagnosed through biopsy of suspicious tissue, which is usually lung tissue, or hilar, mediastinal, or auxiliary lymph nodes.