Just when things are looking up . . . wham!

[utahmomma]

So, "clean" scan on Friday is what the radiologist told me.  There was some uptake in the salivary glands, a bit in the thyroid bed, some in the liver . . . all which he attributed to the radiation being removed from my system.  Okay, I can buy that.  So Friday and Saturday I was doing the whoopie dance.

This afternoon I finally got my thyroglobulin results back.  Two weeks ago it was at .2 - today it is at 1.4!!!!  That's a 700% climb in two weeks!  So, in between appointments (yeah, I work 7 days a week) I looked up some research studies on increased Tg despite a negative I-131 scan.  Not so great news.  Sloan-Kettering and others had some great research which showed that either I need a complete hypohell/LID scan/treatment or a PET scan followed by RAI treatment.  Either I have a recurrence that is iodine resistant or, because I wasn't on a LID, isn't as sensitive to the I-131 as it should be.

Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr.

I hate cancer.  Even the "good" cancer.  Grrrrrrrrrrrrrrrrrrr

Going to have a long chat with the endo tomorrow when he calls with my results (which I already have).

Hope everyone else is having a better night.

Utah

[stella5349]

Up and down like a rollar coaster my little buddy?? hey??

Sorry about the news.

[shellsa]

if rai no longer works u mightv have to do the ugly chemo my nanas friend has that rare thyroid one the only one u can treat with chemo must be grade 3

[shellsa]

michelle here at least u a bit better than u was im glad u getting there i complaining cause my sons gone backwards oo dear he doesnt want to stand back to square 1 with me and gapers i wish i knew what was going on this is killing me seeing him like that why me he go backwards im having oppointments out of my ears also for sam never home this is never ending oo dear

[bet643]

Love the shirt idea! That's ot a bad idea. I know about those co pays and out of pocket. I had to pay close to 4,000 bucks before they covered the 80 %. Had to rush everything in by december, just so I could start all over again in January. Does this ever end? Come January I have to get another whole body scan RAI so I'll be screwed because of the new deductable,and co pays. Plus all of my labs are due, and have to see 4 doctors.. Long hot bath sounds great. Take care. good luck.

[utahmomma]

Hey - don't anyone ever feel bad for complaining.  That's what this site is for 'cause no one else will listen to us!  :-)

I actually had a shirt made that says "that which doesn't kill us gives us huge co payments"  I also had one made that says "like cr@p, thanks for asking".  I wear them to my doctor appointments and I wore the "thanks for asking" one to my scan on Friday.  It's my poke in the eye back at the medical establishment.

Yeah, I maxed out my out-of-pocket expenses months ago too so if I need a PET scan, RAI (again), or whatever I need to get it done before the end of December.  

Argh, I'm going to take a long, hot bath and do some laundry.  Wahoo.

Thanks everyone!

[LoriD1966]

God bless you! You have such a great attitude! I feel bad for complaining!
Take care, Laura