Aa
to all my friends on here
I have made a decision to go to the mayo clinic in flordia tomorrow morning. As much as I have tried to follow the regimins put forth by everyone on here, something still isnt working. My symptoms suggest that I am undermedicated, yet for 7 weeks i have been on a much higher dose of levo and feel the worst ive ever been.
I am currently unemployed and this trip is going to cost me about $1000. I am going to "punt" and put it on my credit card and pray that someone there can figure this whole thing out. Ill be thinking of all my friends when I am there. Im sure ill have a lot of down time, so if you are interested, i can share my processes with you on here.
Take care,
Bruce
I am currently unemployed and this trip is going to cost me about $1000. I am going to "punt" and put it on my credit card and pray that someone there can figure this whole thing out. Ill be thinking of all my friends when I am there. Im sure ill have a lot of down time, so if you are interested, i can share my processes with you on here.
Take care,
Bruce
The T3 lab may have been in range Bruce but it was on the low end which being - that is your "direct" hormone that everything needs to function on. With you being on the low end - for sure - this would not be good for most patients.
Having sensitivity to the T4 med is not uncommon and you state very similiar things as so many people do when they are on this med.
Your symptoms are no worse than others when it comes to thyroid. Its just some really get their levels up and concentrate on that aspect to improve things slowly so the horror of the disease stops rearing its head.
Its no doubt that you have other things happening and ruling out everything is great. The root of illness is built on 2 things.. Immune system health and hormones. If these 2 are sick for a long period of time then illness strikes.
MS is a flourish of auotimmune antibodies, just like sjorgens, diabeties, graves,hashimoto, ra and others... MS has a root cause - its not just MS as a diagnois - something is causing the MS to rear up.
Autoimmune issues come in 3. Meaning you can find 3 receptors of autoimmune disease that triggers conditions. Right now you have Hashimoto and that needs to be controlled properly.
The body is not that simple - especially when you are so sick for so long - as to think taking a pill will correct you. The longer you are ill with a hormone issue - it takes double the take to bounce back to feeling well. I learned this from an old time poster that isn't here anymore and he was dead on right. I am still healing after being near death but I am certainly much better when I found my answers.
Having sensitivity to the T4 med is not uncommon and you state very similiar things as so many people do when they are on this med.
Your symptoms are no worse than others when it comes to thyroid. Its just some really get their levels up and concentrate on that aspect to improve things slowly so the horror of the disease stops rearing its head.
Its no doubt that you have other things happening and ruling out everything is great. The root of illness is built on 2 things.. Immune system health and hormones. If these 2 are sick for a long period of time then illness strikes.
MS is a flourish of auotimmune antibodies, just like sjorgens, diabeties, graves,hashimoto, ra and others... MS has a root cause - its not just MS as a diagnois - something is causing the MS to rear up.
Autoimmune issues come in 3. Meaning you can find 3 receptors of autoimmune disease that triggers conditions. Right now you have Hashimoto and that needs to be controlled properly.
The body is not that simple - especially when you are so sick for so long - as to think taking a pill will correct you. The longer you are ill with a hormone issue - it takes double the take to bounce back to feeling well. I learned this from an old time poster that isn't here anymore and he was dead on right. I am still healing after being near death but I am certainly much better when I found my answers.
Good luck on the MRI tomorrow. I think a lot of us have more then one problem besides thyroid and for sure they can produce a lot of confusing symptoms.
Even tho my adrenal tests were normal my doctor had me take an adrenal supplement because he thought they might be low for me. You might remember I started on Armour about the same time you did. You might need the ERFA and you might need to go very slow. I know the manufacturer of Armour says some people need to start with only 15 mg and go up 15mg every 2-3 weeks. I also divided the dose like suggested here. Once I tried to go too fast and my PR doubled, my BP skyrocketed and my temp shot up two degrees. This lasted three hours and I skipped my next dose and went back to the lower amt for two more weeks. SLow is necessary with thyroid meds and the people pm this forum who have gone through such before have very good advice.
