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IS THIS HOW YOU FEEL WITH HYPOTHYROIDISM?
Hey guys, lets compare notes.
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
Dear Bruce,
I recommend that you read "The Thyroid Solution" by Dr. Ridha Aram. It's available at any bookstore or online. It's extremely comprehensive and once you read it you will understand the science behind thyroid problems and the medications prescribed for the various things that go wrong. Also, since you live in Dallas, you might consider going to this doctor, who is in Houston, teaches at Baylor, and runs a thyroid clinic in that city. It's not as far as Florida !
I understand that you are frightened and exhausted. Me too. However, you are doing your body a disservice by changing types of meds and dosages all the time without giving your body time to adjust. The other responders are right when they tell you to start keeping a chart of your TSH, Free T4 and Free T3. Also build in which meds you are on and the dosage. This is the only way you will get a picture of what your body is doing so that your doctor can adjust the meds accordingly.
I had tinnitus and spent a lot of time and $$ on neuro-ortolaryngologists who misdiagnosed me. When I was finally diagnosed with thyroid nodules and went on proper meds, it mostly went away. When my meds were off, it came back. It's frustrating. But getting hysterical about it doesn't help. Different types of meds ( i.e. brand names, generic, Armour, T4-T3 combinations ) are very individual, as we all have different metabolisms to begin with. When it's very bad you might consider asking your doctor to prescribe a small dose of Xanax to take before bed to relieve the ringing when you sleep.
Hashimoto's is an autoimmune disorder, and yes it's permanent. My sister has it. Part of her discomfort initially was that she was allergic to wheat, and this is quite common with Hashi's. It contributed to her achey joints and muscles. She went off wheat for about a year, then it was gradually reintroduced into her diet. She is now stable on her meds for quite some time and is ok. Unfortunately w/ Hashi's the body goes back and forth between hypo and hyper as the thyroid becomes dysfunctional. She had 4 young children and got through it. So will you. Her doctor is also in Houston.
From your picture, it looks like you have a young child, and I can imagine the responsibility of being a family man is adding to your distress. Stress is NOT your friend, Bruce...try not to add more by beating yourself up on top of everything else. Hang in there, buddy, and read that book.
I recommend that you read "The Thyroid Solution" by Dr. Ridha Aram. It's available at any bookstore or online. It's extremely comprehensive and once you read it you will understand the science behind thyroid problems and the medications prescribed for the various things that go wrong. Also, since you live in Dallas, you might consider going to this doctor, who is in Houston, teaches at Baylor, and runs a thyroid clinic in that city. It's not as far as Florida !
I understand that you are frightened and exhausted. Me too. However, you are doing your body a disservice by changing types of meds and dosages all the time without giving your body time to adjust. The other responders are right when they tell you to start keeping a chart of your TSH, Free T4 and Free T3. Also build in which meds you are on and the dosage. This is the only way you will get a picture of what your body is doing so that your doctor can adjust the meds accordingly.
I had tinnitus and spent a lot of time and $$ on neuro-ortolaryngologists who misdiagnosed me. When I was finally diagnosed with thyroid nodules and went on proper meds, it mostly went away. When my meds were off, it came back. It's frustrating. But getting hysterical about it doesn't help. Different types of meds ( i.e. brand names, generic, Armour, T4-T3 combinations ) are very individual, as we all have different metabolisms to begin with. When it's very bad you might consider asking your doctor to prescribe a small dose of Xanax to take before bed to relieve the ringing when you sleep.
Hashimoto's is an autoimmune disorder, and yes it's permanent. My sister has it. Part of her discomfort initially was that she was allergic to wheat, and this is quite common with Hashi's. It contributed to her achey joints and muscles. She went off wheat for about a year, then it was gradually reintroduced into her diet. She is now stable on her meds for quite some time and is ok. Unfortunately w/ Hashi's the body goes back and forth between hypo and hyper as the thyroid becomes dysfunctional. She had 4 young children and got through it. So will you. Her doctor is also in Houston.
From your picture, it looks like you have a young child, and I can imagine the responsibility of being a family man is adding to your distress. Stress is NOT your friend, Bruce...try not to add more by beating yourself up on top of everything else. Hang in there, buddy, and read that book.
I have been on 37.5 levo for almost 6 weeks now. This is the worst ive ever felt, ever. I've been through some pretty tough things in my life but this is the hardest.
I have not slept solid in 5 weeks. I have nightmares. My body aches, I'm hot, I'm dizzy. I saw a guy today who is an expert in armor etc. He is an internal medicine guy who has hashimotos. He told me he thought .30 armor would be too much for me.
I'm still planning to go to mayo clinic in Florida. Too many weird symptoms for such barely low levels.
This is really weird. I had a protein synthesis test with electrofusion which came back positive yet I have no other symptoms. In English this means I had a preliminary cancer test positive, but nothing else points to cancer. Everything else is normal. They think hashimotos made the test positive.
I have not slept solid in 5 weeks. I have nightmares. My body aches, I'm hot, I'm dizzy. I saw a guy today who is an expert in armor etc. He is an internal medicine guy who has hashimotos. He told me he thought .30 armor would be too much for me.
I'm still planning to go to mayo clinic in Florida. Too many weird symptoms for such barely low levels.
This is really weird. I had a protein synthesis test with electrofusion which came back positive yet I have no other symptoms. In English this means I had a preliminary cancer test positive, but nothing else points to cancer. Everything else is normal. They think hashimotos made the test positive.
I know exactly what you meant when you explained your day. My day starts out just about the same with my ears ringing so loud and weakness, dizziness and I have extreme anxiety. I have actually come to the conclusion i am going crazy and will never feel good again. I have suffered with thyroid problems since i was 21 and now i am 48 and menopausal. Mine started off after my 1st son was born. I was so hyper that i weighed 98 lbs. leaving the hospital after giving birth. The doctors would not listen to me. I kept telling my OB doctor that i was dying. He said oh you just had a baby you should feel bad. By the time I finally by the grace of god ran into a friend of my moms that was a nurse told me what was wrong and that i need attention fast. By the time I finally got to my appointment in Atlanta ga. i was having a thyroid storm so bad that i could have died. My child was only 2 months old. Sorry, could go on and on, needless to say ive had a thyroidectomy in 2006 and still am feeling like hell. These doctors dont know what they are doing or either this disease is just something that to me is just pure HELL.
sorry , didnt see your earlier post and yes i was told that i had hashi and graves before the thyroidectomy. Thanks for the answer, i was not sure if i would always have hashimotos after the surgery. I now think sometimes that i shouldnt have had the thyroidectomy but i was developing a large goiter and having trouble swallowing. Good luck to you , i am so sorry for the way you feel too. I would not wish thyroid problems on anyone. I am so worried about my three sons developing it. Two of them are showing some symptoms, I think or maybe i am just so paranoid. God Bless......
I am told that you would still have the hashi's if the thyroid is removed. I dont understand why i know so many people with this disease yet none of them have the problems that I have.
I seeked out this board because of the problems. I guess people that dont have any problems wouldnt be on here...
I seeked out this board because of the problems. I guess people that dont have any problems wouldnt be on here...
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