Chronic sudden insomnia for 1 year now and ongoing.

steph847

Hi,

I have had weird health problems over the years but to make a long story short, almost one year ago to this day I have developed sudden chronic insomnia.  My Neurologist has tried Ambien, Melatonin, and a host of other meds for the insomnia.  Nothing worked.  I do not feel physically tired.  I have symptoms which include, burning all over at times, a tingly feeling throughout my whole body at times, not feeling certain sensations like pain, cold or hot...  I was thought to have MS 5 years ago as I have lesions in my brain but yearly MRI's prove that nothing has changed.  Went to Mayo 5 years ago and was told I did not have insomnia.

So one year ago, I develop an attack.  My first symptom was burning all over, then the horrible insomnia.  It was like I went from sleeping like a baby to not being able to fall asleep at all.

So my Dr put me on Temazapam, which does help me sleep, but its a light sleep.  I take 30 mg of that PLUS 1 mg of Alprazalam (generic xanax).

I had a sleep study done about 10 months ago (2 months after onset of insomnia) and it showed lots of sleep spindles and a lack of deep sleep; only reached stage 1 and 2 of sleep.

My fear is Fatal Insomnia.  :(   I fear this because I literally cannot sleep at all on my own.  I have tried CBT, seeing a psychiatrist and even she is puzzled as she had me on Seroquel, and a bunch of other meds to help me sleep and nothing took effect, even at high doses.  The only thing that works is in the "benzo" class.

So do you think I could have fatal insomnia?  I do not have a family history of this rare disease, but the sudden insomnia is puzzling and like I said, its been one year now....

I am 33, female and have 3 children whom I love dearly.  I am scared of this disease.

Thank you for you time.

Steph

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