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Hashimoto's Toxicosis and going hypo and hyper
This is kind of a survey/question to those of you diagnosed hypothyroid Hashimotos but who feel or actually are cycling into a hyper (not hypo) state. Do you seem to have symptoms of hyper like red in the face, hi b.p., shakiness, depression, hot all the time not hot flashes, hot tempered, double vision or poor vision etc etc but yet you feel run down, tired, fuzzy mentally, slow gastro processes so you go to the doctor and he/she says you are right in target range for tsh below 3.0 or thereabouts and great free t4 free t3 levels and all else looks good so maybe they raise your thyroid med dose thinking you're still a little hypo (not hyper) or have you lower dose in case you are actually hyper and for a short while you feel better or feel worse right away so now you don't know if you're up or down ? Yes, that is a run on sentence but hopefully I'm clear - here is my theory - maybe you have gone so hyper your body is shutting down or slowing down to protect itself or it's just breaking down altogether - Has anyone had this experience and if so what do you do about it or what does your doctor do or say to help you? And if our thyroid gland worked normally would pituitary and other supporting systems output consistently same amounts ? I know this is a good question for Dr. Lupo as he actually believes there is a phenomena as Hashitoxicosis unlike my past 3 endos. I'm curious what you folks think about this and what your experiences have been.
Hi Terri Thyroid
" I now have a wonderful internist who is very knowledgable about all forms of thyroid disease and attends conferences frequently about these issues "
who is your Dr. I've seen Endos and i think they think i am making those symptoms up. Even though my blood test shows -2-3 Tsh when i was on the Synthroid or Levoxyl but my symptoms are shown hyper. I told my Dr and they don't believe me! I am desperate searching for a Dr who have seen the case like me and know how to deal my condition. Is your doctor in LA area?
" I now have a wonderful internist who is very knowledgable about all forms of thyroid disease and attends conferences frequently about these issues "
who is your Dr. I've seen Endos and i think they think i am making those symptoms up. Even though my blood test shows -2-3 Tsh when i was on the Synthroid or Levoxyl but my symptoms are shown hyper. I told my Dr and they don't believe me! I am desperate searching for a Dr who have seen the case like me and know how to deal my condition. Is your doctor in LA area?
omg!. I have exact symptoms as you described. I've been on and off the synthetic meds never feel right.
As soon as they put me on synthroid and Levoxyl even with low dosage of mcg, i would feel hyper like heart symptoms. "Not racing heart. Pressure on the heart. A dull ache. Skipped beats and once in a while a little rev up for two seconds. A feeling that the heart is way past tired, and ready to just stop. Normal blood pressure and heart rate" exactly as you described. Then when i am off the meds, then i feel tire, chills, depress. My question is even with the hyper symptoms, do you still keep yourself on the sythetic meds? I have hashimoto too? is is why it causes hyper and hypo feeling? What have your Dr. done for you so far? Please help! I've been suffering for last years, and I am not sure i should take the meds or not anymore, because i feel bad either way.
As soon as they put me on synthroid and Levoxyl even with low dosage of mcg, i would feel hyper like heart symptoms. "Not racing heart. Pressure on the heart. A dull ache. Skipped beats and once in a while a little rev up for two seconds. A feeling that the heart is way past tired, and ready to just stop. Normal blood pressure and heart rate" exactly as you described. Then when i am off the meds, then i feel tire, chills, depress. My question is even with the hyper symptoms, do you still keep yourself on the sythetic meds? I have hashimoto too? is is why it causes hyper and hypo feeling? What have your Dr. done for you so far? Please help! I've been suffering for last years, and I am not sure i should take the meds or not anymore, because i feel bad either way.
Members have replied to posts about this concept several times. I do so again only to prevent members from running across this post and wondering if this could really be true.
The whole concept seems to be based on the belief that Hasimoto's is due to gluten getting into the body due to the problem of "leaky gut". Then the body supposedly produces antibodies to attack the gluten molecule. Also, since the gluten molecule is supposedly very similar to thyroid gland tissue, the antibodies also attack the thyroid glands. There is never any explanation of why there are actually two different antibodies involved with Hashi's,, TPO ab and TG ab. Neither has there been any scientific data provided to prove that the proposed treatment eliminates the antibodies, even though tests before and after treatment would be relatively easy to do. Instead, all that is provided is anecdotal information.
