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Unexplained rapid weight loss and facial wasting loss of all fat

I was recently diagnosed with connective tissue disease and Raynauds syndrome by my Rheumatologist but he couldn't tell me which autoimmune disease it was for sure even though I excibit many of the symptoms of Lupus which my maternal grandmother had.  All my blood work was normal except the positive ANA 1:80.  Has anyone experienced the extreme sudden loss of all volume?  I look like I have AIDS and I'm 80 yrs old and all this happened in a matter of a few months.  People that know me are shocked when they see me!  This is ruining my life!!!   Please help.
Thanks any info would be great
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