I am glad you are getting the MRI. When I had mine they found I had had 10-12 small strokes. The dr. who did the initial reading didn't say that but the neurologist did and showed me the pictures. Again, good luck tomorrow and let us know how things go. Marie
Even tho my adrenal tests were normal my doctor had me take an adrenal supplement because he thought they might be low for me. You might remember I started on Armour about the same time you did. You might need the ERFA and you might need to go very slow. I know the manufacturer of Armour says some people need to start with only 15 mg and go up 15mg every 2-3 weeks. I also divided the dose like suggested here. Once I tried to go too fast and my PR doubled, my BP skyrocketed and my temp shot up two degrees. This lasted three hours and I skipped my next dose and went back to the lower amt for two more weeks. SLow is necessary with thyroid meds and the people pm this forum who have gone through such before have very good advice.
I am glad you are getting the MRI. When I had mine they found I had had 10-12 small strokes. The dr. who did the initial reading didn't say that but the neurologist did and showed me the pictures. Again, good luck tomorrow and let us know how things go. Marie
Sorry I was really out of it when I posted above. I guess my point is that I realize I am hypo and hashimotos, but my symptoms are extremely severe compared to a lot of people. It is not impossible to have ms and hashimotos at the same time. If it is not ms I will be relieved. However, if it is ms, I will be ready to get help. I have the MRI tomorrow.
Bruce
Bruce
Stella,
Today I saw an internalist that has ordered an MRI of my brain im going to have tomorrow. He has a degree in endocrinology, but is an internalist here in Dallas. He thinks some of my symptoms are of being hypo, but my symptoms are way out of whack for someone with slightly out of range levels.
The weird thing is that I have a really bad shake in my left hand. I also have numbness in my left foot and hand, and most of my ear ringing appears to be on the left side of my body. They want to just rule everything out.
There are people on here that have told me they have had tsh of 60+. One of the nice ladies on here tells me her tsh is 14 and she feels great.
My t3 was within range last time. My tsh was 4.32 and my t4 was 1.0. However, I still have the ear ringing and tingling in my head. Its like a tingling in my head. It seems when i take the levo i feel 100X worse. Its like flicking gasoline on a fire.
I had the ultrasond of the thyroid. It didnt show any nodules, just a lot of blood flow going to the thyroid.
I can try to explain this, but im not sure i will make a ton of sense because i tried to take a xanex today and it actually made me feel worse.
If I take levo, I get so hyper i have to lie in bed for several hours for it to pass. It takes a while to kick in, but once it does its horrible. When I tried armour, it hit me faster and harder. there was not a "waiting period" for me to feel horrible. It kicked in pretty quick.
the idea was to get my levels under range and see if i still felt horrible. I did get my levels in range and felt horrible. When i wasnt taking anything at all, my tsh was only 5.10 or 7.28.
Even when my levels tested out in range, i still felt like death. Like I do right now.. I really think they found out i was hypothyroid when testing for all this other stuff. But I dont think that is what is causing my near death experience. there are people that take 175-200 synthroid or armour. I take .25 to 37.5 levo and still feel terrible...
Today I saw an internalist that has ordered an MRI of my brain im going to have tomorrow. He has a degree in endocrinology, but is an internalist here in Dallas. He thinks some of my symptoms are of being hypo, but my symptoms are way out of whack for someone with slightly out of range levels.
The weird thing is that I have a really bad shake in my left hand. I also have numbness in my left foot and hand, and most of my ear ringing appears to be on the left side of my body. They want to just rule everything out.
There are people on here that have told me they have had tsh of 60+. One of the nice ladies on here tells me her tsh is 14 and she feels great.
My t3 was within range last time. My tsh was 4.32 and my t4 was 1.0. However, I still have the ear ringing and tingling in my head. Its like a tingling in my head. It seems when i take the levo i feel 100X worse. Its like flicking gasoline on a fire.
I had the ultrasond of the thyroid. It didnt show any nodules, just a lot of blood flow going to the thyroid.
I can try to explain this, but im not sure i will make a ton of sense because i tried to take a xanex today and it actually made me feel worse.
