... also, my GP (PCP) didn't really want me to do anything; I think he thought it would disappear over time. But being hyper over a long period of time can damage part of the heart, and for me, the carbimazole wasn't a long-term option because it can be toxic on the liver (pretty rare and regular blood tests mean that even if it is, it will rectify).
I could only find one person who had a toxic nodule that disappeared by itself. Researching further, I found that carbimazole will rectify the hyper state, but it's believed that, unlike toxicosis, a toxic nodule will revert to over-producing hormone once you stop taking the medication, which is why that recommend RAI regardless. If I had my time over, I may have stayed on the medication a little longer, although I'm sure the outcome will have been the same.
Best wishes on the researching and on your decision.
I went through similar just over two years ago; a very kind doctor looked at me seriously and ask if I wanted RAI or an operation.
'Which do you recommend and why" says I. 'RAI' says he 'it's quick and simple'.
I researched for ages and decided to have half the thyroid removed; the surgeon put me on carbimazole to bring me to a euthyroid state for the operation. I changed my mind at the last minute and had 15mci RAI November 2010.
Doctors vary on their opinions. My surgeon actually had the same operation and he was top of his field; even he said it was my choice. There can be complications with the operation; likewise with RAI because it's not an exact science, it can't be determined how, or when you might turn hypo (over 10 years 80% of patients go hypo, the majority of them within the first year). Also, there can be very slightly more possibility of exacerbated eye disease after RAI if you have Graves, although I'm sure that would be mentioned to you.
I had one 'hot' nodule (strange that they called yours 'warm'). I loved the carbimazole - finally able to sleep at night; however, within 4 weeks I was on my way to becoming hypo on it - I was getting sleepy driving home so had an early blood test done. The meds accumulate.
I think they're getting a little more precise with RAI dosages. I was lucky to stay euthyroid for a year, and am now just on low dose synthroid. There aren't a lot of us here that've had toxic nodules - check the search engine and you'll find some others who've been through similar.
Yes, you are right, except Struma nodosa toxica differs, it means more toxic nodes and can exist simultaneously with imunothireopathy
I appreciate both the fact that English is not your native language and that you are trying to be helpful. However, I think your medical terminology, most of which is Latin, needs translation into common English for most of our members to benefit much from your information.
I assume "Struma nodosa toxica or Adenoma toxicum glandulae thyreoideae" is a toxic nodule or toxic adenoma, "Imunohyperthyreosis" is Graves' disease and "thyreostatics" are antid-thyroid meds (ATMs)???
We're not doctors...we need layman's terminology.
Please post the reference ranges on your FT3 and FT4. Ranges vary lab to lab and have to come from your own lab report.
There's not a lot of comfort from a doctor that treats after reading a few paragraphs on a complex issue, is there?
Please tell us all your symptoms.
Why did he give you a beta blocker? Have you been having tachycardia (rapid heart rate) or heart palpitations (pounding heart beat) or high BP?
If your diagnosis ist Struma nodosa toxica or Adenoma toxicum glandulae thyreoideae or it is Imunohyperthyreosis which can not be regulated with thyreostatics (lasting more than 1 year despit thyreostatic therapy or after withdrawel thyreostatic th) ,than is a better choice radioiodine therapy