Avatar universal

Any success TT stories?

Hello all, For the last 2 weeks I have been reading blogs here everyday regarding issues all thyroid related. In December I had an US for a 4cm nodule on the right side of my thyroid. The FNA results showed definitive diagnosis hyperplastic nodule and Follicular neoplasm. This means it could either be the former or the latter. Anyway, the Endo gave me a choice between removing half or all of the gland. At first i opted for just half, but I am scared that if it's cancer then that means a 2nd surgery. The surgeon recommended to take out the whole gland (He said upon feeling with his fingers, tiny nodules on the left side) The Endo and surgeon are both from UCLA, so i kinda trust them. I am scheduled for surgery in one month. I AM VERY SCARED!!! Not about the pain, I can deal with that, not about the surgery at all, but about how LOONNNGG it seems to take everyone to get their meds right! I am not on any medications now, I am very healthy, jog everyday and I can't wrap my mind around inevitable "hypo hell" symptoms people talk of: Mood swings, fatigue, depression, wt gain, etc. My question is, once the medication is stabilized, are you ever back to normal? If anyone can add their stories, advice, please let me know. Thanks so much in advance!!
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Avatar universal
Great find, we can all use encouragment to inspire success.  Wonderful you have a supportive hubby, hope he continues to support you with all his heart.  

After my TT, the better I slept the better I felt.  Everything went well for me after surgery, up to approx 7/8 weeks (long story), Yes, I'm having 2/3 symptom issues in hyper mode now, but nothing compared to prior surgery.  

