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Rhythmic Movement Disorder, Can't take it anymore

Hello,

Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!
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Avatar universal
Ana333,
I am dealing with the same issue. My 22 month old son has been rocking since 12 months old and I am soo "tired" of this. Has your son been better? Did you get helpful techniques?
Helpful - 0
Avatar universal
I am 46 and have symptoms of RMD (Rhymic Movement Disorder). I appreciate your sharing.  I appreciate the fact you got help and explained how you have been helped. I want to bring the ADD issue with my psychiatrist. Janine
Helpful - 0
Avatar universal
I am 46 and have symptoms of RMD (Rhymic Movement Disorder). I appreciate your sharing.  I appreciate the fact you got help and explained how you have been helped. I want to bring the ADD issue with my psychiatrist. Janine
Helpful - 0
Avatar universal
I've had this since I was born. So did my uncle. He taught me that if I lay on my stomach and roll one of my legs that it helps with the need to have to do it. I did that when I was younger at spend the night parties. I am now 28yrs old and I do this for hours to go to sleep. It's so relaxing. I actually go to bed early to do it and stop during the day when I'm home to go to my bed and do it. Music has to be on too. So glad to hear others have it too and I'm not alone.
Helpful - 0
Avatar universal
Our 3 year old son seems to have RMD!  He sits up and bangs his head against the wall (it started in his crib from 6 months)! He has rubbed a patch of hair of the back of his head (we get asked about it all the time)!  He does it to fall asleep, if he wakes in the night and when he wakes in the morning (sometimes 6am or earlier)!  It's very loud (sounds like a jack hammer) and wakes my husband and I up!  We have recently propped up ANOTHER very thick foam mattress against his wall (he now has 2) to cushion the sound which seems to be working (he used to be able to still make a loud noise with one mattress)!
We were told he would stop after a certain amount of time but after 2.5 years he shows little sign of stopping!  
A friend told us about a possible link with Additive 160b (also called Annatto, Bixin or Norbixin it's a 'natural' yellow food colouring) which can cause head banging.  It can be in cheese, margarine, snack foods, beverages, cereals and yoghurt! From peoples comments when 160b has been eliminated from their diets the head banging has all but stopped!  I've looked at what he's eating but can't find anything with this additive in it but wonder if it started when he was younger and was having baby yoghurt which contained the additive and now it's just become a habit!
Tomorrow we are going to a Naturopath to see if he can suggest anything!  Drugs are definetly not an option so we are looking at other possible causes and solutions!  
Helpful - 0
Avatar universal
Hello

I am 24 years old and ever since I was able to crawl I have rocked like all fours back and forth repeatively hitting my head off my arm but I must have trained myself to do that because as a child from what my mother has told me I was taken out of my cot due to severely hurting my head and causing major bleeding because I was hitting me head of the bars and wall. As a adult I find it very difficult to sleep if I don't rock. If I go to sleep with or without rocking I find myself waking up hours later with pain in my legs as iv been rocking for so long iv cut of the circulation in my legs. I have gone to see my local GP and sw has referred me to the neuroscience department a James cook hostipal Middlesbrough England as I don't know where you are based. as he has never come across this before and was concerned abit the damage it could be cause to my head and brain.

I will write back after the appointment on 6/9/12 with what they say.
Helpful - 0

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