Liddle's Syndrome?

[blueyes7648]

Liddle's Syndrome
by blueyes7648, 1 minute ago
Hi, I am just wondering if anyone has heard of Liddle's Syndrome, I am a 27 year old female that has had high blood pressure since I was 17, and this last year I have had many other symptoms pop up, fatigue, tinnitus, headaches, dizziness, ear pain/pressure, allergies out of the blue, fast heart rate, and just plain feeling like **** all the time. I have had many tests done, and so far everything has come back normal, except I had a aldosterone/renin level done, and by the lab's standards it's within normal limits, but everyone I have talked to online have said they are way off. My aldo was 1.6 and renin was 2.
I always seem to have low end potassium levels, and high end sodium levels. My endocronologist brushed off the idea of Liddle's syndrome because he said all my results were normal and it is a rare disease. If anyone has any info on the subject, that would be wonderful! I am just at my witts end here, I have been from doctor to doctor, specialists and I just need to find out why I feel like this.
Bridget

[sunshine062247]

I have liddles and its hereditary I got it from my father who had 9 strokes before he died I was only 12 @ the time,I had astroke @age 24 and had been on blood pressure med. since until 6 years ago when my youngest daughter had a few mini strokes and we wenr to every doc in are area until a cardio. sent us to Pittsburgh to see Dr. Matthew Muldoon @ Monafiore Hospital He had her tested for Liddles by sending Blood to Yale University home of Dr Liddle when we found out she had a mutaded gene that caused her kidneys to do the reverse from what their supposed to do. thats when I also found out I also have Liddles and just yesterday found out my oldest grandson also has it, even though his mother has low blood blood pressure

[TamraW]

If you have thyroid disease in the family, you have a higher chance of getting either Graves or Hashimoto's. You can call your endo's nurse to get the results. It usually takes labs two days.

Actually, the 'normal' range for TSH is outdated. Those values were based on flawed samplings. Anyway, as a Hashi, I can tell you that any TSH over 2.0 is considered hypo if hypothyroid symptoms are present. Your TSH certainly does fluctuate. I would be more concerned with FreeT4/FreeT3 when testing thyroid levels, as TSH is a pituitary hormone and the frees directly measure thryoid output.

:) Tamra

[blueyes7648]

My sister has graves, and they are currently testing for it, but of course, I have to wait 2 weeks to hear the results (when I go back to the endo)
My TSH levels have been:

.9
1.19
1.6
1.9
1.5

the "normal" range is .4-5.0

I just did a urine cortisol and t3, t4 and thyroid antibody test, waiting, waiting, waiting
Bridget

[TamraW]

No, I haven't heard of Liddle's Syndrome. At a glance, this looks like Graves Disease. I also get your symptoms from time to time with Hashimoto's Disease.

Please post these labs if you have them:
TSH
FT4
FT3
TGab
TPOab

:) Tamra