Any other Hashimoto people grain-free?

[hashi53]

In my exhaustive reading anything I can find on Hashimoto's it seems many are grain-free with the idea that grains can cause inflamation in autoimmune suffers, maybe not all but any way...I am eating buckwheat instead of rice or other nongluten grains I was using...my stomach seems less distended and that makes me happy...I have hated that pregant look for years. Will keep you posted.

[hashi53]

Lazy,
I had my first appt with an endo about 18 months ago...she slowly upped meds every time I saw her...then last summer she left and her PA thought it would be a good idea to do a sonogram, they found a nodule and i had surgery the end of September. The surgeon said he took 1/4 of my thyroid due to Hashimoto's. He said those words. I didn't make it up.

Five years ago a Doctor said he thought I might have hashimoto's but nothing was done until like I said another doctor reffered me to an endo.

I have a friend in my area who felt dreadful for years and then she finally ended up at an endo. and she had all but two buds removed to cover her parathyroid and what was the diagnosis? Hashimoto's.

I am thrilled to learn all I can about thyroiod disease and Hashimoto's but i don't think it is necessary to be condescending to each other we have enough to deal with day to day.

Peace.

[LazyMoose]

Those of us that end up with a succesful thyroid treatment plan have learned about our condition, this means asking for and keeping copies of all lab work (your right and the law). This is essential.

You need to ask them why. Removing the thyroid is only generally practiced for Graves hyper thyroid not Hashimoto. This is a fact, not an opinion of mine. Dont just take their word for it.

Sorry for being so straight forward, I'm not so sure you totally understand my last reply. Upping thyroid med with Hashimoto is normal. We all 'up' the med dose till the thyroid dies off from antibodies over a course of 10-30 years, then med is stabilized as we are totally dependent on it. Did they not tell you this?  Many Docs do not communicate well.

: )

LM

[hashi53]

Lazy,
My TSH was high, if memory serves 6 something...and that is why my endo upped my Levoxyl from 112 to 125 and she discussed that it was too bad the surgeon didn't removed the whole thyroid instead of 1/4. she ordered another sonogram in a couple months to take a look again at how it is doing.

[LazyMoose]

Your question, yes many people feel better without gluten, with or without Hashimoto. But first you need to understand if your thyroid is being treated optimally. Digestion and thyroid is about T3.

Many on T4 meds only have IBS, acid reflux, constipation, bloating - that go away after T3 is elevated above T4. But it seems endos would rather send us to a gastroenteritis to further drain our pocket books instead of looking at T3. Been there, done that. Fixed it by researching myself. The 'abuse' of  'practicing' Modern Medicine has become a joke.

[LazyMoose]

Welcome, "hashi53",  your new here!-  (Member since Jan 2011).

Lesson #1 about thyroid, don't just believe all doctors thyroid opinions without researching your issue.

Many times they say labs are normal when they are not, and no all patients learn about desiphering their lab results.

There is plenty of proof that thyroid lab ranges are to broad for the specific individual. Its an average of the population and no one knows where your body's optimal levels were before thyroid issues arose. Posting your lab results here can help you understand, were doctors fail to communicate this with you due to their biased opinions or lack of
knowledge - scary but true.

So you must have had elevated thyroid antibodies along with hypothyroid symptoms that led to the Dxing of Hashie.

With Hashimoto disease, Thyroid antibodies slowly destroy the thyroid gland , that is what they do to all of us with this condition. So most slowly increase meds over the years to offset the slowly progressing lack of thyroid hormones. And most Hashis patients develop nodules. It is the antibodies that deterierate the thyroid, not the nodules. Some people without antibodies can actually have thyroid nodules!

Its not very common, (very uncommon actually) to have part of your thyroid removed due to Hashimoto.  Well, unless your nodules were huge and could not be removed without part of the gland itself.

The 'Free T3' test, which most docs dont do unless asked, will reveal T3 levels. T3 levels effect digestion. Just getting TSH and T4 tested is not enough. T4 is converted to T3 in effiecient bodies. With part of your thyroid missing , your not as effiecient as your conversion process once was.

[hashi53]

I am seeing an endocrinologist and taking Levoxyl 125 and was told by the surgeon who did the partial thyroidectomy and my endo that i have Hashimoto's, that is what caused the nodule that destroyed 1/4 of my thyroid.