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623944 tn?1244035490

All is not what it seems!

Well... saw the neurologist today, going in prepared for him to tell me "You don't have P.O.T.S, it's all because of your thyroid and osteoarthritis"
Lesson learned. He did tell me I don't have P.O.T.S., but he feels its some kind of Autonomic Nervous System Disorder. No I have to get an EMG, Skin Biopsies of my leg (3), Neuro cardio autonomic reflex with and without tilt (tilt table test) and a sweat test. Not to mention blood and urine tests. ANA, Rhumatoid factor, HIV, Hep, CBC w/differential, thyroid antibodies, metoboloc panel, B-12, Lipid profile. sed rate, c-reactive and a few more that I don't know what they're for.
And all this on Dec 22nd.

He poked my skin with a pin in several places and I didn't feel some of them, he had me push and pull with hands arms feet and legs, and the gait test. When he had me stand still with my eyes closed, I started to fall to my right and lost my balance.

I thought for sure I was going to go see my primary on Tuesday and he was going to tell me "we know what's wrong, here's what were going to do to help you start feeling better"

I'm "depressed" about this turn of events.
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623944 tn?1244035490
This is the list of all the tests. Not sure what some of them are for. I also didn't feel some of the pin pricks in my feet.

ANA BLOOD
ANTI ENA ID
CBC + AUTO DIFF
C-REACTIVE PROTEIN (CRP)
COMP METABOLIC PANEL
CRYOGLOBULIN QUAL BL
GLUCOSE TOLERANCE 2H
HIV AB 1&2 SCREEN
HEP REMOTE PANEL BL
MONOCLONAL PROT BLD
RHEUMATOID FACTOR BL
SED RATE
VITAMIN B12 BLOOD
MONOCLONAL PROT UR
PARANEOPLAST AUTOABS
MICROSOMAL AB BLD
LIPID PANEL BASIC

EMG(NEURO/NI)
NEUROMUSCULAR HEALTH STATUS
NEURO CARDIO AUTONOMIC REFLEX W/WO TILT
NEURO QSART
SKIN BIOPSY FOR NEUROPATHY/CNL


Helpful - 0
393685 tn?1425812522
Sounds like your having a complete blood panel ran. That may be something to help understand what's going on.

For some reason you mentioned the off balance thing with your eyes closed.

I think Kitty9309 and Laura1967 had this and they were tested for Lyme disease. Had anyone thought of that?
Helpful - 0
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