You stay positive, you will begin to feel better in time, try to get plenty of rest, wishing you well on your journey.  
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Avatar universal
Thank you for those words of encouragement.  My husband has been so great with this whole ordeal.  He is my support.  I love him to death.  I started the synthroid a week ago, have been feeling tired almost everyday.  I find that when I get a good night's sleep, I last longer through the day.  Sleep is hard to come by.  Have my good nights and have my bad nights.  I am trying to stay positive.  
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139126 tn?1255036991
Everyone is different and I know it takes some people a long time to find the perfect balance with their meds.  I had problems with the surgery (short term) but at 7 months post TT I feel perfectly fine.  I did not have cancer.  I actually felt my meds were just about where they were supposed to be at around the 4-5 month mark.   I also didn't have a terrible time getting them regulated.  The first 2-3 weeks for me were tough but that was more about the surgery and the shape I was in prior to my TT.  I had lost a lot of weight (down to 90lbs) and had no reserve to heal quickly afterwards.  But 6 weeks after my TT I was hiking and kayaking in Maine.   Not at the level I was used to but I was out there doing it.  The most important thing for me were the regular conversations with my doctor and his willingness to listen and test me when I told him I was feeling unwell.  We tweaked my meds as needed.  That, for me, really made all the difference in the world.  Again, everybody is different.   Keep talking to your doctor, pay attention to what your body is telling you to do, don't beat yourself up and know that you will feel normal again.   Good luck.
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Avatar universal
I had my thyroid out two years ago and I'm doing great!  I'm a long distance runner and the only time that I wasn't able to be physically active was towards the end of my hypohe//...the 6 weeks off meds prior to my RAI treatment.  I still walked everyday although it was tough. I got out of breath very easily just walking when right up to my TT I was running several miles a day. It's a tough time just getting those meds right, especially if you are active.  Try and find a doctor who is willing to work with you regarding how you feel and not a number on a piece of paper.  I've been very blessed with a great endo who lets me try all kinds of different things as long as I'm supervised.  I now take all different doses of synthroid but it works for me because I do expend a lot of energy everyday. Hang in there, it won't be long and you'll be feeling great.
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793305 tn?1493925518
Just keep remembering....this is doable...yes there will be rough days, but they probably won't all be rough...So take advantage on the good days and turn into a slug on the bad ones....and just keep thinking forward, because you will get there....You WILL get there.  You get tired, rest
You get cold, put an extra layer on.  Even on 90 degree days.
You get grouchy, apologize to you loved ones.
I apologized in advance...I'm going to be grouchy...I apologize for anything that I do or say in the near future...  : )  : )  
Hang in there.  and Holler if you need us.  
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Avatar universal
Thanks soooooo much for your words of encouragement! Redheadaussie, I've seen your name here and almost feel like I've been contacted by a celebrity! ;) I will keep all your stories in mind and I am so thankful for the internet. What other day and age are we able to reach out like this? Thanks so much. My fiance and I are planning a wedding this summer, he just got a job in Switzerland, I am to follow and was trying to imagine a life with this new diagnosis..kinda put a damper on all this good news. Anyway, you will see more of my postings as the surgery nears, I am sure...
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929504 tn?1332585934
My situation was similiar to yours...I had multi-nodules on both sides of the thyroid, one side having Follicular Neoplasm Cells and the other Hurthle Cells. Of course, I was recommended to have a TT due to the type of cells alone. My (3) fna's were all benign but the risk in not having the TT was scary. (i had three opinions, all surgeons) and I chose the last surgeon to do my surgery. I had surgery on 12/17/09 and the surgery took 3 hrs and my recooperation period went well. I was in the hospital overnight and went home the next morning. My neck was sore and a bit stiff but my biggest problem was the "calcium level" drop. Although i was given prescribed supplements to take the day after surgery (1000mg 2x daily), my calcium dropped on the 2nd day post surgery..I had tingling from head to toe, muscle spasms in my hands and feet and i was really uncomfortable but did not go to the hospital because i knew that i started the med's the day before and it would take at least that for them to kick in. On Sunday (the next day), I still had tingling and a little muscle spasms but not as much. AS the days went on, i startd feeling relieve and was ok. Now,I am 4 weeks post TT, My scar is wonderful (i have a pic on my profile page), it's barely noticeable..( My surgeon is very experienced). I had my blood work done on last tuesday and i my TSH was very high but my other levels were low..all due to the TT, however, i don't show symptoms, besides feeling tired. I started on "synthroid" 50mcg a week after my blood work was done (4weeks post TT) and I can say that "so far so good"..although it takes a while for the med's to be noticed, I will be on the look out for any abnormal changes and will bring it to my endo's attn asap. I was too scared and nervous to have the surgery but I know that God is my strength and of course he brought me through it and he will for you too. Be Blessed and i'm certain that all will go well for you.
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219241 tn?1413537765
Hi there. First of all let me just say, that the majority of people on this forum are not the success stories. We are often the ones who have had many issues regarding our thyroids and either can not tolerate the medication, or have other issues. You certainly won't see the people who are doing well on here. It's only the ones who need to feel supported who come on here.
  For example, I had a Partial in May 2007. My sister in law had a total thryoidectomy, also in May 2007. I went on to have huge amounts of trouble. Then in December 2007 had the right side taken out. I still, 2plus years later have trouble. Does my sister in law? NOPE!!!! Not a single day of a problem! Grrrrrrr LOL!
These support forums are for those who have trouble, not every person who has their thyroid removed has trouble. So, of course, you won't see them on this forum!

  To answer you other issues. I had a 4cm nodule also. If you have only half taken out the remainder will often 'pick up the slack' for the taken side. You may find you go a little hypo at first, maybe for a few weeks, but once the thyroid takes over the task as performing as a whole instead of a half, you shouldn't have any problems.

  Having both sides taken out is a huge decision. One not to be taken lightly. I personally wish I could have lived with just one side, but got a pre-cancer so it had to come out.

Don't be disheartened by the stories here. Learn from them. Be prepared. Then as you progress you will know what to expect. Many of us had no idea. Fear begets fear!


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Avatar universal

I had TT in July. There was no pain. I was scared  at first and the nurse kept telling me I would feel sore. Not pain. You will not feel it untill you eat. Try to eat with small amout of liquid or soft food. Don't worry about weight gain. You still need to keep exercise and watch yoru diet just like old days. The doctors are still trying to adjust my dosage. It went from 88 to 112 to 100. I think it is still too high. But, I do not have symptoms. Everyone reacts differently to the medicine. You will need to do blood test every other month or so to get the dosage right. The first year is tough. Good luck on your surgery.

By the way, I had one nodule and the doctor suggested to remove the whole thyroid, too. I checked the online information and found the reoccurence rate is quite high if you only remove half of it. I decided to remove the whole thing and then go on the radioiodine treatment.

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