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499534 tn?1328704178

Update on starting Tirosint! Barb are you in too??

Hi ALL!  I am starting my 6th week of Tirosint.  I have to say that I feel great and no longer have that foggy feeling I use to get about 2 hrs after taking my synthroid.  I will be going in at the end of this week for labs to see how they look.  I feel pretty darn good!  I am working ....going to college full time....raising my daughter....etc....etc!
All I can say is how THANKFUL I am to feel good again!!  
I am on 125 mcg Tirosint and 20 mcg Cytomel.

Barb- How are you doing on this med??
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649848 tn?1534633700
COMMUNITY LEADER
Sorry, I missed your message from the 19th.  This is a very old thread and new posts sometimes get lost in the shuffle.  

Your labs (FT4) from May 15, indicates that you might have been heading toward hyper, since your result was very near the top of the reference range, at 81%....... This is where it would have been nice to have an FT3, because if your FT3 were low, we'd consider that you have a conversion issue, if you still have hypo symptoms.  Without FT3, we simply don't know.

There's a history behind it, but doctors are taught in med school that TSH is the gold standard for diagnosing and treating thyroid conditions.  The idea is that if TSH is high, one is hypo, if TSH is low, one is hyper.  In a perfect world, that's the way it should work.  Unfortunately, we don't live in a perfect world; too many of us don't fit that tidy little mold and doctors simply refuse to admit that what they learned might not be completely accurate.

Yes......"vee DO need dat". LOL   If you can't get either of your current doctors to run it, you should look for a doctor who will; otherwise, you can order it yourself online; only problem is that insurance doesn't cover the tests you order online.  You could go to a site, such as healthcheckusa, order the test.  They send you a lab order and tell you which local lab to go to (usually LabCorp).  You go get the blood draw, then a couple days later, you receive the results, from healthcheckusa.  You can get a TSH, Free T3 and Free T4, for about $85 (they should all be run together).  Sometimes, if you have labs in hand, you can go into your doctor's office and get them to listen, sometimes not.  The problem is that you will have to continue to fight for the right tests.  A doctor who orders them without hassle is much better.
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Avatar universal
I should say that I'm slowing gaining.**
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Avatar universal
I was diagnosed last year with Hasi's and it's been quite the challenge finding a medication that is good for me. I started on Synthroid then switched to Armor in March. I was taking Armor 60 for 3 months but still was having horrible mood swings etc. Last week my dr put me on Triosint 88.. I can say that my mood swings and attitude have most definitely improved however despite working out 4+ times a week and eating a 1200 calorie a day diet I'm not loosing nor gaining weight. Typically I cheat on the weekends might go up 2lbs or so but drop it within a few days and the only thing that has changed is my medication.. Please help. Does anyone experience weight gain on this med?
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Avatar universal
Hi.  I was just looking through my mess of paperwork... and labs I have had done since this whole mess started.  I don't think I have EVER had any T3 test..at least it's not in my copy of labs.  The most recent I have had was back  on May 15. That was during my Synthroid nightmare.  My labs were this:

T4 Free 1.33 with a range of  0.76-1.46
TSH      .37   with a range of 0.36 - 3.74

So WHO knows, my T3 may be non existent for all I know.   Last time I asked her about it she shushed me with her hand and said No.. vee dunt need dat.  (that's her accent).   Okay , now I don't know anything about any of this, but I KNOW from being on here "dat vee DO need dat".  So right there I was like " Okkayy???"  My ENT also said " Nah" when I asked if I need to know that.

WHO are these people?? Don't they teach this in school??? I shouldn't have to go in there with a list of things THEY need to test me for.  
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649848 tn?1534633700
COMMUNITY LEADER
There's no need to be scared of starting the Tirosint.  Tirosint is NOT stronger than other forms of T4 med.  Because it's a gel cap and is easier dissolved and absorbed, some people (not everyone) find that they need a lower dose.  

I actually started at a higher dose than I'd been on.... I had been on 88 mcg levo and started Tirosint at 100 mcg.  It ended up being a bit too much, so I backed down to 88 and added more T3.

If you have a copy of your current labs, please post them, and we'll try to give you more information.  Be sure to include reference ranges, which vary lab to lab and have to come from your own report.
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Avatar universal
Did you start Tirosint as the regular dose you took in your "old" meds?  I am due to start Tirosint and I am prescribed the 100 , the same as I am in Levothyroxine.  I heard you need to start low, not at your regular dose and I am afraid to even start it! Thanks.
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