So until statistically valid proof is available, I'll continue to question if this is only a new way of making additional money from thyroid patients, through extensive testing and the sale of supplements available only from practitioners.
The whole concept seems to be based on the belief that Hasimoto's is due to gluten getting into the body due to the problem of "leaky gut". Then the body supposedly produces antibodies to attack the gluten molecule. Also, since the gluten molecule is supposedly very similar to thyroid gland tissue, the antibodies also attack the thyroid glands. There is never any explanation of why there are actually two different antibodies involved with Hashi's,, TPO ab and TG ab. Neither has there been any scientific data provided to prove that the proposed treatment eliminates the antibodies, even though tests before and after treatment would be relatively easy to do. Instead, all that is provided is anecdotal information.
So until statistically valid proof is available, I'll continue to question if this is only a new way of making additional money from thyroid patients, through extensive testing and the sale of supplements available only from practitioners.
I am a Nutritionist. When you are diagnosed with Hashimoto's, you have an auto-immune disease. You need to find a Chiropractor that deals with blood work and or does muscle testing. They can find the root cause of your auto-immune disease and you will be amazed how fast you get better.
Your auto-immune disease is what causes the thyroid to become disturbed. This in turn causes the reaction to hypo and hyper thyroid. Find the root cause, correct the issue.
About Synthroid. It is a synthetic product. If at all possible you need to go to a natural product. Armour is a natural product. When you put a synthetic product in your body, you just give it something else to battle. There is a pharmacy in Madison, WI called Women's International Pharmacy. #800-279-5708. They can compound something called P-Thyroid. You need a prescription from your DR.
I was diagnosed with Hashimoto's thyroiditis about 10 years ago. I had my 1st bout with thyroid problems after my daughter was born 32 years ago. That lasted 4 years. It came back with a vengence 10 years ago. I decided to get into nutrition because the regular doctors couldn't really help me. I see an MD who is a Nutritionist as well. We resolved the auto-immune problem and I no longer take medication!!!!!!! Feed the body, heal the body. Muscle testing can get to the root cause. Mine happened to be scars! Scars can capture the electrical signal sent from the brain at any point in your life. They then fire randomly and cause other issues. Mine just happened to be thyroiditis.
Some good books to read are: "Solved, the Riddle of Ilness" by Stephen E. Langer, M.D. or "Hypothyroidism Type 2" by Mark Starr, M.D.
Hope this gives Hope to you.
JJ
Your auto-immune disease is what causes the thyroid to become disturbed. This in turn causes the reaction to hypo and hyper thyroid. Find the root cause, correct the issue.
About Synthroid. It is a synthetic product. If at all possible you need to go to a natural product. Armour is a natural product. When you put a synthetic product in your body, you just give it something else to battle. There is a pharmacy in Madison, WI called Women's International Pharmacy. #800-279-5708. They can compound something called P-Thyroid. You need a prescription from your DR.
I was diagnosed with Hashimoto's thyroiditis about 10 years ago. I had my 1st bout with thyroid problems after my daughter was born 32 years ago. That lasted 4 years. It came back with a vengence 10 years ago. I decided to get into nutrition because the regular doctors couldn't really help me. I see an MD who is a Nutritionist as well. We resolved the auto-immune problem and I no longer take medication!!!!!!! Feed the body, heal the body. Muscle testing can get to the root cause. Mine happened to be scars! Scars can capture the electrical signal sent from the brain at any point in your life. They then fire randomly and cause other issues. Mine just happened to be thyroiditis.
Some good books to read are: "Solved, the Riddle of Ilness" by Stephen E. Langer, M.D. or "Hypothyroidism Type 2" by Mark Starr, M.D.
Hope this gives Hope to you.
