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Tapazole did not work
Tapazole did not work, I took it for 1 day and it gave me hives, so endo said stop taking it, don't take day 2, take Benadryl and call me when the hives are gone.
Still having sweating in my sleep, house is done to 68 degrees at night, but I'm sweating, endo wondered if it's menopause. Great, 2 things at once!
Some conflict between the family doctor and the endo. Family doctor wants the nodule biposied because he says it has changed dramatically over the past 5 years, endo says no need, just take the med, then we radiate. Family doctor did not like that and wants to send me to another endo for a second opinion. Oh well, they don't think what this stress is doing to me!
Still having sweating in my sleep, house is done to 68 degrees at night, but I'm sweating, endo wondered if it's menopause. Great, 2 things at once!
Some conflict between the family doctor and the endo. Family doctor wants the nodule biposied because he says it has changed dramatically over the past 5 years, endo says no need, just take the med, then we radiate. Family doctor did not like that and wants to send me to another endo for a second opinion. Oh well, they don't think what this stress is doing to me!
Thank you, you are a God-send, no one else is answering for days now and I really appreciate your answering me so many times!
As you can tell by the frantic nature of my questions, it is the anxiety and the fear of what might happen to me that get the best of me at times.
Yes, I am on a beta blocker for 3 weeks now for the tachacardia which started in late February. For the most part it controls the heart rate down to the 80s, once in a while I'll hit 102 but that seems to be when the medicine is close to the next dosage time.
I was not impressed with my endo's answer either, and I have already told my doctor yes get me in for a second opinion quickly.
I am just dis-heartened to hear that it takes so long. I guess I naively assumed that once they know there was a nodule and they know that it was hyperthyroid, they would just book surgery to remove the goiter and tada! I guess not.
As you can tell by the frantic nature of my questions, it is the anxiety and the fear of what might happen to me that get the best of me at times.
Yes, I am on a beta blocker for 3 weeks now for the tachacardia which started in late February. For the most part it controls the heart rate down to the 80s, once in a while I'll hit 102 but that seems to be when the medicine is close to the next dosage time.
I was not impressed with my endo's answer either, and I have already told my doctor yes get me in for a second opinion quickly.
I am just dis-heartened to hear that it takes so long. I guess I naively assumed that once they know there was a nodule and they know that it was hyperthyroid, they would just book surgery to remove the goiter and tada! I guess not.
Anxiety is a common symptom of hyperthyroidism. Panic attack seems a little strongly worded, but I have seen others call it that.
I have been on anti-anxiety meds for a year and a half, and I suppose if not for the drugs I would be calling it panic attacks also. I know any little problem seemed huge and decision making could be enough to make me panic by times.
The shaking and the sweats are also classic Hyper symptoms. You have to really push fluids to keep from getting dehydrated. I ended up in the ER several times dehydrated.
The most immediate health risk you face being hyper without treatment is tachacardia. You may be on Beta Blockers right now to control your heart. If not, you should discuss it with your family doctor.
Being left hyper for months on end is not good, and will lead to other health problems eventually. But heart failure due to runaway tachacardia is the biggest risk.
The endo you are seeing now may be right about the hot nodule, but the fact that she wants you to try the Tapazole again, while your husband is around in case you have to be rushed to the ER does not impress me.
I just looked at a drug referrance guide. Tapazole is a name brand drug. Methimazole is a generic form of the same drug. Still, if I was the Endo, I might have you try Methimazole with the hope that it didn't cause the same allergic reaction.
Let your doctor make an appointment with another Endo. If you get the same opinion and you like the Endo you are seeing, you can always go back to her.
Whatever treatment you choose to persue, it will not be reversible. Two opinions would not hurt. Your current Endo should understand that.
Hopefully, someone else will chime in and give you their opinion. I'm not right all the time. Two opinions wouldn't hurt.
I have been on anti-anxiety meds for a year and a half, and I suppose if not for the drugs I would be calling it panic attacks also. I know any little problem seemed huge and decision making could be enough to make me panic by times.
The shaking and the sweats are also classic Hyper symptoms. You have to really push fluids to keep from getting dehydrated. I ended up in the ER several times dehydrated.
The most immediate health risk you face being hyper without treatment is tachacardia. You may be on Beta Blockers right now to control your heart. If not, you should discuss it with your family doctor.
Being left hyper for months on end is not good, and will lead to other health problems eventually. But heart failure due to runaway tachacardia is the biggest risk.
The endo you are seeing now may be right about the hot nodule, but the fact that she wants you to try the Tapazole again, while your husband is around in case you have to be rushed to the ER does not impress me.
I just looked at a drug referrance guide. Tapazole is a name brand drug. Methimazole is a generic form of the same drug. Still, if I was the Endo, I might have you try Methimazole with the hope that it didn't cause the same allergic reaction.
Let your doctor make an appointment with another Endo. If you get the same opinion and you like the Endo you are seeing, you can always go back to her.
Whatever treatment you choose to persue, it will not be reversible. Two opinions would not hurt. Your current Endo should understand that.
Hopefully, someone else will chime in and give you their opinion. I'm not right all the time. Two opinions wouldn't hurt.
My endo just called. She said take the Tapazole 1 more time but do it on a day when my husband will be with me all day just in case. At which point I asked (her secretary of course) then why are we doing this if there is a just in case involved. She could not answer.
