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Is it "normal" for TSH to rise so fast when off meds? (1.02 to 5.70 in 3 weeks)

Why was I off meds? Because my GP was convinced, and convinced my Endo, that my rapid heart rate MUST be being caused by my thyroid meds, and since I do still HAVE a thyroid, and my antibodies aren't high enough to be "truly" Hashimoto's, why not just "try" going off levo?

So I did.  For just over 3 weeks, and got my blood drawn today.

11/16/2015

TSH - 1.09  (0.34-5.60)
FT4 -  0.92 (0.89 - 1.76)

12/9/2015

TSH - 5.70 (0.34-5.60)
FT4 - 0.80 (0.89 -1.76)

I don't have any other results beyond TSH and FT4 today.

Does this make any kind of sense?
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Avatar universal
Chelly, how about posting your thyroid related test results and reference ranges?
Helpful - 0
16615961 tn?1454420087
How did you manage for 3 weeks with nothing? They cut me back to 50mcg back in Feb and I wake up with migraines every morning until my Levo kicks in. I have not gone more than a day in the last 2 years without and I could barely get out of bed without it.
Helpful - 0
16615961 tn?1454420087
My GP never said anything about my HR being high. My resting HR stays between 100-112. My last GP used to test my vitamins and I was always deficient in b12 and d3. I used to get b12 injections once a month. I thought my new GP was helping but it seems I should still look for an endo? Or does it matter? I've never had ferritin checked either.
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Avatar universal
Maybe a little, but that could be coincidence too -- it was occasionally reaching over 120 at rest, but staying around 80-90.  It is still 80-90 today, so I don't think much has changed.  I'm not surprised to learn my GP was wrong ;)

My Endo did have my D checked today - those results are in, and they are "low" at 29 (they want them closer to the range you suggested, too).

I haven't had B12 or iron/ferritin checked so I'll look into that - thanks.
Helpful - 0
Avatar universal
Not really.  Obviously your doctor erroneously thinks that rapid heart rate can only be due to over medication.  From a very long list of potential hypothyroid symptoms, this is the section on the heart.
    High blood pressure
    Low blood pressure
    Slow/weak pulse (under 60 bpm)
    Fast pulse (over 90 bpm at rest)
    Arrhythmia (irregular heartbeat)
    Skipped beats
    Heart flutters
    Heart palpitations
    Chest pain
    High cholesterol
    High triglycerides
    High LDL (“bad”) cholesterol
    Mitral Valve Prolapse
    Atherosclerosis
    Coronary Artery Disease
    Elevated C-Reactive Protein
    Fibrillations
    Plaque buildup
    Fluid retention
    Poor circulation
    Enlarged heart
    Congestive Heart Failure
    Stroke
    Heart Attack

Your Free T4 was too low even before you stopped meds  Now it is worse.  Also you should always be tested for both of the biologically active thyroid hormones, Free T4 and Free T3 each time you go in for tests.  A good thyroid doctor will treat a hypo patient clinically by testing and adjusting Free T4 and Free T3 as needed to relieve hypo symptoms.  Symptom relief should be all important, not just test results compared to the flawed reference ranges.  You can get some good insight from this link written by a good thyroid doctor.
http://www.hormonerestoration.com/Thyroid.html

Hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin, so you should get those tested and supplement as needed to optimize.  D should be about 55-60, B12 in the upper end of its range, and ferritin about 70 minimum.

Did the dose reduction help with your rapid heart rate?
Helpful - 0
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