JJ
A couple of observations for you. First, your Vitamin D is way too low. Hasn't your doctor told you to take D supplements? You need to get the Vitamin D level up toward the middle of the range. Second, can that T4 result actually be that low? Please double check the test result.
What medication are you taking and what is the daily dosage? On what basis has the doctor decided to change your meds over the last 6 years? Was it based on your TSH levels? Do you know if you were tested for the biologically active thyroid hormones, Free T3 and Free T4?
What medication are you taking and what is the daily dosage? On what basis has the doctor decided to change your meds over the last 6 years? Was it based on your TSH levels? Do you know if you were tested for the biologically active thyroid hormones, Free T3 and Free T4?
Hello,
I have been in the same boat as many of you have. I've been trying to get on the right meds, doses, and other meds to help the systems from other meds for almost six years now. I just received the last round of 22 various blood tests and the ones that stick out in my mind and would love some feedback and/or thoughts or concerns.
TSH: 8.7, (normal 0.450 - 4.500),
Vitamin D -25 Hydroxy: 22.4 (normal 32.0 - 100),
AM cortisol: 32.6, (normal 6.2 - 19.4),
PM cortisol: 19.1, (normal 2.3 - 11.9),
Thyroid antibodies: 140 (normal 0 - 34),
Thyroid Peroxidase: 215 (normal (0 - 40),
Thyroxin -T4: 0.23 (normal 0.83 - 1.77),
Reverse T3: 39 (normal 90 - 350).
My Dr. had ordered more, but Lab Corp. either lost the work or can't find the paperwork. Who knows, but I won't be going back there again.
I know exactly how Beenewt3 and Terri have felt. I have been trying to find the right combination for over 5 years and I'm not there yet. What has been the biggest struggle for me is the weight gain, which hit me hard and fast. I do pilates weekly and changed my diet and I have actually gained a pound or two here and there, but I have not lost a signal pound. I also sweat like I just stepped out of the show and this continues all day long. I''m at a crossroads at the moment. A friend of mine who has Hasimotos goes to a really good doctor, an endocrinologist, and she recommended that I make an appointment with him, Unfortunately, his first avaialble is not until December, but I take this as a good sign. I'm on the list in case there is a cancellation. Well, I have taken up enough of ya'lls time, but if anyone has had numbers like what I posted and or know exactly what they mean, please don't hesitate to contact me. I would really appreciate all of you that give a large amount of your time and support here help others.
gijane140
I have been in the same boat as many of you have. I've been trying to get on the right meds, doses, and other meds to help the systems from other meds for almost six years now. I just received the last round of 22 various blood tests and the ones that stick out in my mind and would love some feedback and/or thoughts or concerns.
TSH: 8.7, (normal 0.450 - 4.500),
Vitamin D -25 Hydroxy: 22.4 (normal 32.0 - 100),
AM cortisol: 32.6, (normal 6.2 - 19.4),
PM cortisol: 19.1, (normal 2.3 - 11.9),
Thyroid antibodies: 140 (normal 0 - 34),
Thyroid Peroxidase: 215 (normal (0 - 40),
Thyroxin -T4: 0.23 (normal 0.83 - 1.77),
Reverse T3: 39 (normal 90 - 350).
My Dr. had ordered more, but Lab Corp. either lost the work or can't find the paperwork. Who knows, but I won't be going back there again.
I know exactly how Beenewt3 and Terri have felt. I have been trying to find the right combination for over 5 years and I'm not there yet. What has been the biggest struggle for me is the weight gain, which hit me hard and fast. I do pilates weekly and changed my diet and I have actually gained a pound or two here and there, but I have not lost a signal pound. I also sweat like I just stepped out of the show and this continues all day long. I''m at a crossroads at the moment. A friend of mine who has Hasimotos goes to a really good doctor, an endocrinologist, and she recommended that I make an appointment with him, Unfortunately, his first avaialble is not until December, but I take this as a good sign. I'm on the list in case there is a cancellation. Well, I have taken up enough of ya'lls time, but if anyone has had numbers like what I posted and or know exactly what they mean, please don't hesitate to contact me. I would really appreciate all of you that give a large amount of your time and support here help others.
gijane140
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