3+ years of mystery symptoms-neurological? Arthritis? IBD? help

[Rosemyrtle]

Hello,
For the past 3 years I have had the largest range of symptoms and no help.  It started with severe diarrhea - blood in stools, weight loss, vitamin deficiency, exhaustion.  I started seeing GI's right away..2 years, 2 colonoscopies, 2 barium tests, M2A capsule, abdominal CT scan, and tested for EVERY virus/infection/parasite available, I came back with nothing.  During this time, i have spoken with the doctors about my other symptoms - neurological... I get the weirdest night blindness - like a red film is over my eye, it really feels like there is something there, and all i can see is red blur, only one eye at a time but effects both of them.  Sirens in my ears, numbness in my arms, hands, legs, feet - not pins and needles, but a dull numb pain.  Constant pain in my hands/fingers/elbows/shoulders/back/feet - on and on and on.. uncontrolled muscle spasms in all of these same spots.  This is not joint pain.  Chinese medicine dr's refer to it as 'wandering pain' (oh yes, i have seen several of them - physiotherapists/acupuncturist etc)
ex.  one day 1.5 years ago my left leg swelled up and was unmovable - i went to emergency, where i was immediatly taken in and had two doctors very scared of a blood clot - swelling/discoloration, but all tests showed NO inflammation - was given an inflammatory shot to the hip, and monitored - no change. took 3 days and the use of a cane, and it just went away.
I have been hospitalized and IV treated for aprox 8 hours, 3 times now with severe migraines - no auras/sensitivity
just severe pain and nausea - and this has now started at least 4 times a week in the last year.
oh... and I vomit everyday, along with 4-8 bought of severe diarrhea.
I do not eat dairy/gluten - fast foods/unhealthy foods.  I do not drink enough water, cause it causes things to get worse.
eating is my biggest fear/hate - but i do it, a lot - i have to, or my weight will drop instantly(lowest was 83pounds)I am loosing my mind... and because i have SO many symptoms - i hear - 'they cant all be related'
I miss at least one day of work a week
i feel like my mind is so ambitious for life, and its being held prisoner by my body - I am 28 years old, trying to plan my wedding, in total fear of making it through my wedding, and complete fear of being a mom - as my exhaustion rules my life, and getting out of bed is almost impossible some days

does anyone have any ideas of what might be wrong with me??
thank you

[chaz19]

I'm so sorry to hear of your struggles.  Unfortunately i don't have any ideas for you, but i sympathize greatly.  Let me know how you are doing.  chaz19

[Rosemyrtle]

Thank you for your reply, and sympathies.  I started to look at the eye issue, as I have exhausted every other angle - 175 known causes for muscle spasms//150 known issues for joint pain .. and i have been tested for every IBD/Bowel/Intestinal disorder known to man.. so i thought maybe someone on this large interweb experiences the same eye issue as me.. and they do!  Optic Neuritis .. 2 basic causes are infection(after 4 years of it, i think i wouldve lost my eye by now) and MS.
So I have made an appointment with an optometrist, thinking if I can get someone else on board with this theory, I can get the much needed MRI scan done.
I go on Tuesday - feeling hopefull.  At this point in my life, I have no fear, bring on MS or whatever non curable disease they have out there, but please just put a name on it.