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Please help!! Too many odd things going on

I have trigeminal neuralgia
Diagnosed 2013. Determined idiopathic.
It usually is a quick, intense pain but then subsides.
Not now.

Recently I've been diagnosed with eosinophilia. Too many of eosinophils a type of white blood cell.

About a month ago, the trigeminal neuralgia started waking me up at night. And the "zap" was different. At that time, it was in my left eye. And the "zap" held on. Unbelievable painful. I felt paralyzed until it FINALLY stopped. How long, ? Seemed an eternity. But it was quite during the day.

This morning it woke me up again. This time, top left scalp and ran to my top left lip. And it hasn't let up all day. It comes and goes, but it doesn't stay away for long.

When it's not "zapping" I am left with an odd tingling sensation on scalp, upper left lip, and cheek.

The other odd thing I noticed today, after an intense ZAP, my brain went foggy. Had the hardest time making it thru work. Major brain fog, dizziness, and my vision would go blurry.

Now I am completely exhausted.

Anyone know what's going on?
Do I need to call my doctor?
Neurologist will just want to do another MRI. Still paying on the last THREE that showed nothing.
Do I call my hematologist?

Lastly, Almost 2 weeks ago, I had an unexplained fever of 102. No other symptoms. Hit me out on walk with dog. Barely made it home. It knocked me out. I crashed, sweated like crazy, and my daughter said I was trying to say something to her but she couldn't understand me. I also remember feeling like the walls were pulsing and or moving. IT WAS NOT FUN.

Is this coincidental or could they be related?

Please someone! What is going on???
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Avatar universal
Of your Lyme disease tests though. In order for a doctor to treat your Lyme disease symptoms without a positive test you need to be treat by an LLMD  (Lyme Literate Medical Doctor). They are the ones who get people better with it. You should really good and post in the Lyme disease section right here on MedHelp.  They can help you find an LLMD in your area.  Treat it now so you don't have to keep suffering!  I really think that's what you are suffering from. I know because I had it.
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Avatar universal
Honestly.  Testing for Lyme disease again is really going to be a waste of time because some people will test 10 or more times before they get a positive test. It's so innacurate it's crazy. I'd ask for a paper copy
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Avatar universal
They tested me for Lyme disease and it came back negative...
should i do it again?
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Avatar universal
Look into Lyme disease!  That is the absolute best advice I can give you. You sounded like you have Lyme disease and it's really effecting your nervous system.  Lyme disease is a huge overlooked epidemic today. I know from personal experience because I suffered with it for a while undetected and untreated.  NIghtmare of a time!  It's very common for people to go a while suffering before they get a diagnosis.  Testing for Lyme disease is only 50 percent accurate so many people that do indeed have it ended up getting told they don't.

There's a great Lyme disease section right here on MedHelp.  Good there and post your symptoms.  There's alot of very helpful people there!

Good luck!
Helpful - 0
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