**Just thought I would give an update: JAN 15 2019 (6 months post contraction)**
-I finished the Minocycline (1 Month Course) and 18 days post ABX discharge and frequent urge to urinate came back, for anyone curious of the details its really only present in the morning and it's a PUS like yellowish discharge that can be produced when milking the shaft.
- I sent another specimen off to mylabbox for testing on day 16 post ABX and it came back positive still.
- Had another ID appointment this morning to discuss further options he currently want's me to take 3 MORE months of Minocycline. During this time he is making an attempt to obtain IND approval from the FDA in order to import Pristinamycin from France, speaking with doctors who have tried this in the US it seems that this is likely near impossible. Right now with the Government shutdown he said things will also likely move even slower than they normally would.
- I will sound like I've gone off my rocker here but I'll post it anyway to see what it sparks but I've bought most of Stephen Buhners books on "Herbal Antibiotics" and I've bought a ton of "Natural" supplements along with several bottles of Colloidal silver (I've had two people tell me it's worked for them now). Yes I know what you're going to say but I really don't have a lot of options at this point and I'm not one to leave a stone unturned so it can't do anymore damage than I'm already experiencing.
- I read on a website that mycoplasma live off of Gluten so I'm going to attempt a "gluten free" diet for the next few months while I'm on the Minocycline waiting to see if I can get the Prstinamycin.
- I'm not sure what temperature mycoplasma dies at but if anyone has any idea I'm also open to trying "induced hyperthermia". Again I know this is starting to sound crazy but there aren't a lot of studies done on this thing and the US doesn't have a great system in place to treat it so I am doing anything I can! Let me know if you have any thoughts on any of this.
- I'm going to post this on some other threads to see if it get's any responses because I have read case studies about people who have failed the same treatments as myself and have also failed with Pristinamycin. If anyone is out there and has heard of a similar case/ been through this/ dealt with all of it PLEASE, PLEASE reach out to me. I know it sounds weak but it has taken it's toll on me mentally as well as physically.
UPDATE: Just finished up with the ID Doc this morning. They were unable to do sensitivity testing, wasn’t clear why, perhaps they just didn’t actually have the means to do it. I’ve been on Docy for 2 weeks now and symptoms are very minimal, slight irritation at the tip. I received some info that Minocycline might be a better option so I shared this with my Doc, he prescribed 1 Month of it. I will come back in 6 weeks and retest and he said if that doesn’t eradicate it he will see what the steps are to obtain Pristinmycin. My Doc is open to suggestion and said I can call or email him if I find any other treatments to try, so if anyone has dealt with this with success please let me know.
In case anyone is following this, here is an update: went to Infectious Disease today, they took all the necessary samples, which included urine and swabs (ouch). Sent everything off for resistance testing. In the meantime Doc put me on 2 more weeks of Doxy. Symptoms are still the same, purulent discharge in the morning, slight watery discharge throughout the day, painful urination, pain/itching at top of penis.
Will update again once the resistance testing is back.
If anyone is going through or has gone through anything similar please feel free to message me.
They had issues treating my NGU and did sensitivity testing, ultimately it made to my prostate and they finally got it with lexofloxacin.
My point is that sometimes it can take a while to get a treatment that works. I had about 5 different antibiotics prior to the one that worked on my prostatits, and I figured this was going to turn into a chronic condition, but it didn’t. Have faith they will get it figured out
1)U need an antibiotic sensitivity test for the bacteria.
2)your id specialist should know what to do