diabetes insipidus

[brainpain]

This discussion is related to pituitary surgery thyroid problem?.


i have been dx with diabetes insipiuds after pitiutary tumor sugery.my endo said i had damage to my hypothalamus.he give me nose spray and said i was obise.he seen me when i had the tumor and was very nice.i had all my labs neur thought i might have hypitutary.because my heart races and pounds.i cant sleep and i stay so tired &headaches daily.my hair feels like straw no matter how much i condition it.i have muscle aches and facet joint syndrome.my breast still leak &prolaction is a little higher than when had tumor.i have bad mood swings.my labs are dropping.endo said all this was because im obise?i have gained 25pnds .weigh 156 told to lose 40 pnds.neur said tumor was effecting thyroid.weight then was 130.why is my tsh getting lower?is that a side effect of DI ?my tsh [0.8] t3[117] ft4[1.3]prolaction[6.5] acth[16] hgh[1.15] labs from feb 07  / dec 07 labs are tsh[0.53] t3[86] ft4[0.8] prolaction[9.7] acth[6] hgh[0.12] is this normal for #s to drop ?had more labs done just a call it is on low normal side.neur said he scrapped my pituitary during sugery.is this all from di or something else? any advice would be so helpfull.so confused on what to do next .give up &live with it or fight to the end.

[brainpain]

thanks for your advice.the endo was one neuro sent me to.i also seen him on pituitary network.the wierd thing is hes not on the dr endo list anymore.i was so upset by the way he treated me i went to the site to complain.he was teaching a student and acted like he knew everything.he said he dident need to look at my labs.gave me a diet plan and told me not to wast his time.told me to come back in april with some weight loss.my neuo sugeron said i can get secondary hypopituitary because of sugery.it seems every dr hears my history[tumor] and scares them off.the doctor that found my tumor was my regular neuo.she closed her office.there are no other endos aroun here.and no doctors are acepting new patients.dont know where to go to.any advice.thanks

[utahmomma]

Run away from that doctor immediately!   You might be better served by a neurologist since your problem is located in your brain/pituitary and you've had brain surgery.  

Most endocrinologists deal with Type I or Type II diabetes (not DI), few deal with thyroid conditions and still very, very few deal with pituitary conditions.

You are *not* obese - you have dealt with brain tumor, brain surgery, and now DI.  
Get rid of that idiot endocrinologist  (Someone needs to slap that endo around - Chicken Club unite!)

Most of us have fired an endo or two.  I fired the chief of endocrinology at the largest hospital in my state because he did the entire "you need to lose weight" and ignored my thyroid cancer.  Don't feel bad about doing it - just DO IT!

What about the doctor who found and treated your tumor??


My best to you.

[DLA]

Obese?  I need to introduce myself to that blasted man!!  Quit worrying about your weight, honey.   You're not that big.  Nobody who weighs 156lbs is going to die from that immediately.  Dr's drive me insane!!!

You are becoming hyperthyroid and from the symptoms your body already considers you there.  You have ALL the symptoms for hyper.

My best advice would be for you to RUN don't walk to a new dr and to Donald Trump this one!!   FIGHT!!!!!!  And continue to fight until someone helps you.  General rule on here is that it takes 6 endo before you find one who is worth a nickle.  I just fired mine and went back to my PCP for treatment.  Am not going to pay someone $300/visit to not even listen to me.

Good luck and keep me posted.
Dac

PS--don't know anything about diabetes insipidus.  I have Type 2 diabetes, but I can't help you with yours.  Sorry.