If I take levo, I get so hyper i have to lie in bed for several hours for it to pass. It takes a while to kick in, but once it does its horrible. When I tried armour, it hit me faster and harder. there was not a "waiting period" for me to feel horrible. It kicked in pretty quick.
the idea was to get my levels under range and see if i still felt horrible. I did get my levels in range and felt horrible. When i wasnt taking anything at all, my tsh was only 5.10 or 7.28.
Even when my levels tested out in range, i still felt like death. Like I do right now.. I really think they found out i was hypothyroid when testing for all this other stuff. But I dont think that is what is causing my near death experience. there are people that take 175-200 synthroid or armour. I take .25 to 37.5 levo and still feel terrible...
Bruce that is quitre a detailed post and I will relook at it when I have more time. However, you have concrete proof you thyroid levels are off and the "surges" - electro "zaps" for sure can be related to these levels being off.
Thyroid effects neurological things and the brain is full of energy. Its like a short curcuit when hormones are off and that can trigger these feelings as once source of things found.
I have seen those latest levels Bruce ( not mayo's) but you are clearly undertreated. The FT3 levels were low and that alone has terrible side effects with hypothyroidism.
You have been tested for cancer and all sorts of thing. In my experience Bruce - I remember how desperate I was when so ill that everything came into my head and I was so ill something else had to be wrong. We are all different but the thyroid is very responsible for so many things and when that is not properly treated the mind will play tricks on you thinking the worst when its really not.
Do you have any labs from the Mayo that you can post here please?
Have you been consistant taking your new dosage of ERFA thyroid and taking it daily?
Did they run an RBC magnesium test. NOT serum - but red blood cell?
Did you have an ultra sound on the thyroid?
Lets really keep the focus on this and see how to manage things correctly first with thyroid.
Thyroid effects neurological things and the brain is full of energy. Its like a short curcuit when hormones are off and that can trigger these feelings as once source of things found.
I have seen those latest levels Bruce ( not mayo's) but you are clearly undertreated. The FT3 levels were low and that alone has terrible side effects with hypothyroidism.
You have been tested for cancer and all sorts of thing. In my experience Bruce - I remember how desperate I was when so ill that everything came into my head and I was so ill something else had to be wrong. We are all different but the thyroid is very responsible for so many things and when that is not properly treated the mind will play tricks on you thinking the worst when its really not.
Do you have any labs from the Mayo that you can post here please?
Have you been consistant taking your new dosage of ERFA thyroid and taking it daily?
Did they run an RBC magnesium test. NOT serum - but red blood cell?
Did you have an ultra sound on the thyroid?
Lets really keep the focus on this and see how to manage things correctly first with thyroid.
No, but I was thinking the same thing...... What I have are almost epiletic seizures. I just found a post from someone on here that explains what I'm feeling
http://www.medhelp.org/posts/Undiagnosed-Symptoms/Head-vibrations-electrical-sensations-through-brain-and-body-esp-spine--leg-and-body-numbnessHELP/show/203094
http://www.medhelp.org/posts/Undiagnosed-Symptoms/Head-vibrations-electrical-sensations-through-brain-and-body-esp-spine--leg-and-body-numbnessHELP/show/203094
Lest get back to the basics.
Did they ever do this at the Mayo? :
Have you take thyroid med and monitor you all hooked up for the next few hours as your "whole body goes nuts , start shaking".
That would have been the logical thing for these great docs at the Mayo to do. Maybe this can still be done.
Did they ever do this at the Mayo? :
Have you take thyroid med and monitor you all hooked up for the next few hours as your "whole body goes nuts , start shaking".
That would have been the logical thing for these great docs at the Mayo to do. Maybe this can still be done.
did you ever do a 24 hr saliva test to see if your adrenals are week. sounds alot like that . maybe you can't handle the thyroid meds because of week adrenals? can't get into your cells. ever try an osteopathic doctor test all your hormone levels. might be an idea, kevin
they did lupus. My 24 hour cortisol urination test came back 2 points in the higher range. This would suggest possible cushings, but I dont have any of the other symptoms.