My husband just thinks she is a flake and go for a second opinion.
Good to know that it needs to be hypo for the RAI.
When you were hyper, were you going through the panic attacks, hot sweats day and night, trembling?
I also wonder, since this has been 3 weeks like this now, how much longer they can leave me like this - is this a life or death situation? My family doctor wants a biopsy does, but she won't do one on a hot nodule she said. I suspect he will send me for a second opinion, there is a great university hospital in the city that he works with that he wants to send me to, but for courtesy to her he let me go to her since I've been seeing her since 1994.
Anyways, the biggest problem for me right now is the side effects. The panic attacks mostly. Just curious if that is common, if you know.
Thanks
My husband just thinks she is a flake and go for a second opinion.
Good to know that it needs to be hypo for the RAI.
When you were hyper, were you going through the panic attacks, hot sweats day and night, trembling?
I also wonder, since this has been 3 weeks like this now, how much longer they can leave me like this - is this a life or death situation? My family doctor wants a biopsy does, but she won't do one on a hot nodule she said. I suspect he will send me for a second opinion, there is a great university hospital in the city that he works with that he wants to send me to, but for courtesy to her he let me go to her since I've been seeing her since 1994.
Anyways, the biggest problem for me right now is the side effects. The panic attacks mostly. Just curious if that is common, if you know.
Thanks
I don't know about Tapazole.
At one point I was taking Methimazole to shut down my thyroid, and Synthroid to replace the hormones. The Endo took me off the Synthroid to prep me for RAI, but forgot to tell me to stop taking the Methimazole.
A month later my TSH was 120.0, and THEN she told me to stop taking the Methimazole. I found out I had to be off of BOTH drugs for six weeks before they could do RAI.
It was a boo boo on her part, and it was a big one. I had to go back on synthroid for a while, and then start over.
I'm not sure if Tapazole works the same way.
They actually want you to be hypo for RAI, so the thyroid will soak up the RAI like a sponge. How they get a hyper person to hypo without drugs is a good question.
It all boils down to how large a dose they give you. A large dose can overcome all the drugs, I suppose. My Endo leans toward small doses. She told me if the dose she gave me didn't work, we could always do it again in a year.
That didn't impress me.
Maybe your doctor is planning to get you hypo with Tapazole, and then give you a bit bigger dose to over-ride the Tapazole?
All I know for sure is my Endo wouldn't do the RAI while I was on Methimazole. It may be one of those "every doctor is different" things. I was certainly hypo enough to absorb the RAI.
I could have stopped the Methimazole and still been way hypo two weeks later, but she put me back on synthroid to get my TSH down, and then took me off of it for six weeks before RAI.
Might ask your family doctor about it.
At one point I was taking Methimazole to shut down my thyroid, and Synthroid to replace the hormones. The Endo took me off the Synthroid to prep me for RAI, but forgot to tell me to stop taking the Methimazole.
A month later my TSH was 120.0, and THEN she told me to stop taking the Methimazole. I found out I had to be off of BOTH drugs for six weeks before they could do RAI.
It was a boo boo on her part, and it was a big one. I had to go back on synthroid for a while, and then start over.
I'm not sure if Tapazole works the same way.
They actually want you to be hypo for RAI, so the thyroid will soak up the RAI like a sponge. How they get a hyper person to hypo without drugs is a good question.
It all boils down to how large a dose they give you. A large dose can overcome all the drugs, I suppose. My Endo leans toward small doses. She told me if the dose she gave me didn't work, we could always do it again in a year.
That didn't impress me.
Maybe your doctor is planning to get you hypo with Tapazole, and then give you a bit bigger dose to over-ride the Tapazole?
All I know for sure is my Endo wouldn't do the RAI while I was on Methimazole. It may be one of those "every doctor is different" things. I was certainly hypo enough to absorb the RAI.
I could have stopped the Methimazole and still been way hypo two weeks later, but she put me back on synthroid to get my TSH down, and then took me off of it for six weeks before RAI.
Might ask your family doctor about it.
I didn't know that, that's really interesting that you have to be off the drugs for 6 weeks before RAI. I wonder what she's thinking, since I've not been on any drugs yet (except for the 1 day). Just confirm for me that I've understood you correctly. You take the medication to decrease the thyroid function until it's in normal range (that's what she told me) then you have to be off it for 6 weeks? Won't it go back to hyper in that time?
Then they can do RAI?
thanks
Then they can do RAI?
thanks
Listen to your family doctor and ask him to refer you to another Endo. A second opinion is not a bad thing.
Methimazole may work for you better than Tapazole, but I think you have to go off it for six weeks if you want to do RAI.
When I was hyper I would sweat constantly. Soak through the sheets at night. Had a hard time drinking enough fluids to make up for what I lost. Take a shower, and by the time I was dressed I smelled like B.O.
If you're hyper and your Endo thinks your sweating is menopause, a second opinion is a good idea.
Methimazole may work for you better than Tapazole, but I think you have to go off it for six weeks if you want to do RAI.
When I was hyper I would sweat constantly. Soak through the sheets at night. Had a hard time drinking enough fluids to make up for what I lost. Take a shower, and by the time I was dressed I smelled like B.O.
If you're hyper and your Endo thinks your sweating is menopause, a second opinion is a good idea.
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