Who else to try

[joshua217777]

Im so mad.  Went to a orthopedic surgeon today to look at my neck.  Ask my symptoms, and then pushed on two spots in front of neck and two spots on back and ask if tender.  He asked about my brain mri and what it showed.  Just tiny scattered areas of white matter signals.  Anyways after he felt of me he said Im not the guy to help you.  He said i need to see a neuro because it sounds like something going on in the brain, blood flow or something.  Ultrasound of Carotid was normal.  Blood tests normal.  MRI neck normal except small herniated disc C4.  Vision test normal.  Ear tests normal except stapes spasms.  Im trying every thing to get my neck fixed, but it seems theres no one that wants to deal with it.  Im sick of going around and one hour my jaw neck and head feel like something is shut off to it feeling wise, pressure feeling, and a minute later I feel good.  I cant even get anyone to look at a very hard lump I feel about size of a marble that runs from back of head down left side of neck by the spine.  Ortho just said lymph nodes are there and its normal, but he never felt it.  Not like that on the other side.  Im so frustrated now, I dont know where else to go to??

[joshua217777]

Wow I read Jens webpage link.  I think others should read it too.  I didnt know especially the sterno muscle even causes so many neurological like problems.  That is one muscle Im going to have the PT look at for me.  Last time never worked on it.  Going to try a indian doctor that deals with homeopaethic because my sisterinlaw knows a guy that had similar problems I had and it fixed him up completely.  Ill share info for everyone when i can

[zzzzzzzzzz]

Yeah I've found homeopathics very helpful in the past too - but haven't yet tried for this problem. Interesting about the sterno muscle - thats the one I was wondering about for me too - osteopath hasn't looked at it as far as I know. - Seems I get problems in many different ones tho. I've been very ill for a year nearly to the day. Had a 3 month illness initially with lots of MS symptoms. Started with a tingling thumb, spread up arm with elestric shock sensations, then legs the same, and muscles involved went weak. Then bad double vision, vertigo,speach probs, went to pick things up & found they were not where I saw them, ataxia, falls, headaches, and other things I can't think of right now. Physician said MS - said he could see nerve damage in eyes, and had babinski sign and hyper reflexes. Then the MRI came out clear! so he sent me to a neuro -didn't get to see him until Feb. Things had calmed down by then, but still have buzzing and pain in toes 24/7, have to where prism glasses for double vision, and have lots of nerve pain. My eyes go cross eyed and upwards when I relax them to go to sleep & this hurts a bit so sleep is not good - this is usually caused by interneuclear ophthalmoplegia - which, if in both eyes, is usually due to MS. Had another MRI last week as neuro thinks the last one must have missed something - this one has been done on a better scanner & I will find out results on thursday. The osteopath I'm seeing works on trigger points and he insists this all could have been caused by my neck - he has made alot of difference in some areas, but not in others - he says give it time and I guess seeing that website made me a bit hopeful that he may be right. Its dammed hard, as you well know, to know what to try - hes the 3rd osteo I've seen and the 1st to make any real difference. Must go get some sleep - talk later.

[joshua217777]

Jenny have you had your posture checked?  Is one leg longer the the other.  Is one hip higher then the other.  Could you be pinching or irritating nerves in the low back or even lelg causing the leg problems.  Some guy I work with had the same thing, except it was on the heel of his foot and especially after getting out of bed.  They said one of his legs were slightly longer then the other, and that threw off his hips and lower back.  Physcial therapy helped with it.  I have a crawly feeling in the back of my knee all the time.  Like you try to scratch it but nothing happens.  Dont know if thats what you get.  It doesnt bother me.  It happens when I sit most of the time and figure its irritated nerves.  Clothing cause you to feel those sensations?  That happens to me too, and I think its the skin not liking whats against it.  I dont wear tight clothes ever.  Makes me itch real bad and little stingy feelings.  Try a full body swedish massage.  See if that relieves everything for a few days.  If so then physical therapy on the low back or legs I think would help

[Jenny Wren]

What kind of MRI did you have done so far?  I hae only had the brain done, I have had these strange sensations for 6 years, do you think that if I were to have MS they would have shown up by now?  Physical Therapy has seemed to have helped a good bit with the neck/facial problem, but I still have the bug crawling sensation In my legs when I sit.  Are you from the US?  My next step is to get some good testing done for Lyme, being that my husband had pulled 2 ticks off of him in the last 9 years, I never had one on me that I know of, but alot of people don't even know that they got bit.  I worry about MS cause my gram had been diagnosed when she was 60.  I wish she was still here to have her tested for Lyme, from what I have researched the symptoms and tests are pretty much the same.  She did alot of yard work in her lifetime and also camping.  My symptoms are now migraines (hormone provoked), the lovely bug crawling sensation on upper legs, back, and face, the legs and back only do it when I wear clothing against them, weird huh, tight clothing against my back drives me nuts, jaw stiffness/shoulder, I don't have no muscle weakness, no numbness, vision seems to be alright, what do you think?  Let me know.  Oh yeah, heat doesn't bother me, no fatique, more like insomnia from worrying about this strange ****!!!

[joshua217777]

Thanks for all the support zzzzz.  You said they prescribed amitriptilyne for you?  Was that one that you decided even after taking one day to give it another try?  That is one that a second neuro prescribed for me.  I never did try it either.  I went to the State Fair today and they had a posture evaluation and massage booth.  It said Im 18 lbs heavier on my right side then my left.  My hips were lined up correctly.  My right shoulder was a little higher then my left.  And my right ear was alot higher then my left when I was standing straight.  She said she felt alot of tension in my neck and recommended me to go to a chiropractor because its possible misalignment.  I asked about squeeking in my neck and she said may be a joint that gets stuck and unstuck.  I have a thin neck, and my brother said it may be a vertebrae Im feeling?  Ive had the hard lump and area down my neck for 6 months.  The last two days, after taking a shower, it feels alot flatter, but just temporary.  Never done that before.  I guess also theres a spinal accesory nerve that supplies the traps and sterno muscles, and also the trigeminal nerve.  If its getting compressed then you can have altered sensations wherever the nerves go.  So yea going back to the PT.  ZZZZ you said youve had similar problems as me, what are you doing about it aside from medication.  What are you trying or thinking about trying.

[zzzzzzzzzz]

I think its a very good idea to go back to PT, and if you look on that website, you should be able to understand why the problems go when you are in certain positions. Its all about Myofacial pain - muscle spasms and the causes, consequences and treatment. The neuros and orthos don't seem to take much of an interest in this area and so they put the cause down to anxiety - which may well be the cause in some cases, but this website goes into many others. I found it incredibly validating - may not be the cause of all my problems, but deffinately a big part of it. As for the neurontin, yes - its bound to have some side effects - they all do, but its different for everyone and I reckon for me its worth trying and seeing how it affects me before I discount it. I had a pretty bad lumbar injury 2 years ago - badly herniated disc. Life was hell, and at that point I refused to take any meds as I felt very anti drug industry. Doc gave me amiltryp - I refused to try it. I couldn't sleep with the pain and was a mess, so I tried it out of desperation. Made me feel very woozy so stopped it after one day. Back at docs - told her no meds and why - she said 'you have to take it more than 3 days to give body time to adjust'. Tried it and wow! what a difference - I could sleep, walk - still with pain, but I seemed to care less. It changed the quality of my life enormously and it took me 3 months of living hell before I tried it!. Yeah I don't believe in just popping pills without finding a cause, but quality of life is important too and it doesn't sound like you're having much fun Josh. xxxx