Hi..I've been diagnosed x3 years with hyperthyroidism,hyperparathyroidsm and only after I fxd my hip. Right now,I take methamazole.my Dr gets angry because I won't kill my thyroid outright,I feel if I still have to be on medicine for life,let me decide,it's my body,myself dealing with symptoms. He just stated my thyroid antibodies are elevated making the GRAVES disease not under control, although my the is normal.YET,I have malapsorption issues, I have 3grandchildren with celiac disease, my mom had sjorgen disease,my daughter type one diabetic and I have type 2. I respect the physicians who have trained hard,but today I refuse the" Daddy attitude that paternal doctors know it all". My doctor wants the easy way out ..just kill the thyroid deal with the consequences for life.I'm the patient.I can say no.if the doctor won't tell me the full truth,WHY?
I do get so angry,because I was misdiagnosed 38+ years ago.I had post partum thyroiditis that the physicians refused to acknowledge and renew a prescription for synthroid. NOW,I'm dealing with Graves disease.
Maybe,had the doctor 38+ years ago not been my NOW physician, could swallow it easier.he won't admit his fault,just that someone misdiagnosed me
Well Justmeok, I already know I have celiac....That is why my doc wanted to see if there is also Graves disease. You seem to be well informed, Actually there is a connection between celiac - graves and hashimotos (the one triggers the other), but doctors still cant' tell which one comes first......
My question is if there is graves and at the same time TSH , FT3 and FT4 are normal.
I totally understand you when you say your doctor was a Godsend......Many people go on living their life in pain and there is no good doctor to diagnose them. I was misdiagnosed for 12 years (you know that "it's all in your mind" story...doctors kept telling me my eczema was because of stress......nice....).
Any way, hope you are coping well with your celiac.
Meline
Hi Meline, I had the same problem for years. My TSH was either slightly elevated, highest being 7.0, or within normal range. It never stayed at one level. I also have antibodies and a small goiter that can be felt and seen on MRI, but not really with the naked eye.
Eventually I finally found a doctor who agreed to test me for Celiac Disease which was a Godsend. If your doctor is willing to do so, I would go for it. Many patients with hashimotos and/or subclinical hypothyroidism, are often diagnosed with celiac disease.
There is a connection, and I'm researching and googling like crazy trying to find reputable sources that explain why. I hope things work out for you.
OK! thanks for the info. I'll discuss what you posted with my doc. This was helpful!
Meline
Sub-clincal Grave's can show as normal T4 and T3 with a slightly depressed TSH. Your TSH is perfect.
If you want to check for Grave's antibodies, you need to run a TSI test (Thyroid Stimulating Immunoglobulin). TSI antibodies are specific to Grave's, while the two you had tested are not.
Your antibodies that were checked are very low, and your doctor is probably right. The anti-TG makes me wonder, though. It would be normal to find a low anti-TPO level with Celiac, but I'm not so sure about the anti-TG.