POTS

[Kristine1961]

I have not been diagnosed with POTS; however, after reading some of the symptoms, I feel as if I have some type of OI. What I thought were drops in blood pressure; spells of near-syncope, dizziness, palpitations, breathlessness, etc., I am finding are actually tachycardia and/or spiking blood pressure. (My doctor ask me to monitor my blood pressure at home) Although my family doctor seems concerned that I am not feeling well, she doesn’t seem concerned that there is anything of a major concern. (I had an Echo and 24 hour heart monitor completed) She has referred me to a specialist for the near-syncope; however, I cannot get into the specialist for a year.

During one of my more serious spells, I was able to take my blood pressure and it was 155/80. I have always had a blood pressure of 110/60. And by the time I could get to the monitor, the spell was subsiding, so I think the blood pressure was coming back down from a higher number.

Although I have read everywhere that POTS is not fatal but a life changing syndrome, I wonder if the spikes in blood pressure are something I should be concerned about?

[selmaS]

  for more info u may want to check out this forum here on MedHelp

http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266?controller=forums&action=show&id=266&camp=msc

[Kristine1961]

thanks Dina I will post it there

[Dina723]

I'm new to POTS, and I don't have that symptom, my bp is low most of the time, with high heart rate. But I have your other symptoms and I understand how you feel there. Yea for the tests you've had so far. That's really too bad you have to wait so long for a specialist though. Yes, POTS is life changing and concerning. Doctors seem to be not too "concerned" when they don't really know what to do with us. At least that's my opinion.

Just a suggestion, :))  why don't you post this question in the Dysautonomia forum. There are people over there who might be able help you with your questions.