Thanks for the input! No, I don't take plaquenil anymore, not for a couple of yrs. I take methotrexate for now. The rheumatologist is aware, and doesn't think it's SLE related. I am going for a fluroxene angiogram tomorrow......and a electroretinography at some point in the future. I will keep searching though.....my symptoms don't seem to fit with RP. You are the third person to suggest neuro, or neuro-opthamology to me.....makes sense, hopefully the retinal specialist will think so too. Keep you posted!
Do you take Plaquenil for your SLE? This can cause some problems with your vision and you must make your eyecare team aware that you take it. Also, have you discussed any of these issues with your rheumatologist? it may be time as well for both the eyecare team and rheumatology team to consult with a neurology team. But first, i would consult my rheumatologist, or whomever is your primary for your SLE, and make them aware of your vision issues. secondly, if you do take Plaquenil or its generic form, make sure your eye care professional is aware of this. Lastly, and most importantly when dealing with a lifelong chronic illness like SLE, try to coordinate all of your health care proffesionals into one united team, to work together for the greater good, which is YOU. best of luck.
here is an answer go to Doheny eye clinic at U.S.C. ask them their the Best in the World. and buy Lutin & Bilberry vitamins for eyes Helped Black Muskegge PiLots see at night