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IS THIS HOW YOU FEEL WITH HYPOTHYROIDISM?
Hey guys, lets compare notes.
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
I was diagnosed with hashimotos a year ago. I was on a small dose of levo, which was increased 9 days ago to .050. The Dr. told me that once my tsh gets to 2.0 i will feel normal. my Tsh last checked 9 days ago was 7.93. T3 was low too.
So I go to bed about 10 pm after I drink about 2 small beers. I wake up about 9 am and My ears are ringing off the hook. I feel horrible. I do not want to get out of bed. I am still exhausted. I take my LEVO and I lay there for about 30 minutes.
9:30 I roll out of bed. I am EXHAUSTED. Im foggy, im shakey. My wife asks me if I want anything to eat, I decline. I grab a water bottle and I drive to the gym. At the gym I feel HORRID. I dont have any energy. I sometimes will stand there and look at a machine and think "next time".
So I get my half hour at the gym, i head home. I go home and eat something small and I lay on the floor for the next two hours and think to myself "I wonder if the 900 doctors I saw missed something".
2:00 PM - I start to feel better, I know have a little energy, I play with my kids as much as i can because I know any minute im going to feel crappy again.
8:00 PM - Ears are now ringing again, im foggy again, im shakey, and I just want to lay down on the floor and I have to tell my wife I dont feel good.
10:00 I finished a glass of beer and im heading to bed. It was a very joyful day, I felt acceptable (not good) for 8 hours.
Am I fooling myself thinking this is one day going to get better? Why Do I feel so crappy in the morning? Should I take my medicine earlier? Am I not taking enough? Is it something else?
BRuce
sick of being sick... i got that when i was ON thyroid... now that im off, its a whole new ball game :(
Redhead,
It was weird. They did a spinal tap on me to positively rule out cancer, ms etc. They puncture your spine to get the fluid out. As a side effect, my ringing got worse, I had this horrible headache. They made me go back to the hospital to get the blood patch to seal the hole and help it clot. The headache went away after about 20 minutes, however it was the most painful thing ive ever done. Even more painful than gallbladder surgery. It was scary too because they had this huge needle in my back and the idea was to take blood from the arm and put it in the back to patch the hole except they could not get any blood from my arm. So I'm sitting there with this huge needle in my back waiting for them to draw the blood. It was horrible.
It was weird. They did a spinal tap on me to positively rule out cancer, ms etc. They puncture your spine to get the fluid out. As a side effect, my ringing got worse, I had this horrible headache. They made me go back to the hospital to get the blood patch to seal the hole and help it clot. The headache went away after about 20 minutes, however it was the most painful thing ive ever done. Even more painful than gallbladder surgery. It was scary too because they had this huge needle in my back and the idea was to take blood from the arm and put it in the back to patch the hole except they could not get any blood from my arm. So I'm sitting there with this huge needle in my back waiting for them to draw the blood. It was horrible.
Hi Bruce,
I was just reading your list of symptoms above and I have most all of the same, with a few extra. I was reading an older post with the ringing in ears, I currently don't have that, but I can hear my pounding heart in my ears, and if it's hard enough, I feel a tremor in my eyes and it causes things to appear as if they're shifting, kind of like my eyes are dancing to the beat. I've not been diagnosed with thyroid disease, though I feel this is my problem.
My question to you is, did you have ringing in ears prior to your diagnosis? If so, was it followed by "Bell's Palsy", paralisis in certain areas of the face.
I have had that annoying condition 4 or 5 times, but each time the ringing came first, lasted a few days and was then followed by my eye twitching and "drawing", usually my left eye would feel like it would be drawn wider than the right, and i could feel the nerves contracting from my scalp. Crazy feeling and hard to describe. Each time I've had this it's always affected my mouth, one side would droop slightly and not move when I would purse my lips to spit... Does this sound familiar to you? Sorry for the long summary here, but it's frustrating and I so badly need a diagnosis, before I really do lose my mind.
thanks and Happy Holidays
I was just reading your list of symptoms above and I have most all of the same, with a few extra. I was reading an older post with the ringing in ears, I currently don't have that, but I can hear my pounding heart in my ears, and if it's hard enough, I feel a tremor in my eyes and it causes things to appear as if they're shifting, kind of like my eyes are dancing to the beat. I've not been diagnosed with thyroid disease, though I feel this is my problem.
My question to you is, did you have ringing in ears prior to your diagnosis? If so, was it followed by "Bell's Palsy", paralisis in certain areas of the face.
I have had that annoying condition 4 or 5 times, but each time the ringing came first, lasted a few days and was then followed by my eye twitching and "drawing", usually my left eye would feel like it would be drawn wider than the right, and i could feel the nerves contracting from my scalp. Crazy feeling and hard to describe. Each time I've had this it's always affected my mouth, one side would droop slightly and not move when I would purse my lips to spit... Does this sound familiar to you? Sorry for the long summary here, but it's frustrating and I so badly need a diagnosis, before I really do lose my mind.
thanks and Happy Holidays
Another Hashimotos guy here....agreeing with everything you and the others have said. I am 42. In the mornings I sometimes feel like I am a sticker on my mattress and need to be peeled off! I am three years into Hashis and proof that it does get better...BUT...it can hit you again at any time. I started taking vitamin D and that seemed to make a difference for me. Until recently I took a passive approach with my Dr and accepted everthing he said as gospel. I have been tracking my bloodwork and questioning all fluctuations, changes and trends. The downside to that is that he has become more passive....in fact I had to point out to him that one of the nodules on the remaining half of my thyroid is visible....I have an ultrasound appt today.
I forced myself to go to the gym....nearly killed me but after a good workout I feel much better.
I hope things are getting better for you...its a tough haul!
I forced myself to go to the gym....nearly killed me but after a good workout I feel much better.
I hope things are getting better for you...its a tough haul!
COMMUNITY LEADER
Here's the definition of blood patch:
"An epidural blood patch is a procedure by which your own approximately 15-20 mls of blood is taken and injected into the epidural space in the spine at the site of the spinal fluid leak.
The blood clots and seals the hole in the dura which stops fluid from leaking out. The procedure is used to relieve severe headaches caused when an epidural, spinal needle, or diagnostic lumbar puncture punctures a hole in the dura."
My daughter recently had to have one following an epidural for child birth.
"An epidural blood patch is a procedure by which your own approximately 15-20 mls of blood is taken and injected into the epidural space in the spine at the site of the spinal fluid leak.
The blood clots and seals the hole in the dura which stops fluid from leaking out. The procedure is used to relieve severe headaches caused when an epidural, spinal needle, or diagnostic lumbar puncture punctures a hole in the dura."
My daughter recently had to have one following an epidural for child birth.
What's a blood patch, Bruce?
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