DESPERATE! YEARS OF MISDIAGNOSED EPISODES OF DYSPNEA! ! 19 YEARS OLD!
I am currently 19 years old. When I was about 11 years old I had my first breathing episode. It is not ever even close to hyperventilation. It is extremely slow or even normal rate- labored breathing. They did blood work, chest x-rays, and even tried giving me oxygen. However, my blood oxygen was near "perfect" and my lungs sounded and apparently looked fine. They also did and EKG and according to that, my heart was normal. It took about 24 hours for this episode to disappear completely.
Since that first episode, I have gone sometimes months without one, but it keeps reoccurring as if I have a chronic condition. I have been to the ER between 8-12 times since the first time this happened. Every time, they tell me that they don't know what is wrong with me and it is a repeat of the very first episode. I have tried taking Xanax in the case that it was anxiety. However, anxiety would be hard to believe because #1) I am quite the opposite of anxious and generally calm in comparison to others and #2) the Xanax did nothing except make me feel sleepy. This episode has been the longest thus far in my life,lasting over a week now!
In my recent visit to the ER they told me I have atypical pneumonia after seeing "slight infiltrates in my lungs". This doesn't explain the years of breathing episodes...this has gone undiagnosed too long and I am now seeing specialists. I wanted to see if anyone had an opinion or similar symptoms. I notice that caffeine always makes it worse, but doesn't seem to trigger an episode itself.. maybe a clue? or coincidence?
I have even gone to a gastroenterologist thinking it was "pseudo dyspnea"!