I do not have the current levels with me, but I saw them and the T3 was in range. My symptoms appear to get worse the longer i take levo (armour, whatever). Shortly after taking any medication my whole body goes nuts. I start shaking, I cant think straight. I get nauseas, and the ringing in my ears gets a lot louder. I have to literally lay in bed and wait for it to pass.
I talked to the endo at mayo clinic today and she suggested that perhaps I should stop taking the levo since im barely taking any at all at this point (.025) and see what happens.
Have you ever taken too much t3? what happens when this occurs? Thats probably how I feel.
Bruce
I do not have the current levels with me, but I saw them and the T3 was in range. My symptoms appear to get worse the longer i take levo (armour, whatever). Shortly after taking any medication my whole body goes nuts. I start shaking, I cant think straight. I get nauseas, and the ringing in my ears gets a lot louder. I have to literally lay in bed and wait for it to pass.
I talked to the endo at mayo clinic today and she suggested that perhaps I should stop taking the levo since im barely taking any at all at this point (.025) and see what happens.
Have you ever taken too much t3? what happens when this occurs? Thats probably how I feel.
Bruce
Bruce when you say that you tried half the "armour" and went hyper in 30 minutes do you mean ERFA or actual Armour brand? And when you say half the dose are you refering to 1/2 a grain (1/2 the pill) or 1/2 of your entire dose? Pleasr be specific so we can see exactly where you are at and coming from.---- It's kind of like when we here in TX say I'll have a "coke" do we can mean just a soda or an actual COKE? Do you have the ERFa in the mail yet?
What dose of Levothyroxine were you on prior to you switching now to the desiccated?
You're thyroid for sure Bruce is messed up. You may have other issues but as for thyroid. you are not well.
Even though most thyroid patients find ignoring the TSH is better - yours certainly coming back over a 7 would indicate an issue.
You've quoted a few times your T3 and T4 is in range. But WHERE? What are the actual numbers? and - are they FREE tests?
One day on a low dose of ERFA thyroid is not going to be the tell all for you. Desiccated ( like synthetic meds) take a while to build into the system to achieve optimal levels.
The last test I saw indicate your low and this will take time to build up with the meds.
Even though most thyroid patients find ignoring the TSH is better - yours certainly coming back over a 7 would indicate an issue.
You've quoted a few times your T3 and T4 is in range. But WHERE? What are the actual numbers? and - are they FREE tests?
One day on a low dose of ERFA thyroid is not going to be the tell all for you. Desiccated ( like synthetic meds) take a while to build into the system to achieve optimal levels.
The last test I saw indicate your low and this will take time to build up with the meds.
What kind of vitamins?
Here is my theory on what is happening.....
I've got something really messed up with me. In the midst of them testing me, they found the hashimotos.
They gave me levo for the tsh which is very close to normal so when I take the levo it throws me hyper.
The original problem remains undiagnosed, despite my million dollars in testing.
I have no idea..
Here is my theory on what is happening.....
I've got something really messed up with me. In the midst of them testing me, they found the hashimotos.
They gave me levo for the tsh which is very close to normal so when I take the levo it throws me hyper.
The original problem remains undiagnosed, despite my million dollars in testing.
I have no idea..
If really are truly hypersensitive to the meds than the logical choice is to start really low.
Many people feel hyper from meds when starting them or upping them. I do. So do others here. Apparently not as bad as you though.
Many people feel hyper from meds when starting them or upping them. I do. So do others here. Apparently not as bad as you though.
I just looked. They did check for diverticulitis, don't know about other hormones. Just t3 and t4. What would the other hormones of shown?
I tried a half of the armour this morning. It through me hyper almost within 30 minutes of taking it.
I think my problem is that while I need medication because of the hashimotos, anything I take makes me hyper. As the day goes on I start to feel better. The higher the dose, the worse I feel. I feel like I have a hypersensitivity to the medicine.
Has anyone Gond through this?
I think my problem is that while I need medication because of the hashimotos, anything I take makes me hyper. As the day goes on I start to feel better. The higher the dose, the worse I feel. I feel like I have a hypersensitivity to the medicine.
Has anyone Gond through this?
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